Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration

Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration

The aim of this study was to describe the needs and research priorities of Swiss children/adolescents and young adults (from here, “young people”) with spinal cord injury/disorder (SCI/D) or spina bifida (SB) and their parents in the health and life domains as part of the international Pan-European...

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Bibliographic Details
Main Authors: Irina Benninger, Patricia Lampart, Gabi Mueller, Marika Augutis, Inge Eriks-Hoogland, Sebastian Grunt, Erin Hayes Kelly, Beth Padden, Cordula Scherer, Sandra Shavit, Julian Taylor, Erich Rutz, Anke Scheel-Sailer, PEPSCI-Collaboration
Format: Article
Language:English
Published: MDPI AG 2022-02-01
Series:Children
Subjects:
spina bifida
spinal cord injury/disorder
quality of life
user perspective
research priorities
Online Access:https://www.mdpi.com/2227-9067/9/3/318

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