Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies
Introduction: The patient experience is defined as all the interactions that occur between patients and the healthcare system. The experience of patients with respiratory disease with home respiratory treatments (HRT) is not captured in currently available Patient-Reported Outcome Measures (PROM). W...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2024-04-01
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| Series: | Open Respiratory Archives |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2659663624000079 |
| _version_ | 1827224399146647552 |
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| author | David Rudilla Tamara Alonso Elena García Patricia Pérez Claudia Valenzuela Rosa Girón Enrique Zamora Joan Soriano Pedro Landete Julio Ancochea |
| author_facet | David Rudilla Tamara Alonso Elena García Patricia Pérez Claudia Valenzuela Rosa Girón Enrique Zamora Joan Soriano Pedro Landete Julio Ancochea |
| author_sort | David Rudilla |
| collection | DOAJ |
| description | Introduction: The patient experience is defined as all the interactions that occur between patients and the healthcare system. The experience of patients with respiratory disease with home respiratory treatments (HRT) is not captured in currently available Patient-Reported Outcome Measures (PROM). We present the psychometric validation of the Patient-Reported Experience Measure (PREM) ‘HowRwe’ in Spanish and for respiratory patients with HRT. Material and methods: After translation following ISPOR guidelines (International Society for Pharmacoeconomics and Outcomes Research), the questionnaire was administered to adult respiratory patients who were receiving treatment at Hospital Universitario de La Princesa. The administration was done in two stages with 6 months of difference between the pre- and post-test. Results: We studied 228 respiratory patients, with a mean (SD) age of 64.1 (13.2) years, 52.2% were men, 68.0% were married or coupled, and 56.6% were retired. Reliability coefficients of the scale were adequate, with α = .921 and Ω = .929 for pre-test, and α = .940 and Ω = .958 for post. The confirmatory factor analysis tested for pre- and post-intervention, showed an excellent overall fit: χ2(2) = 49.380 (p < .001), CFI = .941 and SRMR = .072; and χ2(2) = 37.579 (p < .001), CFI = .982 and SRMR = .046, respectively. No statistically significant associations were observed for neither age, adherence nor quality of life, except between HowRwe post-test and quality of life pre-test (r = .14 [.01,.26]; p = .035). No significant differences were found in sociodemographic variables. No differences in pre-test or post-test were found in effect of HRT. 85.6% of patients found the content of HowRwe “Useful”, and the preferred channel to respond it were paper, app and email. Conclusions: The Spanish version of the ‘HowRwe’ questionnaire to measure the experience in respiratory patients with home respiratory treatments (HRT), has adequate psychometric properties and conceptual and semantic equivalence with the original English version. Resumen: Introducción: La experiencia del paciente se define como todas las interacciones que ocurren entre los pacientes y el sistema de salud. La experiencia de los pacientes con enfermedades respiratorias con terapias respiratorias domiciliarios (TRD) no se refleja en las Medidas de resultados informados por el paciente (PROM) disponibles actualmente. Presentamos la validación psicométrica de la Medida de Experiencia Reportada por el Paciente (PREM por sus siglas en inglés) ‘HowRwe’ en español y para pacientes respiratorios con TRD. Material y métodos: Después de la traducción siguiendo las pautas de ISPOR (Sociedad Internacional de Farmacoeconomía e Investigación de Resultados), el cuestionario se administró a pacientes respiratorios adultos que estaban recibiendo tratamiento en el Hospital Universitario de La Princesa. La administración se realizó en dos etapas con 6 meses de diferencia entre el pre y post test. Resultados: Se estudiaron 228 pacientes respiratorios, con una edad media (DE) de 64,1 ± 13,2 años, el 52,2% eran hombres, el 68,0% estaban casados o en pareja y el 56,6% eran jubilados. Los coeficientes de confiabilidad de la escala fueron adecuados, con α = .921 y Ω = .929 para el pretest, y α = .940 y Ω = .958 para el post. El análisis factorial confirmatorio testado para pre y postintervención, mostró un ajuste global excelente: χ2(2) = 49.380 (p < .001), CFI = .941 y SRMR = .072; y χ2(2) = 37,579 (p < .001), CFI = .982 y SRMR = .046, respectivamente. No se observaron asociaciones estadísticamente significativas ni para la edad, la adherencia ni para la calidad de vida, excepto entre HowRwe postest y calidad de vida pretest (r = .14 [.01,.26];p = .035). No se encontraron diferencias significativas en las variables sociodemográficas. No se encontraron diferencias en el efecto de la TRH en el pretest o postest. El 85,6% de los pacientes encontró “útil” el contenido de HowRwe y el canal preferido para responder fue el papel, la aplicación y el correo electrónico. Conclusiones: La versión española del cuestionario ‘HowRwe’ para medir la experiencia en pacientes respiratorios con tratamientos respiratorios domiciliarios (TRH), tiene adecuadas propiedades psicométricas y equivalencia conceptual y semántica con la versión original en inglés. |
| first_indexed | 2024-04-25T01:18:57Z |
| format | Article |
| id | doaj.art-3a2a02fd53ea45389fd7b1c9551dbdb8 |
| institution | Directory Open Access Journal |
| issn | 2659-6636 |
| language | English |
| last_indexed | 2025-03-21T17:09:39Z |
| publishDate | 2024-04-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Open Respiratory Archives |
| spelling | doaj.art-3a2a02fd53ea45389fd7b1c9551dbdb82024-06-14T05:45:21ZengElsevierOpen Respiratory Archives2659-66362024-04-0162100304Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory TherapiesDavid Rudilla0Tamara Alonso1Elena García2Patricia Pérez3Claudia Valenzuela4Rosa Girón5Enrique Zamora6Joan Soriano7Pedro Landete8Julio Ancochea9Air Liquide Healthcare, Spain; Hospital Universitario de La Princesa, Spain; Corresponding author.Hospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainHospital Universitario de La Princesa, SpainIntroduction: The patient experience is defined as all the interactions that occur between patients and the healthcare system. The experience of patients with respiratory disease with home respiratory treatments (HRT) is not captured in currently available Patient-Reported Outcome Measures (PROM). We present the psychometric validation of the Patient-Reported Experience Measure (PREM) ‘HowRwe’ in Spanish and for respiratory patients with HRT. Material and methods: After translation following ISPOR guidelines (International Society for Pharmacoeconomics and Outcomes Research), the questionnaire was administered to adult respiratory patients who were receiving treatment at Hospital Universitario de La Princesa. The administration was done in two stages with 6 months of difference between the pre- and post-test. Results: We studied 228 respiratory patients, with a mean (SD) age of 64.1 (13.2) years, 52.2% were men, 68.0% were married or coupled, and 56.6% were retired. Reliability coefficients of the scale were adequate, with α = .921 and Ω = .929 for pre-test, and α = .940 and Ω = .958 for post. The confirmatory factor analysis tested for pre- and post-intervention, showed an excellent overall fit: χ2(2) = 49.380 (p < .001), CFI = .941 and SRMR = .072; and χ2(2) = 37.579 (p < .001), CFI = .982 and SRMR = .046, respectively. No statistically significant associations were observed for neither age, adherence nor quality of life, except between HowRwe post-test and quality of life pre-test (r = .14 [.01,.26]; p = .035). No significant differences were found in sociodemographic variables. No differences in pre-test or post-test were found in effect of HRT. 85.6% of patients found the content of HowRwe “Useful”, and the preferred channel to respond it were paper, app and email. Conclusions: The Spanish version of the ‘HowRwe’ questionnaire to measure the experience in respiratory patients with home respiratory treatments (HRT), has adequate psychometric properties and conceptual and semantic equivalence with the original English version. Resumen: Introducción: La experiencia del paciente se define como todas las interacciones que ocurren entre los pacientes y el sistema de salud. La experiencia de los pacientes con enfermedades respiratorias con terapias respiratorias domiciliarios (TRD) no se refleja en las Medidas de resultados informados por el paciente (PROM) disponibles actualmente. Presentamos la validación psicométrica de la Medida de Experiencia Reportada por el Paciente (PREM por sus siglas en inglés) ‘HowRwe’ en español y para pacientes respiratorios con TRD. Material y métodos: Después de la traducción siguiendo las pautas de ISPOR (Sociedad Internacional de Farmacoeconomía e Investigación de Resultados), el cuestionario se administró a pacientes respiratorios adultos que estaban recibiendo tratamiento en el Hospital Universitario de La Princesa. La administración se realizó en dos etapas con 6 meses de diferencia entre el pre y post test. Resultados: Se estudiaron 228 pacientes respiratorios, con una edad media (DE) de 64,1 ± 13,2 años, el 52,2% eran hombres, el 68,0% estaban casados o en pareja y el 56,6% eran jubilados. Los coeficientes de confiabilidad de la escala fueron adecuados, con α = .921 y Ω = .929 para el pretest, y α = .940 y Ω = .958 para el post. El análisis factorial confirmatorio testado para pre y postintervención, mostró un ajuste global excelente: χ2(2) = 49.380 (p < .001), CFI = .941 y SRMR = .072; y χ2(2) = 37,579 (p < .001), CFI = .982 y SRMR = .046, respectivamente. No se observaron asociaciones estadísticamente significativas ni para la edad, la adherencia ni para la calidad de vida, excepto entre HowRwe postest y calidad de vida pretest (r = .14 [.01,.26];p = .035). No se encontraron diferencias significativas en las variables sociodemográficas. No se encontraron diferencias en el efecto de la TRH en el pretest o postest. El 85,6% de los pacientes encontró “útil” el contenido de HowRwe y el canal preferido para responder fue el papel, la aplicación y el correo electrónico. Conclusiones: La versión española del cuestionario ‘HowRwe’ para medir la experiencia en pacientes respiratorios con tratamientos respiratorios domiciliarios (TRH), tiene adecuadas propiedades psicométricas y equivalencia conceptual y semántica con la versión original en inglés.http://www.sciencedirect.com/science/article/pii/S2659663624000079ExperienciaCuestionarioPREMRespiratorioTerapia respiratoria domiciliaria |
| spellingShingle | David Rudilla Tamara Alonso Elena García Patricia Pérez Claudia Valenzuela Rosa Girón Enrique Zamora Joan Soriano Pedro Landete Julio Ancochea Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies Open Respiratory Archives Experiencia Cuestionario PREM Respiratorio Terapia respiratoria domiciliaria |
| title | Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies |
| title_full | Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies |
| title_fullStr | Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies |
| title_full_unstemmed | Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies |
| title_short | Psychometric Validation of the Patient-Reported Experience Measure (PREM) Questionnaire “HowRwe” in Patients With Respiratory Disease Receiving Home Respiratory Therapies |
| title_sort | psychometric validation of the patient reported experience measure prem questionnaire howrwe in patients with respiratory disease receiving home respiratory therapies |
| topic | Experiencia Cuestionario PREM Respiratorio Terapia respiratoria domiciliaria |
| url | http://www.sciencedirect.com/science/article/pii/S2659663624000079 |
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