Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy
Objective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured inte...
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Format: | Article |
Language: | English |
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EDP Sciences
2024-01-01
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Series: | SHS Web of Conferences |
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Online Access: | https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdf |
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author | Tuitaitė Jurgita Šedienė Polina |
author_facet | Tuitaitė Jurgita Šedienė Polina |
author_sort | Tuitaitė Jurgita |
collection | DOAJ |
description | Objective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured interviews with 10 adults. Results showed that independent individual patient-physician communication starts in the adult epilepsy care. Family members are taking care of child and protection of risk, but transition to adult care is uncertain. Patient - physician communication differences between paediatric and adult epilepsy demands assistants during the transition. Conclusions: patients feel uncomfortable due to a lack of knowledge about process of transition in adult epilepsy care. Family members feel fear and responsibility for their child and restrict self-independence of their child. Knowledge about epilepsy, reconciliation depends on patient and physician connection. |
first_indexed | 2024-04-24T13:06:07Z |
format | Article |
id | doaj.art-3c0ebbc27f6147afa0740d4389507024 |
institution | Directory Open Access Journal |
issn | 2261-2424 |
language | English |
last_indexed | 2024-04-24T13:06:07Z |
publishDate | 2024-01-01 |
publisher | EDP Sciences |
record_format | Article |
series | SHS Web of Conferences |
spelling | doaj.art-3c0ebbc27f6147afa0740d43895070242024-04-05T07:31:58ZengEDP SciencesSHS Web of Conferences2261-24242024-01-011840200410.1051/shsconf/202418402004shsconf_shw2023_02004Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsyTuitaitė Jurgita0Šedienė Polina1Kauno kolegija Higher Education InstitutionLithuanian University of Health SciencesObjective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured interviews with 10 adults. Results showed that independent individual patient-physician communication starts in the adult epilepsy care. Family members are taking care of child and protection of risk, but transition to adult care is uncertain. Patient - physician communication differences between paediatric and adult epilepsy demands assistants during the transition. Conclusions: patients feel uncomfortable due to a lack of knowledge about process of transition in adult epilepsy care. Family members feel fear and responsibility for their child and restrict self-independence of their child. Knowledge about epilepsy, reconciliation depends on patient and physician connection.https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdfgrounded theoryepilepsytransition |
spellingShingle | Tuitaitė Jurgita Šedienė Polina Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy SHS Web of Conferences grounded theory epilepsy transition |
title | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
title_full | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
title_fullStr | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
title_full_unstemmed | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
title_short | Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy |
title_sort | transition from paediatric to adult epilepsy care patients experiences of learning how to manage with epilepsy |
topic | grounded theory epilepsy transition |
url | https://www.shs-conferences.org/articles/shsconf/pdf/2024/04/shsconf_shw2023_02004.pdf |
work_keys_str_mv | AT tuitaitejurgita transitionfrompaediatrictoadultepilepsycarepatientsexperiencesoflearninghowtomanagewithepilepsy AT sedienepolina transitionfrompaediatrictoadultepilepsycarepatientsexperiencesoflearninghowtomanagewithepilepsy |