Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions

Abstract Aim To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background Person-centred care (P...

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Main Authors: Fredrik Gasser, Sidona-Valentina Bala, Albert Westergren, Joakim Ekstrand, Peter Hagell
Format: Article
Language:English
Published: SpringerOpen 2023-08-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Online Access:https://doi.org/10.1186/s41687-023-00623-6
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author Fredrik Gasser
Sidona-Valentina Bala
Albert Westergren
Joakim Ekstrand
Peter Hagell
author_facet Fredrik Gasser
Sidona-Valentina Bala
Albert Westergren
Joakim Ekstrand
Peter Hagell
author_sort Fredrik Gasser
collection DOAJ
description Abstract Aim To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background Person-centred care (PCC) has been identified as a key factor to provide high-quality care. However, there is still a lack of instruments that are based on a clearly defined framework for PCC for persons with long-term conditions in an outpatient context. The PCCoc is a patient-reported experience measure under development aiming to fill this gap. Methods First, the 35-item PCCoc was reviewed and further developed in collaboration with a user-council. Second, the revised 36-item PCCoc was tested among persons receiving outpatient care for various long-term conditions. A total of 179 persons with long-term conditions from four different specialties participated in the study. User-friendliness and content validity were assessed through structured interviews and relevance ratings of each item. Content validity index (CVI) for individual items (I-CVI) and for the overall scale (S-CVI) were calculated, and basic psychometric properties of the PCCoc using classical test theory were explored. Results It took a median of 8 min for participants to complete the PCCoc. The majority found items easy to understand, response categories distinct and that no important areas were missing. Results from the CVI analyses suggested that participants found the content of the PCCoc relevant (I-CVI range 0.82-1, S-CVI = 0.95). All psychometric properties examined were satisfactory (e.g., item-total correlations, 0.45–0.75; Cronbach’s alpha, 0.96; test-retest stability, 0.83). Conclusion The PCCoc was considered user-friendly and relevant by the intended users, and its psychometric properties were satisfactory. This implies that the PCCoc can be a valuable instrument for evaluating and developing PCC in outpatient care for persons with long-term conditions. However, further studies of the PCCoc are needed to establish its measurement properties in various outpatient settings.
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spelling doaj.art-3b6df5ae1f79494ebf3025e1f50ea8bd2023-11-26T13:29:39ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202023-08-017111010.1186/s41687-023-00623-6Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditionsFredrik Gasser0Sidona-Valentina Bala1Albert Westergren2Joakim Ekstrand3Peter Hagell4The Pro-CARE Group, Faculty of Health Sciences, Kristianstad UniversityDepartment of Health Sciences, Faculty of Medicine, Lund UniversityThe Pro-CARE Group, Faculty of Health Sciences, Kristianstad UniversityThe Pro-CARE Group, Faculty of Health Sciences, Kristianstad UniversityThe Pro-CARE Group, Faculty of Health Sciences, Kristianstad UniversityAbstract Aim To further develop the Person-Centred Care instrument for outpatient care (PCCoc), evaluate its user-friendliness and content validity, and to explore its basic psychometric properties in various outpatient settings for adults with long-term conditions. Background Person-centred care (PCC) has been identified as a key factor to provide high-quality care. However, there is still a lack of instruments that are based on a clearly defined framework for PCC for persons with long-term conditions in an outpatient context. The PCCoc is a patient-reported experience measure under development aiming to fill this gap. Methods First, the 35-item PCCoc was reviewed and further developed in collaboration with a user-council. Second, the revised 36-item PCCoc was tested among persons receiving outpatient care for various long-term conditions. A total of 179 persons with long-term conditions from four different specialties participated in the study. User-friendliness and content validity were assessed through structured interviews and relevance ratings of each item. Content validity index (CVI) for individual items (I-CVI) and for the overall scale (S-CVI) were calculated, and basic psychometric properties of the PCCoc using classical test theory were explored. Results It took a median of 8 min for participants to complete the PCCoc. The majority found items easy to understand, response categories distinct and that no important areas were missing. Results from the CVI analyses suggested that participants found the content of the PCCoc relevant (I-CVI range 0.82-1, S-CVI = 0.95). All psychometric properties examined were satisfactory (e.g., item-total correlations, 0.45–0.75; Cronbach’s alpha, 0.96; test-retest stability, 0.83). Conclusion The PCCoc was considered user-friendly and relevant by the intended users, and its psychometric properties were satisfactory. This implies that the PCCoc can be a valuable instrument for evaluating and developing PCC in outpatient care for persons with long-term conditions. However, further studies of the PCCoc are needed to establish its measurement properties in various outpatient settings.https://doi.org/10.1186/s41687-023-00623-6Outpatient carePatient-reported experience measurePerson-centred careReliabilityValidity
spellingShingle Fredrik Gasser
Sidona-Valentina Bala
Albert Westergren
Joakim Ekstrand
Peter Hagell
Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
Journal of Patient-Reported Outcomes
Outpatient care
Patient-reported experience measure
Person-centred care
Reliability
Validity
title Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
title_full Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
title_fullStr Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
title_full_unstemmed Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
title_short Further development and evaluation of a questionnaire targeting person-centred outpatient care for persons with long-term conditions
title_sort further development and evaluation of a questionnaire targeting person centred outpatient care for persons with long term conditions
topic Outpatient care
Patient-reported experience measure
Person-centred care
Reliability
Validity
url https://doi.org/10.1186/s41687-023-00623-6
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