3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE
On November 15th, 2014, at the Macedonian Academy of Science and Art (MANU), the third conference on rare diseases in Southeastern Europe was held. The conference was officially opened by Prof. Dr. Zoran Guchev who welcomed the participants and wished them successful work. The First Lady of the Rep...
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| Format: | Article |
| Language: | English |
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Faculty of Philosophy, Institute of Special Education and Rehabilitation
2015-11-01
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| Series: | Journal of Special Education and Rehabilitation |
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| Online Access: | http://jser.fzf.ukim.edu.mk/files/2015(1-2)/127-129%20Ana.pdf |
| _version_ | 1819037137734991872 |
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| author | Ana PETKOVSKA |
| author_facet | Ana PETKOVSKA |
| author_sort | Ana PETKOVSKA |
| collection | DOAJ |
| description | On November 15th, 2014, at the Macedonian Academy of Science and Art (MANU), the third conference on rare diseases in Southeastern Europe was held.
The conference was officially opened by Prof. Dr. Zoran Guchev who welcomed the participants and wished them successful work. The First Lady of the Republic of Macedonia, Mrs.Maja Ivanova had her welcomed speech, who is also the patron of the association for rare diseases ,,Life with Challenges“ and for two years in a row she was awarded the title of European honorary patron of the European Association for rare diseases EURORDIS from Brussels. With her inclusion in the community, Ivanova took a significant commitment in the field of rare diseases at nationaland European level. Ivanova called for support of the initiative to declare 2019 the European Year of rare diseases, when it will be the 20th anniversary since the adoption of the Regulation of the European Union for medical products for rare diseases and 10th since the recommendation of the European Council for more activities in the field of rare diseases. The director of the Research Center for Genetic Engineering and Biotechnology ,,G.D. Efremov“ the academician Momir Polenakovic stressed the need for National plan for rare diseases, because so far there is no standardized approach for rare diseases. Also, there is no developed awareness and measuring of the treatment. |
| first_indexed | 2024-12-21T08:16:38Z |
| format | Article |
| id | doaj.art-3cbcc2716f1f4a46a10b8bd6fff16e66 |
| institution | Directory Open Access Journal |
| issn | 1409-6099 1857-663X |
| language | English |
| last_indexed | 2024-12-21T08:16:38Z |
| publishDate | 2015-11-01 |
| publisher | Faculty of Philosophy, Institute of Special Education and Rehabilitation |
| record_format | Article |
| series | Journal of Special Education and Rehabilitation |
| spelling | doaj.art-3cbcc2716f1f4a46a10b8bd6fff16e662022-12-21T19:10:32ZengFaculty of Philosophy, Institute of Special Education and RehabilitationJournal of Special Education and Rehabilitation1409-60991857-663X2015-11-01161-21271293rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPEAna PETKOVSKA0Educational Counseling Centre Skopje, MacedoniaOn November 15th, 2014, at the Macedonian Academy of Science and Art (MANU), the third conference on rare diseases in Southeastern Europe was held. The conference was officially opened by Prof. Dr. Zoran Guchev who welcomed the participants and wished them successful work. The First Lady of the Republic of Macedonia, Mrs.Maja Ivanova had her welcomed speech, who is also the patron of the association for rare diseases ,,Life with Challenges“ and for two years in a row she was awarded the title of European honorary patron of the European Association for rare diseases EURORDIS from Brussels. With her inclusion in the community, Ivanova took a significant commitment in the field of rare diseases at nationaland European level. Ivanova called for support of the initiative to declare 2019 the European Year of rare diseases, when it will be the 20th anniversary since the adoption of the Regulation of the European Union for medical products for rare diseases and 10th since the recommendation of the European Council for more activities in the field of rare diseases. The director of the Research Center for Genetic Engineering and Biotechnology ,,G.D. Efremov“ the academician Momir Polenakovic stressed the need for National plan for rare diseases, because so far there is no standardized approach for rare diseases. Also, there is no developed awareness and measuring of the treatment.http://jser.fzf.ukim.edu.mk/files/2015(1-2)/127-129%20Ana.pdfMASArare diseasesMacedoniaSoutherneastern Europe |
| spellingShingle | Ana PETKOVSKA 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE Journal of Special Education and Rehabilitation MASA rare diseases Macedonia Southerneastern Europe |
| title | 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE |
| title_full | 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE |
| title_fullStr | 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE |
| title_full_unstemmed | 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE |
| title_short | 3rd MEETING ON RARE DISEASE IN SOUTHEASTERN EUROPE |
| title_sort | 3rd meeting on rare disease in southeastern europe |
| topic | MASA rare diseases Macedonia Southerneastern Europe |
| url | http://jser.fzf.ukim.edu.mk/files/2015(1-2)/127-129%20Ana.pdf |
| work_keys_str_mv | AT anapetkovska 3rdmeetingonrarediseaseinsoutheasterneurope |