Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context

Healthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical no...

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Main Authors: Lorina Buhr, Silke Schicktanz
Format: Article
Language:English
Published: SAGE Publishing 2022-01-01
Series:Big Data & Society
Online Access:https://doi.org/10.1177/20539517221092653
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author Lorina Buhr
Silke Schicktanz
author_facet Lorina Buhr
Silke Schicktanz
author_sort Lorina Buhr
collection DOAJ
description Healthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical normative reflection is called for to track such potential changes. This article presents the results of an interview-based study with 20 German and Swiss experts from the fields of medicine, life science research, informatics and humanities of digitalisation. The aim of the study was to explore expert opinions regarding current challenges and opportunities related to data-driven medicine and medical research and to provide a methodological framework for empirically grounded, continuous normative reflection. To this end, we developed a heuristic tool to map and structure empirical findings for normative analysis. Using this tool, our interview material points to a polarisation between individualistic and collectivistic orientated argumentations among experts. The study shows that a multilevel analysis is required to deal with complex normative implications of data-driven approaches in medical research and healthcare.
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spelling doaj.art-39c9d047ccc245d787edb1e9b8c11dd12022-12-22T00:19:53ZengSAGE PublishingBig Data & Society2053-95172022-01-01910.1177/20539517221092653Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German contextLorina Buhr0Silke Schicktanz1 Faculty of Economics, Law and Social Sciences, , Germany Faculty of Economics, Law and Social Sciences, , GermanyHealthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical normative reflection is called for to track such potential changes. This article presents the results of an interview-based study with 20 German and Swiss experts from the fields of medicine, life science research, informatics and humanities of digitalisation. The aim of the study was to explore expert opinions regarding current challenges and opportunities related to data-driven medicine and medical research and to provide a methodological framework for empirically grounded, continuous normative reflection. To this end, we developed a heuristic tool to map and structure empirical findings for normative analysis. Using this tool, our interview material points to a polarisation between individualistic and collectivistic orientated argumentations among experts. The study shows that a multilevel analysis is required to deal with complex normative implications of data-driven approaches in medical research and healthcare.https://doi.org/10.1177/20539517221092653
spellingShingle Lorina Buhr
Silke Schicktanz
Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
Big Data & Society
title Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
title_full Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
title_fullStr Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
title_full_unstemmed Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
title_short Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context
title_sort individual benefits and collective challenges experts views on data driven approaches in medical research and healthcare in the german context
url https://doi.org/10.1177/20539517221092653
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