The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?

ObjectiveThe purpose of this study was to investigate the impact of the COVID-19 pandemic on the quality of life of families of children with disabilities and the mediating roles of perceived social support, perceived parental self-efficacy, psychological health, psychological resilience, and percei...

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Main Authors: Salih Rakap, Meryem Vural-Batik, Sinan Kalkan, Mustafa Karnas, Halil Ibrahim Sari, Uygar Bayrakdar
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-11-01
Series:Frontiers in Education
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/feduc.2022.827230/full
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author Salih Rakap
Salih Rakap
Meryem Vural-Batik
Sinan Kalkan
Mustafa Karnas
Halil Ibrahim Sari
Uygar Bayrakdar
author_facet Salih Rakap
Salih Rakap
Meryem Vural-Batik
Sinan Kalkan
Mustafa Karnas
Halil Ibrahim Sari
Uygar Bayrakdar
author_sort Salih Rakap
collection DOAJ
description ObjectiveThe purpose of this study was to investigate the impact of the COVID-19 pandemic on the quality of life of families of children with disabilities and the mediating roles of perceived social support, perceived parental self-efficacy, psychological health, psychological resilience, and perceived family burden on this relationship.BackgroundChildren with disabilities and their families are among the most affected populations from the restrictions imposed to prevent the spread of COVID-19 virus, as the special education and rehabilitation services they had been receiving were interrupted.MethodA correlational survey design was used to collect data from 824 parents of children with disabilities in Turkey. Path analysis was used to examine the direct and indirect effects of COVID-19 on family quality of life.ResultsResults indicated that COVID-19 had a significant total effect on family quality of life and perceived social support, parental self-efficacy and psychological resilience had a mediating role on the relationship between impact of the COVID-19 pandemic and family quality of life. Perceived social support was found to the strongest mediator of the relationship between the impact of COVID-19 and the family quality of life, while perceived family burden did not have a statistically significant association with these variables.ConclusionFamily quality of life for children with disabilities decreased as the impact of COVID-19 pandemic increased. Perceived social support, parental self-efficacy and psychological resilience had mediating roles in the relationship between the impact of the COVID-19 pandemic and family quality of life.ImplicationsCOVID-19 has resulted in disruption of special education and rehabilitation services for children with disabilities and their families. Changes in daily routines have brought up additional responsibilities to parents of children with disabilities. These additional responsibilities may adversely affect and increase the burden and stress families of children with disabilities experience. The high levels of stress in families negatively affect the welfare and quality of life and result in decreased parental attention to support their children. Findings of this study show the mediating link of perceived social support, parental self-efficacy and psychological resilience in the relationship between the impact of the COVID-19 pandemic and family quality of life. Policymakers and service providers should develop and implement specific care actions to support children with disabilities and their families during and after the pandemic.
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spelling doaj.art-353b975f23cf496ba2e6e115704b48c82022-12-22T02:55:26ZengFrontiers Media S.A.Frontiers in Education2504-284X2022-11-01710.3389/feduc.2022.827230827230The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?Salih Rakap0Salih Rakap1Meryem Vural-Batik2Sinan Kalkan3Mustafa Karnas4Halil Ibrahim Sari5Uygar Bayrakdar6Department of Specialized Education Services, University of North Carolina at Greensboro, Greensboro, NC, United StatesDepartment of Special Education, Ondokuz Mayıs University, Samsun, TurkeyDepartment of Special Education, Ondokuz Mayıs University, Samsun, TurkeyDepartment of Special Education, Çanakkale Onsekiz Mart University, Çanakkale, TurkeyDepartment of Special Education, Kilis 7 Aralık University, Kilis, TurkeyDepartment of Educational Science, Kilis 7 Aralık University, Kilis, TurkeyDepartment of Child Care and Youth Services, Ondokuz Mayıs University, Samsun, TurkeyObjectiveThe purpose of this study was to investigate the impact of the COVID-19 pandemic on the quality of life of families of children with disabilities and the mediating roles of perceived social support, perceived parental self-efficacy, psychological health, psychological resilience, and perceived family burden on this relationship.BackgroundChildren with disabilities and their families are among the most affected populations from the restrictions imposed to prevent the spread of COVID-19 virus, as the special education and rehabilitation services they had been receiving were interrupted.MethodA correlational survey design was used to collect data from 824 parents of children with disabilities in Turkey. Path analysis was used to examine the direct and indirect effects of COVID-19 on family quality of life.ResultsResults indicated that COVID-19 had a significant total effect on family quality of life and perceived social support, parental self-efficacy and psychological resilience had a mediating role on the relationship between impact of the COVID-19 pandemic and family quality of life. Perceived social support was found to the strongest mediator of the relationship between the impact of COVID-19 and the family quality of life, while perceived family burden did not have a statistically significant association with these variables.ConclusionFamily quality of life for children with disabilities decreased as the impact of COVID-19 pandemic increased. Perceived social support, parental self-efficacy and psychological resilience had mediating roles in the relationship between the impact of the COVID-19 pandemic and family quality of life.ImplicationsCOVID-19 has resulted in disruption of special education and rehabilitation services for children with disabilities and their families. Changes in daily routines have brought up additional responsibilities to parents of children with disabilities. These additional responsibilities may adversely affect and increase the burden and stress families of children with disabilities experience. The high levels of stress in families negatively affect the welfare and quality of life and result in decreased parental attention to support their children. Findings of this study show the mediating link of perceived social support, parental self-efficacy and psychological resilience in the relationship between the impact of the COVID-19 pandemic and family quality of life. Policymakers and service providers should develop and implement specific care actions to support children with disabilities and their families during and after the pandemic.https://www.frontiersin.org/articles/10.3389/feduc.2022.827230/fullCOVID-19 pandemicfamily quality of lifechildren with disabilitiessocial supportfamily burdenparental self-efficacy
spellingShingle Salih Rakap
Salih Rakap
Meryem Vural-Batik
Sinan Kalkan
Mustafa Karnas
Halil Ibrahim Sari
Uygar Bayrakdar
The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
Frontiers in Education
COVID-19 pandemic
family quality of life
children with disabilities
social support
family burden
parental self-efficacy
title The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
title_full The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
title_fullStr The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
title_full_unstemmed The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
title_short The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?
title_sort hidden overlooked impact of living through a pandemic how parents of children with disabilities fared during covid 19
topic COVID-19 pandemic
family quality of life
children with disabilities
social support
family burden
parental self-efficacy
url https://www.frontiersin.org/articles/10.3389/feduc.2022.827230/full
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