Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention
Abstract Background The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specia...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2020-08-01
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| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12904-020-00633-x |
| _version_ | 1818340970788290560 |
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| author | Rosemary Frey Sophia Barham Deborah Balmer Michal Boyd Jackie Robinson Merryn Gott |
| author_facet | Rosemary Frey Sophia Barham Deborah Balmer Michal Boyd Jackie Robinson Merryn Gott |
| author_sort | Rosemary Frey |
| collection | DOAJ |
| description | Abstract Background The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses’ knowledge and skill to care for frail older people. Method The experiences of 18 bereaved families concerning the palliative care journey (both at the start and finish of a one-year implementation of SHARE) were explored using semi-structured interviews. Results Three themes were important to bereaved families’ experience: communication with staff, systems of care, and hospice involvement. Sub-themes indicating changes in these three components of care between the start and finish of SHARE was identified. A fourth theme highlighted challenges (relationship with GP, staff shortages, and turnover) that continued across SHARE. Conclusion Findings indicated that SHARE benefited families (improved communication and support) through the end of life journey of their relatives, but challenges remained. |
| first_indexed | 2024-12-13T15:51:22Z |
| format | Article |
| id | doaj.art-371403c3d4b64d3aa315bb7727422dd8 |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-12-13T15:51:22Z |
| publishDate | 2020-08-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-371403c3d4b64d3aa315bb7727422dd82022-12-21T23:39:28ZengBMCBMC Palliative Care1472-684X2020-08-0119111010.1186/s12904-020-00633-xPalliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) interventionRosemary Frey0Sophia Barham1Deborah Balmer2Michal Boyd3Jackie Robinson4Merryn Gott5School of Nursing, Faculty of Medical and Health Sciences University of AucklandDivision of Health Sciences, University of OtagoSchool of Nursing, Faculty of Medical and Health Sciences University of AucklandSchool of Nursing, Faculty of Medical and Health Sciences University of AucklandSchool of Nursing, Faculty of Medical and Health Sciences University of AucklandSchool of Nursing, Faculty of Medical and Health Sciences University of AucklandAbstract Background The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve palliative care within residential aged care facilities and to improve specialist palliative care nurses’ knowledge and skill to care for frail older people. Method The experiences of 18 bereaved families concerning the palliative care journey (both at the start and finish of a one-year implementation of SHARE) were explored using semi-structured interviews. Results Three themes were important to bereaved families’ experience: communication with staff, systems of care, and hospice involvement. Sub-themes indicating changes in these three components of care between the start and finish of SHARE was identified. A fourth theme highlighted challenges (relationship with GP, staff shortages, and turnover) that continued across SHARE. Conclusion Findings indicated that SHARE benefited families (improved communication and support) through the end of life journey of their relatives, but challenges remained.http://link.springer.com/article/10.1186/s12904-020-00633-xPalliative careBereaved familiesResidential aged careOlder adults |
| spellingShingle | Rosemary Frey Sophia Barham Deborah Balmer Michal Boyd Jackie Robinson Merryn Gott Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention BMC Palliative Care Palliative care Bereaved families Residential aged care Older adults |
| title | Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention |
| title_full | Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention |
| title_fullStr | Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention |
| title_full_unstemmed | Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention |
| title_short | Palliative care delivery in residential aged care: bereaved family member experiences of the Supportive Hospice Aged Residential Exchange (SHARE) intervention |
| title_sort | palliative care delivery in residential aged care bereaved family member experiences of the supportive hospice aged residential exchange share intervention |
| topic | Palliative care Bereaved families Residential aged care Older adults |
| url | http://link.springer.com/article/10.1186/s12904-020-00633-x |
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