Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period
Abstract Background People living with heart failure (HF) are particularly vulnerable after hospital discharge. An alliance between patient authors, clinicians, industry, and co-developers of HF programs can represent an effective way to address the unique concerns and obstacles people living with H...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-04-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-023-00412-x |
| _version_ | 1797845733118836736 |
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| author | Javed Butler Mark C. Petrie Marc Bains Tracy Bawtinheimer Jillianne Code Teresa Levitch Elmas Malvolti Pasquale Monteleone Petrina Stevens Jenny Vafeiadou Carolyn S. P. Lam |
| author_facet | Javed Butler Mark C. Petrie Marc Bains Tracy Bawtinheimer Jillianne Code Teresa Levitch Elmas Malvolti Pasquale Monteleone Petrina Stevens Jenny Vafeiadou Carolyn S. P. Lam |
| author_sort | Javed Butler |
| collection | DOAJ |
| description | Abstract Background People living with heart failure (HF) are particularly vulnerable after hospital discharge. An alliance between patient authors, clinicians, industry, and co-developers of HF programs can represent an effective way to address the unique concerns and obstacles people living with HF face during this period. The aim of this narrative review article is to discuss challenges and opportunities of this approach, with the goal of improving participation and clinical outcomes of people living with HF. Methods This article was co-authored by people living with HF, heart transplant recipients, patient advocacy representatives, cardiologists with expertise in HF care, and industry representatives specializing in patient engagement and cardiovascular medicine, and reviews opportunities and challenges for people living with HF in the post–hospital discharge period to be more integrally involved in their care. A literature search was conducted, and the authors collaborated through two virtual roundtables and via email to develop the content for this review article. Results Numerous transitional-care programs exist to ease the transition from the hospital to the home and to provide needed education and support for people living with HF, to avoid rehospitalizations and other adverse outcomes. However, many programs have limitations and do not integrally involve patients in the design and co-development of the intervention. There are thus opportunities for improvement. This can enable patients to better care for themselves with less of the worry and fear that typically accompany the transition from the hospital. We discuss the importance of including people living with HF in the development of such programs and offer suggestions for strategies that can help achieve these goals. An underlying theme of the literature reviewed is that education and engagement of people living with HF after hospitalization are critical. However, while clinical trial evidence on existing approaches to transitions in HF care indicates numerous benefits, such approaches also have limitations. Conclusion Numerous challenges continue to affect people living with HF in the post–hospital discharge period. Strategies that involve patients are needed, and should be encouraged, to optimally address these challenges. |
| first_indexed | 2024-04-09T17:43:42Z |
| format | Article |
| id | doaj.art-3baf96add4c04e8c89f113c013d73dee |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-09T17:43:42Z |
| publishDate | 2023-04-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-3baf96add4c04e8c89f113c013d73dee2023-04-16T11:27:48ZengBMCResearch Involvement and Engagement2056-75292023-04-019111110.1186/s40900-023-00412-xChallenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge periodJaved Butler0Mark C. Petrie1Marc Bains2Tracy Bawtinheimer3Jillianne Code4Teresa LevitchElmas Malvolti5Pasquale Monteleone6Petrina Stevens7Jenny Vafeiadou8Carolyn S. P. Lam9Department of Medicine (L605), University of Mississippi Medical CenterInstitute of Cardiovascular & Medical Sciences, University of GlasgowHeartLife FoundationHeartLife FoundationHeartLife FoundationGlobal Medical Affairs, BioPharmaceuticals Business Unit, AstraZenecaGlobal Corporate Affairs, Biopharmaceuticals Business Unit, AstraZenecaGlobal Medical Evidence, BioPharmaceuticals Business Unit, AstraZenecaGlobal Digital Health, Biopharmaceuticals Business Unit, AstraZenecaNational Heart Centre Singapore & Duke-NUS Medical SchoolAbstract Background People living with heart failure (HF) are particularly vulnerable after hospital discharge. An alliance between patient authors, clinicians, industry, and co-developers of HF programs can represent an effective way to address the unique concerns and obstacles people living with HF face during this period. The aim of this narrative review article is to discuss challenges and opportunities of this approach, with the goal of improving participation and clinical outcomes of people living with HF. Methods This article was co-authored by people living with HF, heart transplant recipients, patient advocacy representatives, cardiologists with expertise in HF care, and industry representatives specializing in patient engagement and cardiovascular medicine, and reviews opportunities and challenges for people living with HF in the post–hospital discharge period to be more integrally involved in their care. A literature search was conducted, and the authors collaborated through two virtual roundtables and via email to develop the content for this review article. Results Numerous transitional-care programs exist to ease the transition from the hospital to the home and to provide needed education and support for people living with HF, to avoid rehospitalizations and other adverse outcomes. However, many programs have limitations and do not integrally involve patients in the design and co-development of the intervention. There are thus opportunities for improvement. This can enable patients to better care for themselves with less of the worry and fear that typically accompany the transition from the hospital. We discuss the importance of including people living with HF in the development of such programs and offer suggestions for strategies that can help achieve these goals. An underlying theme of the literature reviewed is that education and engagement of people living with HF after hospitalization are critical. However, while clinical trial evidence on existing approaches to transitions in HF care indicates numerous benefits, such approaches also have limitations. Conclusion Numerous challenges continue to affect people living with HF in the post–hospital discharge period. Strategies that involve patients are needed, and should be encouraged, to optimally address these challenges.https://doi.org/10.1186/s40900-023-00412-xEducation programHeart failurePatient experiencePatient involvementPatient perspectivePatient self-management |
| spellingShingle | Javed Butler Mark C. Petrie Marc Bains Tracy Bawtinheimer Jillianne Code Teresa Levitch Elmas Malvolti Pasquale Monteleone Petrina Stevens Jenny Vafeiadou Carolyn S. P. Lam Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period Research Involvement and Engagement Education program Heart failure Patient experience Patient involvement Patient perspective Patient self-management |
| title | Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period |
| title_full | Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period |
| title_fullStr | Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period |
| title_full_unstemmed | Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period |
| title_short | Challenges and opportunities for increasing patient involvement in heart failure self-care programs and self-care in the post–hospital discharge period |
| title_sort | challenges and opportunities for increasing patient involvement in heart failure self care programs and self care in the post hospital discharge period |
| topic | Education program Heart failure Patient experience Patient involvement Patient perspective Patient self-management |
| url | https://doi.org/10.1186/s40900-023-00412-x |
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