Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education
Background. People with Parkinson’s disease (PWP) and their care partners (CP) are underrepresented in research. Methods. As an eight-week research advocacy training program, TeleDREAMS was designed to increase understanding of, and participation in, clinical research by older adults through topics...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Hindawi Limited
2023-01-01
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| Series: | Parkinson's Disease |
| Online Access: | http://dx.doi.org/10.1155/2023/5519646 |
| _version_ | 1797681983709511680 |
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| author | Maria E. Ramos Suraj Pothineni Liang Ni Allison A. Bay Todd Prusin Madeleine E. Hackney |
| author_facet | Maria E. Ramos Suraj Pothineni Liang Ni Allison A. Bay Todd Prusin Madeleine E. Hackney |
| author_sort | Maria E. Ramos |
| collection | DOAJ |
| description | Background. People with Parkinson’s disease (PWP) and their care partners (CP) are underrepresented in research. Methods. As an eight-week research advocacy training program, TeleDREAMS was designed to increase understanding of, and participation in, clinical research by older adults through topics on the research process. Qualitative analysis was conducted to explore themes from 365 thirty-minute semistructured phone interviews with 32 PWP and 17 CP TeleDREAMS participants. Interviews gauged progress, motivation, and information retention after each weekly module. Results. Eight salient themes were identified from the interviews, including Understanding the Importance of Advocacy and Becoming Cognizant of Past Advocacy Experiences. Conclusions. While some findings aligned with weekly module topics, others, such as stated learning preferences and knowledge acquisition of older adults in an educational program, were unexpected. TeleDREAMS may increase interest in community engagement, research participation, and advocacy roles in marginalized and underrepresented participants. |
| first_indexed | 2024-03-11T23:52:57Z |
| format | Article |
| id | doaj.art-378ff0f905d749a2b038aaaf09dd2661 |
| institution | Directory Open Access Journal |
| issn | 2042-0080 |
| language | English |
| last_indexed | 2024-03-11T23:52:57Z |
| publishDate | 2023-01-01 |
| publisher | Hindawi Limited |
| record_format | Article |
| series | Parkinson's Disease |
| spelling | doaj.art-378ff0f905d749a2b038aaaf09dd26612023-09-19T00:00:02ZengHindawi LimitedParkinson's Disease2042-00802023-01-01202310.1155/2023/5519646Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research EducationMaria E. Ramos0Suraj Pothineni1Liang Ni2Allison A. Bay3Todd Prusin4Madeleine E. Hackney5Emory University College of Arts and SciencesEmory University School of MedicineEmory University School of MedicineEmory University School of MedicineEmory University School of MedicineEmory University School of MedicineBackground. People with Parkinson’s disease (PWP) and their care partners (CP) are underrepresented in research. Methods. As an eight-week research advocacy training program, TeleDREAMS was designed to increase understanding of, and participation in, clinical research by older adults through topics on the research process. Qualitative analysis was conducted to explore themes from 365 thirty-minute semistructured phone interviews with 32 PWP and 17 CP TeleDREAMS participants. Interviews gauged progress, motivation, and information retention after each weekly module. Results. Eight salient themes were identified from the interviews, including Understanding the Importance of Advocacy and Becoming Cognizant of Past Advocacy Experiences. Conclusions. While some findings aligned with weekly module topics, others, such as stated learning preferences and knowledge acquisition of older adults in an educational program, were unexpected. TeleDREAMS may increase interest in community engagement, research participation, and advocacy roles in marginalized and underrepresented participants.http://dx.doi.org/10.1155/2023/5519646 |
| spellingShingle | Maria E. Ramos Suraj Pothineni Liang Ni Allison A. Bay Todd Prusin Madeleine E. Hackney Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education Parkinson's Disease |
| title | Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education |
| title_full | Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education |
| title_fullStr | Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education |
| title_full_unstemmed | Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education |
| title_short | Qualitative Analysis of Attitudes, Knowledge, and Interest in Research of People with Parkinson’s Disease and Their Care Partners Receiving Accessible Research Education |
| title_sort | qualitative analysis of attitudes knowledge and interest in research of people with parkinson s disease and their care partners receiving accessible research education |
| url | http://dx.doi.org/10.1155/2023/5519646 |
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