Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation

Data on incidence, prevalence and mortality of idiopathic pulmonary fibrosis (IPF) are sparse and vary across studies. The true incidence and prevalence of the disease are unknown. In general, the overall prevalence and incidence reported in European and Asian countries are lower than those reported...

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Main Authors: Antonella Caminati, Fabiana Madotto, Giancarlo Cesana, Sara Conti, Sergio Harari
Format: Article
Language:English
Published: European Respiratory Society 2015-09-01
Series:European Respiratory Review
Online Access:http://err.ersjournals.com/content/24/137/436.full
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author Antonella Caminati
Fabiana Madotto
Giancarlo Cesana
Sara Conti
Sergio Harari
author_facet Antonella Caminati
Fabiana Madotto
Giancarlo Cesana
Sara Conti
Sergio Harari
author_sort Antonella Caminati
collection DOAJ
description Data on incidence, prevalence and mortality of idiopathic pulmonary fibrosis (IPF) are sparse and vary across studies. The true incidence and prevalence of the disease are unknown. In general, the overall prevalence and incidence reported in European and Asian countries are lower than those reported in American studies. In recent years, the epidemiological approach to IPF has been difficult for many reasons. First, the diagnostic criteria of the disease have changed over time. Secondly, the coding system used for IPF in administrative databases, the most common data source used to study this aspect of the disease, has been modified in the past few years. Finally, the study design, the methodology and the population selected in each of the studies are very different. All these aspects make comparisons among studies very difficult or impossible. In this review, we list the main issues that might arise when comparing different studies and that should be taken into consideration when describing the state of epidemiological knowledge concerning this pathology.
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spelling doaj.art-3a57a09717ae4bb5a990ee4513a846a72022-12-22T03:36:03ZengEuropean Respiratory SocietyEuropean Respiratory Review0905-91801600-06172015-09-012413743644410.1183/16000617.0040-20150040-2015Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretationAntonella Caminati0Fabiana Madotto1Giancarlo Cesana2Sara Conti3Sergio Harari4 U.O. di Pneumologia e Terapia Semi-Intensiva Respiratoria – Servizio di Fisiopatologia Respiratoria ed Emodinamica Polmonare, Ospedale San Giuseppe – Multimedica IRCCS, Milan, Italy Research Center on Public Health, Dept of Health Science, University of Milano-Bicocca, Monza, Italy Research Center on Public Health, Dept of Health Science, University of Milano-Bicocca, Monza, Italy Research Center on Public Health, Dept of Health Science, University of Milano-Bicocca, Monza, Italy U.O. di Pneumologia e Terapia Semi-Intensiva Respiratoria – Servizio di Fisiopatologia Respiratoria ed Emodinamica Polmonare, Ospedale San Giuseppe – Multimedica IRCCS, Milan, Italy Data on incidence, prevalence and mortality of idiopathic pulmonary fibrosis (IPF) are sparse and vary across studies. The true incidence and prevalence of the disease are unknown. In general, the overall prevalence and incidence reported in European and Asian countries are lower than those reported in American studies. In recent years, the epidemiological approach to IPF has been difficult for many reasons. First, the diagnostic criteria of the disease have changed over time. Secondly, the coding system used for IPF in administrative databases, the most common data source used to study this aspect of the disease, has been modified in the past few years. Finally, the study design, the methodology and the population selected in each of the studies are very different. All these aspects make comparisons among studies very difficult or impossible. In this review, we list the main issues that might arise when comparing different studies and that should be taken into consideration when describing the state of epidemiological knowledge concerning this pathology.http://err.ersjournals.com/content/24/137/436.full
spellingShingle Antonella Caminati
Fabiana Madotto
Giancarlo Cesana
Sara Conti
Sergio Harari
Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
European Respiratory Review
title Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
title_full Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
title_fullStr Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
title_full_unstemmed Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
title_short Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation
title_sort epidemiological studies in idiopathic pulmonary fibrosis pitfalls in methodologies and data interpretation
url http://err.ersjournals.com/content/24/137/436.full
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