Engaging with EPIO, a digital pain self-management program: a qualitative study
Abstract Background Chronic pain conditions entail significant personal and societal burdens and improved outreach of evidence-based pain self-management programs are needed. Digital cognitive-behavioral self-management interventions have shown promise. However, evidence is still scarce and several...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2022-04-01
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| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12913-022-07963-x |
| _version_ | 1818009867288313856 |
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| author | Katrine Bostrøm Cecilie Varsi Hilde Eide Elin Børøsund Ólöf B. Kristjansdottir Karlein M. G. Schreurs Lori B. Waxenberg Karen E. Weiss Eleshia J. Morrison Elise Flakk Nordang Audun Stubhaug Lise Solberg Nes |
| author_facet | Katrine Bostrøm Cecilie Varsi Hilde Eide Elin Børøsund Ólöf B. Kristjansdottir Karlein M. G. Schreurs Lori B. Waxenberg Karen E. Weiss Eleshia J. Morrison Elise Flakk Nordang Audun Stubhaug Lise Solberg Nes |
| author_sort | Katrine Bostrøm |
| collection | DOAJ |
| description | Abstract Background Chronic pain conditions entail significant personal and societal burdens and improved outreach of evidence-based pain self-management programs are needed. Digital cognitive-behavioral self-management interventions have shown promise. However, evidence is still scarce and several challenges with such interventions for chronic pain exist. Exploring patients' experiences and engagement with digital interventions may be an essential step towards developing meaningful digital self-management interventions for those living with chronic pain. Objectives This study aimed to gain insight into the experiences of people with chronic pain when engaging with EPIO, an application (app)-based cognitive-behavioral pain self-management intervention program. Methods Participants (N = 50) living with chronic pain received access to the EPIO intervention in a feasibility pilot-study for 3 months. During this time, all participants received a follow-up phone call at 2–3 weeks, and a subsample (n = 15) also participated in individual semi-structured interviews after 3 months. A qualitative design was used and thematic analysis was employed aiming to capture participants’ experiences when engaging with the EPIO intervention program. Results Findings identifying program-related experiences and engagement were organized into three main topics, each with three sub-themes: (1) Engaging with EPIO; motivation to learn, fostering joy and enthusiasm, and helpful reminders and personalization, (2) Coping with pain in everyday life; awareness, practice and using EPIO in everyday life, and (3) The value of engaging with the EPIO program; EPIO – a friend, making peace with the presence of pain, and fostering communication and social support. Conclusions This qualitative study explored participants’ experiences and engagement with EPIO, a digital self-management intervention program for people living with chronic pain. Findings identified valued aspects related to motivation for engagement, and showed how such a program may be incorporated into daily life, and encourage a sense of acceptance, social support and relatedness. The findings highlight vital components for facilitating digital program engagement and use in support of self-management for people living with chronic pain. Trial registration ClinicalTrials.gov NCT03705104 . |
| first_indexed | 2024-04-14T05:48:21Z |
| format | Article |
| id | doaj.art-37107634d3514b3fb8144f91454787b3 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-04-14T05:48:21Z |
| publishDate | 2022-04-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-37107634d3514b3fb8144f91454787b32022-12-22T02:09:13ZengBMCBMC Health Services Research1472-69632022-04-0122111510.1186/s12913-022-07963-xEngaging with EPIO, a digital pain self-management program: a qualitative studyKatrine Bostrøm0Cecilie Varsi1Hilde Eide2Elin Børøsund3Ólöf B. Kristjansdottir4Karlein M. G. Schreurs5Lori B. Waxenberg6Karen E. Weiss7Eleshia J. Morrison8Elise Flakk Nordang9Audun Stubhaug10Lise Solberg Nes11Department of Digital Health Research, Division of Medicine, Oslo University HospitalDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalDepartment of Psychology, Health & Technology, University of TwenteDepartment of Clinical and Health Psychology, University of FloridaDepartment of Anesthesiology and Pain Medicine, University of Washington School of MedicineDepartment of Psychiatry and Psychology, College of Medicine and Science, Mayo ClinicDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalInstitute of Clinical Medicine, Faculty of Medicine, University of OsloDepartment of Digital Health Research, Division of Medicine, Oslo University HospitalAbstract Background Chronic pain conditions entail significant personal and societal burdens and improved outreach of evidence-based pain self-management programs are needed. Digital cognitive-behavioral self-management interventions have shown promise. However, evidence is still scarce and several challenges with such interventions for chronic pain exist. Exploring patients' experiences and engagement with digital interventions may be an essential step towards developing meaningful digital self-management interventions for those living with chronic pain. Objectives This study aimed to gain insight into the experiences of people with chronic pain when engaging with EPIO, an application (app)-based cognitive-behavioral pain self-management intervention program. Methods Participants (N = 50) living with chronic pain received access to the EPIO intervention in a feasibility pilot-study for 3 months. During this time, all participants received a follow-up phone call at 2–3 weeks, and a subsample (n = 15) also participated in individual semi-structured interviews after 3 months. A qualitative design was used and thematic analysis was employed aiming to capture participants’ experiences when engaging with the EPIO intervention program. Results Findings identifying program-related experiences and engagement were organized into three main topics, each with three sub-themes: (1) Engaging with EPIO; motivation to learn, fostering joy and enthusiasm, and helpful reminders and personalization, (2) Coping with pain in everyday life; awareness, practice and using EPIO in everyday life, and (3) The value of engaging with the EPIO program; EPIO – a friend, making peace with the presence of pain, and fostering communication and social support. Conclusions This qualitative study explored participants’ experiences and engagement with EPIO, a digital self-management intervention program for people living with chronic pain. Findings identified valued aspects related to motivation for engagement, and showed how such a program may be incorporated into daily life, and encourage a sense of acceptance, social support and relatedness. The findings highlight vital components for facilitating digital program engagement and use in support of self-management for people living with chronic pain. Trial registration ClinicalTrials.gov NCT03705104 .https://doi.org/10.1186/s12913-022-07963-xDigitaleHealthApplication (app)Chronic painSelf-managementEngagement |
| spellingShingle | Katrine Bostrøm Cecilie Varsi Hilde Eide Elin Børøsund Ólöf B. Kristjansdottir Karlein M. G. Schreurs Lori B. Waxenberg Karen E. Weiss Eleshia J. Morrison Elise Flakk Nordang Audun Stubhaug Lise Solberg Nes Engaging with EPIO, a digital pain self-management program: a qualitative study BMC Health Services Research Digital eHealth Application (app) Chronic pain Self-management Engagement |
| title | Engaging with EPIO, a digital pain self-management program: a qualitative study |
| title_full | Engaging with EPIO, a digital pain self-management program: a qualitative study |
| title_fullStr | Engaging with EPIO, a digital pain self-management program: a qualitative study |
| title_full_unstemmed | Engaging with EPIO, a digital pain self-management program: a qualitative study |
| title_short | Engaging with EPIO, a digital pain self-management program: a qualitative study |
| title_sort | engaging with epio a digital pain self management program a qualitative study |
| topic | Digital eHealth Application (app) Chronic pain Self-management Engagement |
| url | https://doi.org/10.1186/s12913-022-07963-x |
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