Disruptive Behaviors and Intellectual Disability: Creating a New Script

BackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental...

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Main Authors: Melvin Chin-Hao Chan, Mackenzie Campbell, Nadia Beyzaei, Sylvia Stockler, Osman S. Ipsiroglu
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-07-01
Series:Frontiers in Psychiatry
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/full
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author Melvin Chin-Hao Chan
Mackenzie Campbell
Nadia Beyzaei
Sylvia Stockler
Sylvia Stockler
Osman S. Ipsiroglu
Osman S. Ipsiroglu
author_facet Melvin Chin-Hao Chan
Mackenzie Campbell
Nadia Beyzaei
Sylvia Stockler
Sylvia Stockler
Osman S. Ipsiroglu
Osman S. Ipsiroglu
author_sort Melvin Chin-Hao Chan
collection DOAJ
description BackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental approach, which does not attempt to establish existing categorical diagnoses, but which describes in a neutral way, is missing in the literature. Therefore, we tried to describe CDBs in youth with ID in an explorative study.MethodsInterviews with families investigated the CDBs of five youth with Down syndrome. At home, families tracked youth's sleep/wake behaviors and physical activity. Youth were observed in a summer school classroom. The collected information and suggested explanatory models for observed CDBs were reviewed with the families.ResultsWe grouped CDBs as challenging, if they were considered to be reactive or triggered, or unspecified, if no such explanatory model was available. A third category was created for light-hearted CDBs: goofy, acknowledging the right to laugh together with peers. We found some relationships between sleep, physical activity, and CDBs and developed an explorative approach, supporting a child-centered perspective on CDBs.ConclusionThe controversial discussions on terminology and management of CDBs in the literature demonstrate the need for a non-judgmental approach. Such an explorative approach, allowing non-professionals to not label, has been missing. The fact that, up to now, the light-hearted behaviors of an individual with ID have not been integrated in commonly-used behavioral checklists as their natural right, proves our concept and indicates that a paradigm change from judgment-based to exploratory-driven approaches is needed.
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spelling doaj.art-379653a80c3a487d95924f8d70efc53d2022-12-22T01:21:50ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402022-07-011310.3389/fpsyt.2022.851490851490Disruptive Behaviors and Intellectual Disability: Creating a New ScriptMelvin Chin-Hao Chan0Mackenzie Campbell1Nadia Beyzaei2Sylvia Stockler3Sylvia Stockler4Osman S. Ipsiroglu5Osman S. Ipsiroglu6H-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaDivision of Biochemical Diseases, Department of Pediatrics, Faculty of Medicine, The University of British Columbia, Vancouver, BC, CanadaH-Behaviours Research Lab, BC Children's Hospital Research Institute, Vancouver, BC, CanadaDivisions of Developmental Pediatrics, Respirology, and Child and Adolescent Psychiatry, Departments of Pediatrics and Psychiatry, Faculty of Medicine, The University of British Columbia, Vancouver, BC, CanadaBackgroundTerms currently used to describe the so-called challenging and disruptive behaviors (CBDs) of children with intellectual disabilities (ID) have different connotations depending on guiding contextual frameworks, such as academic and cultural settings in which they are used. A non-judgmental approach, which does not attempt to establish existing categorical diagnoses, but which describes in a neutral way, is missing in the literature. Therefore, we tried to describe CDBs in youth with ID in an explorative study.MethodsInterviews with families investigated the CDBs of five youth with Down syndrome. At home, families tracked youth's sleep/wake behaviors and physical activity. Youth were observed in a summer school classroom. The collected information and suggested explanatory models for observed CDBs were reviewed with the families.ResultsWe grouped CDBs as challenging, if they were considered to be reactive or triggered, or unspecified, if no such explanatory model was available. A third category was created for light-hearted CDBs: goofy, acknowledging the right to laugh together with peers. We found some relationships between sleep, physical activity, and CDBs and developed an explorative approach, supporting a child-centered perspective on CDBs.ConclusionThe controversial discussions on terminology and management of CDBs in the literature demonstrate the need for a non-judgmental approach. Such an explorative approach, allowing non-professionals to not label, has been missing. The fact that, up to now, the light-hearted behaviors of an individual with ID have not been integrated in commonly-used behavioral checklists as their natural right, proves our concept and indicates that a paradigm change from judgment-based to exploratory-driven approaches is needed.https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/fullintellectual disabilityDown syndromedisruptive behaviorsleepphysical activity
spellingShingle Melvin Chin-Hao Chan
Mackenzie Campbell
Nadia Beyzaei
Sylvia Stockler
Sylvia Stockler
Osman S. Ipsiroglu
Osman S. Ipsiroglu
Disruptive Behaviors and Intellectual Disability: Creating a New Script
Frontiers in Psychiatry
intellectual disability
Down syndrome
disruptive behavior
sleep
physical activity
title Disruptive Behaviors and Intellectual Disability: Creating a New Script
title_full Disruptive Behaviors and Intellectual Disability: Creating a New Script
title_fullStr Disruptive Behaviors and Intellectual Disability: Creating a New Script
title_full_unstemmed Disruptive Behaviors and Intellectual Disability: Creating a New Script
title_short Disruptive Behaviors and Intellectual Disability: Creating a New Script
title_sort disruptive behaviors and intellectual disability creating a new script
topic intellectual disability
Down syndrome
disruptive behavior
sleep
physical activity
url https://www.frontiersin.org/articles/10.3389/fpsyt.2022.851490/full
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