Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design

<p class="p1"><strong>Background: </strong>This article presents the design of PROFILe, a study investigating which (bio)medical and non-(bio)medical patient characteristics should guide more tailored chronic care. Based on this insight, the project aims to develop and va...

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Main Authors: Arianne MJ Elissen, Dorijn FL Hertroijs, Nicolaas C Shaper, Hubertus JM Vrijhoef, Dirk Ruwaard
Format: Article
Language:English
Published: Ubiquity Press 2016-04-01
Series:International Journal of Integrated Care
Subjects:
Online Access:http://www.ijic.org/articles/2208
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author Arianne MJ Elissen
Dorijn FL Hertroijs
Nicolaas C Shaper
Hubertus JM Vrijhoef
Dirk Ruwaard
author_facet Arianne MJ Elissen
Dorijn FL Hertroijs
Nicolaas C Shaper
Hubertus JM Vrijhoef
Dirk Ruwaard
author_sort Arianne MJ Elissen
collection DOAJ
description <p class="p1"><strong>Background: </strong>This article presents the design of PROFILe, a study investigating which (bio)medical and non-(bio)medical patient characteristics should guide more tailored chronic care. Based on this insight, the project aims to develop and validate ‘patient profiles’ that can be used in practice to determine optimal treatment strategies for subgroups of chronically ill with similar healthcare needs and preferences. <p class="p2"><strong>Methods/Design: </strong>PROFILe is a practice-based research comprising four phases. The project focuses on patients with type 2 diabetes. During the first study phase, patient profiles are drafted based on a systematic literature research, latent class growth modeling, and expert collaboration. In phase 2, the profiles are validated from a clinical, patient-related and statistical perspective. Phase 3 involves a discrete choice experiment to gain insight into the patient preferences that exist per profile. In phase 4, the results from all analyses are integrated and recommendations formulated on which patient characteristics should guide tailored chronic care. <p class="p2"><strong>Discussion: </strong>PROFILe is an innovative study which uses a uniquely holistic approach to assess the healthcare needs and preferences of chronically ill. The patient profiles resulting from this project must be tested in practice to investigate the effects of tailored management on patient experience, population health and costs.
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spelling doaj.art-34f39b49dd8b4ea99d948d2f3e5c27282022-12-22T03:17:21ZengUbiquity PressInternational Journal of Integrated Care1568-41562016-04-0116210.5334/ijic.22082093Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research DesignArianne MJ Elissen0Dorijn FL Hertroijs1Nicolaas C Shaper2Hubertus JM Vrijhoef3Dirk Ruwaard4Maastricht UniversityMaastricht UniversityMaastricht University Medical CentreMaastricht University Medical Centre & National University of SingaporeMaastricht University<p class="p1"><strong>Background: </strong>This article presents the design of PROFILe, a study investigating which (bio)medical and non-(bio)medical patient characteristics should guide more tailored chronic care. Based on this insight, the project aims to develop and validate ‘patient profiles’ that can be used in practice to determine optimal treatment strategies for subgroups of chronically ill with similar healthcare needs and preferences. <p class="p2"><strong>Methods/Design: </strong>PROFILe is a practice-based research comprising four phases. The project focuses on patients with type 2 diabetes. During the first study phase, patient profiles are drafted based on a systematic literature research, latent class growth modeling, and expert collaboration. In phase 2, the profiles are validated from a clinical, patient-related and statistical perspective. Phase 3 involves a discrete choice experiment to gain insight into the patient preferences that exist per profile. In phase 4, the results from all analyses are integrated and recommendations formulated on which patient characteristics should guide tailored chronic care. <p class="p2"><strong>Discussion: </strong>PROFILe is an innovative study which uses a uniquely holistic approach to assess the healthcare needs and preferences of chronically ill. The patient profiles resulting from this project must be tested in practice to investigate the effects of tailored management on patient experience, population health and costs.http://www.ijic.org/articles/2208type 2 diabetesdisease managementtailored carepatient profilesTriple Aimstudy design
spellingShingle Arianne MJ Elissen
Dorijn FL Hertroijs
Nicolaas C Shaper
Hubertus JM Vrijhoef
Dirk Ruwaard
Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
International Journal of Integrated Care
type 2 diabetes
disease management
tailored care
patient profiles
Triple Aim
study design
title Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
title_full Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
title_fullStr Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
title_full_unstemmed Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
title_short Profiling Patients’ Healthcare Needs to Support Integrated, Person-Centered Models for Long-Term Disease Management (Profile): Research Design
title_sort profiling patients healthcare needs to support integrated person centered models for long term disease management profile research design
topic type 2 diabetes
disease management
tailored care
patient profiles
Triple Aim
study design
url http://www.ijic.org/articles/2208
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