Procedural pain in children: a qualitative study of caregiver experiences and information needs
Abstract Background Children experience multiple painful procedures when being cared for in emergency departments (EDs). Unfortunately, evidence-based interventions to manage such pain and distress are under-utilized across EDs. Caregivers are uniquely positioned and invested to advocate for the ada...
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| Format: | Article |
| Language: | English |
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BMC
2018-10-01
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| Series: | BMC Pediatrics |
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| Online Access: | http://link.springer.com/article/10.1186/s12887-018-1300-y |
| _version_ | 1818274994920095744 |
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| author | Kassi Shave Samina Ali Shannon D. Scott Lisa Hartling |
| author_facet | Kassi Shave Samina Ali Shannon D. Scott Lisa Hartling |
| author_sort | Kassi Shave |
| collection | DOAJ |
| description | Abstract Background Children experience multiple painful procedures when being cared for in emergency departments (EDs). Unfortunately, evidence-based interventions to manage such pain and distress are under-utilized across EDs. Caregivers are uniquely positioned and invested to advocate for the adaptation of such evidence into practice. Our objective was to gather information from caregivers of children experiencing procedural pain in the ED to inform the development of a novel, caregiver-focused knowledge translation (KT) tool. Methods The study design was qualitative description. Caregivers of children who underwent intravenous (IV) insertion or venipuncture in the pediatric ED at an urban tertiary care centre were interviewed. Thematic analysis was applied to the data. The TRanslating Emergency Knowledge for Kids (TREKK) Parent Advisory Group continuously informed this study, and provided input on interview guide development and piloting, data collection, analysis of the data, interpretation of the results, and development of next steps. Results Interviews revealed four major themes: 1) source of healthcare information; 2) delivering healthcare information; 3) communication with caregivers; and 4) procedure-related anxiety and long-term effects. Caregivers most valued receiving information directly from their healthcare provider. They also expressed that healthcare providers should direct information about the procedure to their child and identified strategies to involve children in their care. Caregivers wanted to be empowered to ask informed questions of their healthcare providers. Finally, caregivers reported negative experiences with procedures for their children, occurring mainly at non-pediatric centres. Conclusions We have identified core information needs for caregivers whose children are experiencing IV insertion or venipuncture. These results will form the foundation for the development of a KT tool that may empower caregivers to actively participate in their child’s healthcare. |
| first_indexed | 2024-12-12T22:22:42Z |
| format | Article |
| id | doaj.art-36da18d2a0744eea8db49f12757dcba7 |
| institution | Directory Open Access Journal |
| issn | 1471-2431 |
| language | English |
| last_indexed | 2024-12-12T22:22:42Z |
| publishDate | 2018-10-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pediatrics |
| spelling | doaj.art-36da18d2a0744eea8db49f12757dcba72022-12-22T00:09:51ZengBMCBMC Pediatrics1471-24312018-10-0118111010.1186/s12887-018-1300-yProcedural pain in children: a qualitative study of caregiver experiences and information needsKassi Shave0Samina Ali1Shannon D. Scott2Lisa Hartling3Alberta Research Centre for Health Evidence (ARCHE), University of AlbertaDepartment of Pediatrics, University of AlbertaWomen and Children’s Health Research InstituteAlberta Research Centre for Health Evidence (ARCHE), University of AlbertaAbstract Background Children experience multiple painful procedures when being cared for in emergency departments (EDs). Unfortunately, evidence-based interventions to manage such pain and distress are under-utilized across EDs. Caregivers are uniquely positioned and invested to advocate for the adaptation of such evidence into practice. Our objective was to gather information from caregivers of children experiencing procedural pain in the ED to inform the development of a novel, caregiver-focused knowledge translation (KT) tool. Methods The study design was qualitative description. Caregivers of children who underwent intravenous (IV) insertion or venipuncture in the pediatric ED at an urban tertiary care centre were interviewed. Thematic analysis was applied to the data. The TRanslating Emergency Knowledge for Kids (TREKK) Parent Advisory Group continuously informed this study, and provided input on interview guide development and piloting, data collection, analysis of the data, interpretation of the results, and development of next steps. Results Interviews revealed four major themes: 1) source of healthcare information; 2) delivering healthcare information; 3) communication with caregivers; and 4) procedure-related anxiety and long-term effects. Caregivers most valued receiving information directly from their healthcare provider. They also expressed that healthcare providers should direct information about the procedure to their child and identified strategies to involve children in their care. Caregivers wanted to be empowered to ask informed questions of their healthcare providers. Finally, caregivers reported negative experiences with procedures for their children, occurring mainly at non-pediatric centres. Conclusions We have identified core information needs for caregivers whose children are experiencing IV insertion or venipuncture. These results will form the foundation for the development of a KT tool that may empower caregivers to actively participate in their child’s healthcare.http://link.springer.com/article/10.1186/s12887-018-1300-yProcedural painEmergency departmentKnowledge translationPediatricsChildrenIntravenous |
| spellingShingle | Kassi Shave Samina Ali Shannon D. Scott Lisa Hartling Procedural pain in children: a qualitative study of caregiver experiences and information needs BMC Pediatrics Procedural pain Emergency department Knowledge translation Pediatrics Children Intravenous |
| title | Procedural pain in children: a qualitative study of caregiver experiences and information needs |
| title_full | Procedural pain in children: a qualitative study of caregiver experiences and information needs |
| title_fullStr | Procedural pain in children: a qualitative study of caregiver experiences and information needs |
| title_full_unstemmed | Procedural pain in children: a qualitative study of caregiver experiences and information needs |
| title_short | Procedural pain in children: a qualitative study of caregiver experiences and information needs |
| title_sort | procedural pain in children a qualitative study of caregiver experiences and information needs |
| topic | Procedural pain Emergency department Knowledge translation Pediatrics Children Intravenous |
| url | http://link.springer.com/article/10.1186/s12887-018-1300-y |
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