Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy
Objective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured inte...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
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EDP Sciences
2024-01-01
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| Series: | SHS Web of Conferences |
| Subjects: | |
| Online Access: | https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdf |
| _version_ | 1797221480816181248 |
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| author | Tuitaitė Jurgita Šedienė Polina |
| author_facet | Tuitaitė Jurgita Šedienė Polina |
| author_sort | Tuitaitė Jurgita |
| collection | DOAJ |
| description | Objective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured interviews with 10 adults. Results showed that independent individual patient-physician communication starts in the adult epilepsy care. Family members are taking care of child and protection of risk, but transition to adult care is uncertain. Patient - physician communication differences between paediatric and adult epilepsy demands assistants during the transition. Conclusions: patients feel uncomfortable due to a lack of knowledge about process of transition in adult epilepsy care. Family members feel fear and responsibility for their child and restrict self-independence of their child. Knowledge about epilepsy, reconciliation depends on patient and physician connection. |
| first_indexed | 2024-04-24T13:06:07Z |
| format | Article |
| id | doaj.art-3c0ebbc27f6147afa0740d4389507024 |
| institution | Directory Open Access Journal |
| issn | 2261-2424 |
| language | English |
| last_indexed | 2024-04-24T13:06:07Z |
| publishDate | 2024-01-01 |
| publisher | EDP Sciences |
| record_format | Article |
| series | SHS Web of Conferences |
| spelling | doaj.art-3c0ebbc27f6147afa0740d43895070242024-04-05T07:31:58ZengEDP SciencesSHS Web of Conferences2261-24242024-01-011840200410.1051/shsconf/202418402004shsconf_shw2023_02004Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsyTuitaitė Jurgita0Šedienė Polina1Kauno kolegija Higher Education InstitutionLithuanian University of Health SciencesObjective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured interviews with 10 adults. Results showed that independent individual patient-physician communication starts in the adult epilepsy care. Family members are taking care of child and protection of risk, but transition to adult care is uncertain. Patient - physician communication differences between paediatric and adult epilepsy demands assistants during the transition. Conclusions: patients feel uncomfortable due to a lack of knowledge about process of transition in adult epilepsy care. Family members feel fear and responsibility for their child and restrict self-independence of their child. Knowledge about epilepsy, reconciliation depends on patient and physician connection.https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdfgrounded theoryepilepsytransition |
| spellingShingle | Tuitaitė Jurgita Šedienė Polina Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy SHS Web of Conferences grounded theory epilepsy transition |
| title | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
| title_full | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
| title_fullStr | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
| title_full_unstemmed | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
| title_short | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
| title_sort | transition from paediatric to adult epilepsy care patients experiences of learning how to manage with epilepsy |
| topic | grounded theory epilepsy transition |
| url | https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdf |
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