Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital
Lene E Joensen,1 Tine Filges,2 Ingrid Willaing1 1Health Promotion Research, Steno Diabetes Center, Gentofte, 2Filges Analysis, Hellerup, Denmark Aim: To explore the function of peer support from the perspective of adults with type 1 diabetes in Denmark. Methods: The study population consisted of 2...
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| Format: | Article |
| Language: | English |
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Dove Medical Press
2016-08-01
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| Series: | Patient Preference and Adherence |
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| Online Access: | https://www.dovepress.com/patient-perspectives-on-peer-support-for-adults-with-type-1-diabetes-a-peer-reviewed-article-PPA |
| _version_ | 1819099232240402432 |
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| author | Joensen LE Filges T Willaing I |
| author_facet | Joensen LE Filges T Willaing I |
| author_sort | Joensen LE |
| collection | DOAJ |
| description | Lene E Joensen,1 Tine Filges,2 Ingrid Willaing1 1Health Promotion Research, Steno Diabetes Center, Gentofte, 2Filges Analysis, Hellerup, Denmark Aim: To explore the function of peer support from the perspective of adults with type 1 diabetes in Denmark. Methods: The study population consisted of 20 adults with type 1 diabetes. The sample was diverse in relation to educational background, age, sex, and cohabitation status. Inspired by action research, several methods and perspectives on peer support were explored and tested. Workshops and group and individual interviews were performed. Systematic text condensation was used to analyze data, supplemented with theory-based interpretive analysis. Results: Adults with type 1 diabetes found peer support highly relevant to reduce a burdensome feeling of diabetes-specific loneliness. Peer support showed potential to create diabetes-specific social capital not only by creating reciprocal social support between peers but also, more importantly, by creating space for genuine trust and a feeling of communality. There was a widespread feeling of the pervasive impact of diabetes on daily life and thus the relevance of discussing all aspects of life. However, participants perceived peer support as particularly relevant in relation to big changes in life, for example, in family life, at work, or through treatment events such as getting an insulin pump. Conclusion: Peer support programs focusing on creating and establishing diabetes-specific social capital using participatory approaches seem highly relevant among adults with type 1 diabetes. Content, methods, and effects of peer support need further exploration in collaboration with adults with type 1 diabetes. Keywords: type 1 diabetes mellitus, adult, psychosocial support systems, patient preferences, peer support, diabetes-specific social capital, diabetes-specific loneliness |
| first_indexed | 2024-12-22T00:43:36Z |
| format | Article |
| id | doaj.art-38ef4e6f2d5b41a88f0e82a650b8920d |
| institution | Directory Open Access Journal |
| issn | 1177-889X |
| language | English |
| last_indexed | 2024-12-22T00:43:36Z |
| publishDate | 2016-08-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Patient Preference and Adherence |
| spelling | doaj.art-38ef4e6f2d5b41a88f0e82a650b8920d2022-12-21T18:44:37ZengDove Medical PressPatient Preference and Adherence1177-889X2016-08-012016Issue 11443145128211Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capitalJoensen LEFilges TWillaing ILene E Joensen,1 Tine Filges,2 Ingrid Willaing1 1Health Promotion Research, Steno Diabetes Center, Gentofte, 2Filges Analysis, Hellerup, Denmark Aim: To explore the function of peer support from the perspective of adults with type 1 diabetes in Denmark. Methods: The study population consisted of 20 adults with type 1 diabetes. The sample was diverse in relation to educational background, age, sex, and cohabitation status. Inspired by action research, several methods and perspectives on peer support were explored and tested. Workshops and group and individual interviews were performed. Systematic text condensation was used to analyze data, supplemented with theory-based interpretive analysis. Results: Adults with type 1 diabetes found peer support highly relevant to reduce a burdensome feeling of diabetes-specific loneliness. Peer support showed potential to create diabetes-specific social capital not only by creating reciprocal social support between peers but also, more importantly, by creating space for genuine trust and a feeling of communality. There was a widespread feeling of the pervasive impact of diabetes on daily life and thus the relevance of discussing all aspects of life. However, participants perceived peer support as particularly relevant in relation to big changes in life, for example, in family life, at work, or through treatment events such as getting an insulin pump. Conclusion: Peer support programs focusing on creating and establishing diabetes-specific social capital using participatory approaches seem highly relevant among adults with type 1 diabetes. Content, methods, and effects of peer support need further exploration in collaboration with adults with type 1 diabetes. Keywords: type 1 diabetes mellitus, adult, psychosocial support systems, patient preferences, peer support, diabetes-specific social capital, diabetes-specific lonelinesshttps://www.dovepress.com/patient-perspectives-on-peer-support-for-adults-with-type-1-diabetes-a-peer-reviewed-article-PPAType 1 diabetesadultspeer support needspsychosocial aspectsdiabetes-specific social capitaldiabetes-specific loneliness. |
| spellingShingle | Joensen LE Filges T Willaing I Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital Patient Preference and Adherence Type 1 diabetes adults peer support needs psychosocial aspects diabetes-specific social capital diabetes-specific loneliness. |
| title | Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital |
| title_full | Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital |
| title_fullStr | Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital |
| title_full_unstemmed | Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital |
| title_short | Patient perspectives on peer support for adults with type 1 diabetes: a need for diabetes-specific social capital |
| title_sort | patient perspectives on peer support for adults with type 1 diabetes a need for diabetes specific social capital |
| topic | Type 1 diabetes adults peer support needs psychosocial aspects diabetes-specific social capital diabetes-specific loneliness. |
| url | https://www.dovepress.com/patient-perspectives-on-peer-support-for-adults-with-type-1-diabetes-a-peer-reviewed-article-PPA |
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