The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff

Few Korean hospitals had experience in pediatric palliative care. Since the beginning of the national palliative care project, interest in pediatric palliative care has gradually increased, but the establishment of professional palliative care is still inadequate due to a lack of indicators. This st...

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Main Authors: Su Hyun Bae, Yeo Hyang Kim
Format: Article
Language:English
Published: MDPI AG 2022-01-01
Series:Healthcare
Subjects:
Online Access:https://www.mdpi.com/2227-9032/10/1/127
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author Su Hyun Bae
Yeo Hyang Kim
author_facet Su Hyun Bae
Yeo Hyang Kim
author_sort Su Hyun Bae
collection DOAJ
description Few Korean hospitals had experience in pediatric palliative care. Since the beginning of the national palliative care project, interest in pediatric palliative care has gradually increased, but the establishment of professional palliative care is still inadequate due to a lack of indicators. This study aimed to find considerations in the process of initiating palliative care services. The general and clinical characteristics of 181 patients aged less than 24 years who were registered at the pediatric palliative care center from January 2019 to August 2021 were evaluated. Life-limiting condition group 1 had the largest number of patients. The primary need for palliative care was psychological and emotional support, followed by information sharing and help in communication with the medical staff in decision-making processes. Seventy-two patients were technologically dependent, with one to four technical supports for each patient. The registration of patients with cancer increased with time, and the time from disease diagnosis to consultation for pediatric palliative care service was significantly reduced. In conclusion, before starting pediatric palliative care, it is necessary to understand the needs of patients and their families and to cooperate with medical staff.
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spelling doaj.art-359ed946aac7449398c9accc2ceba33e2023-11-23T13:56:10ZengMDPI AGHealthcare2227-90322022-01-0110112710.3390/healthcare10010127The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical StaffSu Hyun Bae0Yeo Hyang Kim1Pediatric Palliative Care Center, Kyungpook National University Children’s Hospital, Daegu 41404, KoreaPediatric Palliative Care Center, Kyungpook National University Children’s Hospital, Daegu 41404, KoreaFew Korean hospitals had experience in pediatric palliative care. Since the beginning of the national palliative care project, interest in pediatric palliative care has gradually increased, but the establishment of professional palliative care is still inadequate due to a lack of indicators. This study aimed to find considerations in the process of initiating palliative care services. The general and clinical characteristics of 181 patients aged less than 24 years who were registered at the pediatric palliative care center from January 2019 to August 2021 were evaluated. Life-limiting condition group 1 had the largest number of patients. The primary need for palliative care was psychological and emotional support, followed by information sharing and help in communication with the medical staff in decision-making processes. Seventy-two patients were technologically dependent, with one to four technical supports for each patient. The registration of patients with cancer increased with time, and the time from disease diagnosis to consultation for pediatric palliative care service was significantly reduced. In conclusion, before starting pediatric palliative care, it is necessary to understand the needs of patients and their families and to cooperate with medical staff.https://www.mdpi.com/2227-9032/10/1/127palliative carechildrenlife-limiting condition
spellingShingle Su Hyun Bae
Yeo Hyang Kim
The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
Healthcare
palliative care
children
life-limiting condition
title The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
title_full The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
title_fullStr The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
title_full_unstemmed The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
title_short The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff
title_sort first step to initiate pediatric palliative care identify patient needs and cooperation of medical staff
topic palliative care
children
life-limiting condition
url https://www.mdpi.com/2227-9032/10/1/127
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