Disruptive Behaviors and Intellectual Disability: Creating a New Script
BackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental...
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Format: | Article |
Language: | English |
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Frontiers Media S.A.
2022-07-01
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Series: | Frontiers in Psychiatry |
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Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/full |
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author | Melvin Chin-Hao Chan Mackenzie Campbell Nadia Beyzaei Sylvia Stockler Sylvia Stockler Osman S. Ipsiroglu Osman S. Ipsiroglu |
author_facet | Melvin Chin-Hao Chan Mackenzie Campbell Nadia Beyzaei Sylvia Stockler Sylvia Stockler Osman S. Ipsiroglu Osman S. Ipsiroglu |
author_sort | Melvin Chin-Hao Chan |
collection | DOAJ |
description | BackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental approach, which does not attempt to establish existing categorical diagnoses, but which describes in a neutral way, is missing in the literature. Therefore, we tried to describe CDBs in youth with ID in an explorative study.MethodsInterviews with families investigated the CDBs of five youth with Down syndrome. At home, families tracked youth's sleep/wake behaviors and physical activity. Youth were observed in a summer school classroom. The collected information and suggested explanatory models for observed CDBs were reviewed with the families.ResultsWe grouped CDBs as challenging, if they were considered to be reactive or triggered, or unspecified, if no such explanatory model was available. A third category was created for light-hearted CDBs: goofy, acknowledging the right to laugh together with peers. We found some relationships between sleep, physical activity, and CDBs and developed an explorative approach, supporting a child-centered perspective on CDBs.ConclusionThe controversial discussions on terminology and management of CDBs in the literature demonstrate the need for a non-judgmental approach. Such an explorative approach, allowing non-professionals to not label, has been missing. The fact that, up to now, the light-hearted behaviors of an individual with ID have not been integrated in commonly-used behavioral checklists as their natural right, proves our concept and indicates that a paradigm change from judgment-based to exploratory-driven approaches is needed. |
first_indexed | 2024-12-11T03:54:20Z |
format | Article |
id | doaj.art-379653a80c3a487d95924f8d70efc53d |
institution | Directory Open Access Journal |
issn | 1664-0640 |
language | English |
last_indexed | 2024-12-11T03:54:20Z |
publishDate | 2022-07-01 |
publisher | Frontiers Media S.A. |
record_format | Article |
series | Frontiers in Psychiatry |
spelling | doaj.art-379653a80c3a487d95924f8d70efc53d2022-12-22T01:21:50ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402022-07-011310.3389/fpsyt.2022.851490851490Disruptive Behaviors and Intellectual Disability: Creating a New ScriptMelvin Chin-Hao Chan0Mackenzie Campbell1Nadia Beyzaei2Sylvia Stockler3Sylvia Stockler4Osman S. Ipsiroglu5Osman S. Ipsiroglu6H-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaDivision of Biochemical Diseases, Department of Pediatrics, Faculty of Medicine, The University of British Columbia, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaDivisions of Developmental Pediatrics, Respirology, and Child and Adolescent Psychiatry, Departments of Pediatrics and Psychiatry, Faculty of Medicine, The University of British Columbia, Vancouver, BC, CanadaBackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental approach, which does not attempt to establish existing categorical diagnoses, but which describes in a neutral way, is missing in the literature. Therefore, we tried to describe CDBs in youth with ID in an explorative study.MethodsInterviews with families investigated the CDBs of five youth with Down syndrome. At home, families tracked youth's sleep/wake behaviors and physical activity. Youth were observed in a summer school classroom. The collected information and suggested explanatory models for observed CDBs were reviewed with the families.ResultsWe grouped CDBs as challenging, if they were considered to be reactive or triggered, or unspecified, if no such explanatory model was available. A third category was created for light-hearted CDBs: goofy, acknowledging the right to laugh together with peers. We found some relationships between sleep, physical activity, and CDBs and developed an explorative approach, supporting a child-centered perspective on CDBs.ConclusionThe controversial discussions on terminology and management of CDBs in the literature demonstrate the need for a non-judgmental approach. Such an explorative approach, allowing non-professionals to not label, has been missing. The fact that, up to now, the light-hearted behaviors of an individual with ID have not been integrated in commonly-used behavioral checklists as their natural right, proves our concept and indicates that a paradigm change from judgment-based to exploratory-driven approaches is needed.https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/fullintellectual disabilityDown syndromedisruptive behaviorsleepphysical activity |
spellingShingle | Melvin Chin-Hao Chan Mackenzie Campbell Nadia Beyzaei Sylvia Stockler Sylvia Stockler Osman S. Ipsiroglu Osman S. Ipsiroglu Disruptive Behaviors and Intellectual Disability: Creating a New Script Frontiers in Psychiatry intellectual disability Down syndrome disruptive behavior sleep physical activity |
title | Disruptive Behaviors and Intellectual Disability: Creating a New Script |
title_full | Disruptive Behaviors and Intellectual Disability: Creating a New Script |
title_fullStr | Disruptive Behaviors and Intellectual Disability: Creating a New Script |
title_full_unstemmed | Disruptive Behaviors and Intellectual Disability: Creating a New Script |
title_short | Disruptive Behaviors and Intellectual Disability: Creating a New Script |
title_sort | disruptive behaviors and intellectual disability creating a new script |
topic | intellectual disability Down syndrome disruptive behavior sleep physical activity |
url | https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/full |
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