Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD
In this study, the authors have explored lived experiences of the mothers who have children with autism spectrum disorder (ASD). The study explored the lived experiences of the mothers of children with ASD, including but not limited to the mothers’ stress, behavioral difficulties, coping strategies,...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Taylor & Francis Group
2020-12-01
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| Series: | Cogent Psychology |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/23311908.2020.1728108 |
| _version_ | 1818891416217059328 |
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| author | Juveriah Furrukh Gulnaz Anjum |
| author_facet | Juveriah Furrukh Gulnaz Anjum |
| author_sort | Juveriah Furrukh |
| collection | DOAJ |
| description | In this study, the authors have explored lived experiences of the mothers who have children with autism spectrum disorder (ASD). The study explored the lived experiences of the mothers of children with ASD, including but not limited to the mothers’ stress, behavioral difficulties, coping strategies, religious, and social support related experiences. This study incorporated the factors that played a part in mothers’ experiences about ASD and whether they receive enough social and educational support. Most mothers are part of the middle and upper-middle class as they can afford extensive therapies for their children. An interpretive phenomenological approach was adopted using 15 interviews conducted in the sociocultural context of Karachi. The interviews gave an in-depth analysis, showing the mothers to be loving and caring towards their child from the start of the journey. This article highlights the lack of institutional as well as emotional support for special populations in Pakistan; thus, the findings are crucial for the United Nations Sustainable Development Goals, to ensure inclusive and equitable quality education that has the potential to promote lifelong learning opportunities for all. This study is a preliminary research that explores experiences of primary caregivers dealing with ASD; hence, it has the ability to set the premise for dialog around inclusivity as well as future research including an onset for a comparative analysis between mothers from lower classes as compared to those from middle and upper classes. |
| first_indexed | 2024-12-19T17:40:27Z |
| format | Article |
| id | doaj.art-3d118261592548fcad6dd2987cfb6356 |
| institution | Directory Open Access Journal |
| issn | 2331-1908 |
| language | English |
| last_indexed | 2024-12-19T17:40:27Z |
| publishDate | 2020-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Cogent Psychology |
| spelling | doaj.art-3d118261592548fcad6dd2987cfb63562022-12-21T20:12:14ZengTaylor & Francis GroupCogent Psychology2331-19082020-12-017110.1080/23311908.2020.17281081728108Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASDJuveriah Furrukh0Gulnaz Anjum1Institute of Business Administration (IBA)Institute of Business Administration (IBA)In this study, the authors have explored lived experiences of the mothers who have children with autism spectrum disorder (ASD). The study explored the lived experiences of the mothers of children with ASD, including but not limited to the mothers’ stress, behavioral difficulties, coping strategies, religious, and social support related experiences. This study incorporated the factors that played a part in mothers’ experiences about ASD and whether they receive enough social and educational support. Most mothers are part of the middle and upper-middle class as they can afford extensive therapies for their children. An interpretive phenomenological approach was adopted using 15 interviews conducted in the sociocultural context of Karachi. The interviews gave an in-depth analysis, showing the mothers to be loving and caring towards their child from the start of the journey. This article highlights the lack of institutional as well as emotional support for special populations in Pakistan; thus, the findings are crucial for the United Nations Sustainable Development Goals, to ensure inclusive and equitable quality education that has the potential to promote lifelong learning opportunities for all. This study is a preliminary research that explores experiences of primary caregivers dealing with ASD; hence, it has the ability to set the premise for dialog around inclusivity as well as future research including an onset for a comparative analysis between mothers from lower classes as compared to those from middle and upper classes.http://dx.doi.org/10.1080/23311908.2020.1728108autism spectrum disorder (asd)stigma of mental health issuescoping with mental health issuesmothers of children with asdchildren with asdinterpretive phenomenological analysis |
| spellingShingle | Juveriah Furrukh Gulnaz Anjum Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD Cogent Psychology autism spectrum disorder (asd) stigma of mental health issues coping with mental health issues mothers of children with asd children with asd interpretive phenomenological analysis |
| title | Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD |
| title_full | Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD |
| title_fullStr | Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD |
| title_full_unstemmed | Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD |
| title_short | Coping with autism spectrum disorder (ASD) in Pakistan: A phenomenology of mothers who have children with ASD |
| title_sort | coping with autism spectrum disorder asd in pakistan a phenomenology of mothers who have children with asd |
| topic | autism spectrum disorder (asd) stigma of mental health issues coping with mental health issues mothers of children with asd children with asd interpretive phenomenological analysis |
| url | http://dx.doi.org/10.1080/23311908.2020.1728108 |
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