On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l]
The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing geno...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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F1000 Research Ltd
2014-03-01
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| Series: | F1000Research |
| Subjects: | |
| Online Access: | http://f1000research.com/articles/3-80/v1 |
| _version_ | 1824031350565371904 |
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| author | Amalio Telenti Erman Ayday Jean Pierre Hubaux |
| author_facet | Amalio Telenti Erman Ayday Jean Pierre Hubaux |
| author_sort | Amalio Telenti |
| collection | DOAJ |
| description | The storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing genome data has consequences beyond the individual, as it compromises the privacy of family members. Increasing availability of genome data linked or linkable to metadata through online social networks and services adds one additional layer of complexity to the protection of genome privacy. The field of computer science and information technology offers solutions to secure genomic data so that individuals, medical personnel or researchers can access only the subset of genomic information required for healthcare or dedicated studies. |
| first_indexed | 2024-12-19T18:51:46Z |
| format | Article |
| id | doaj.art-3cce5845a3b2401ca28e599073de29df |
| institution | Directory Open Access Journal |
| issn | 2046-1402 |
| language | English |
| last_indexed | 2024-12-19T18:51:46Z |
| publishDate | 2014-03-01 |
| publisher | F1000 Research Ltd |
| record_format | Article |
| series | F1000Research |
| spelling | doaj.art-3cce5845a3b2401ca28e599073de29df2022-12-21T20:09:51ZengF1000 Research LtdF1000Research2046-14022014-03-01310.12688/f1000research.3817.14089On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l]Amalio Telenti0Erman Ayday1Jean Pierre Hubaux2Department of Laboratories, University Hospital of Lausanne, Lausanne, SwitzerlandLaboratory for Communications and Applications Laboratory, École Polytechnique Fédérale de Lausanne, Lausanne, SwitzerlandLaboratory for Communications and Applications Laboratory, École Polytechnique Fédérale de Lausanne, Lausanne, SwitzerlandThe storage of greater numbers of exomes or genomes raises the question of loss of privacy for the individual and for families if genomic data are not properly protected. Access to genome data may result from a personal decision to disclose, or from gaps in protection. In either case, revealing genome data has consequences beyond the individual, as it compromises the privacy of family members. Increasing availability of genome data linked or linkable to metadata through online social networks and services adds one additional layer of complexity to the protection of genome privacy. The field of computer science and information technology offers solutions to secure genomic data so that individuals, medical personnel or researchers can access only the subset of genomic information required for healthcare or dedicated studies.http://f1000research.com/articles/3-80/v1BioinformaticsGenomicsScience & Medical Policies |
| spellingShingle | Amalio Telenti Erman Ayday Jean Pierre Hubaux On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] F1000Research Bioinformatics Genomics Science & Medical Policies |
| title | On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] |
| title_full | On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] |
| title_fullStr | On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] |
| title_full_unstemmed | On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] |
| title_short | On genomics, kin, and privacy [v1; ref status: indexed, http://f1000r.es/35l] |
| title_sort | on genomics kin and privacy v1 ref status indexed http f1000r es 35l |
| topic | Bioinformatics Genomics Science & Medical Policies |
| url | http://f1000research.com/articles/3-80/v1 |
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