Implementation of the World Health Organization Global Burn Registry: Lessons Learned

Burn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (...

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Main Authors: Caitlin Hebron, Kajal Mehta, Barclay Stewart, Patricia Price, Tom Potokar
Format: Article
Language:English
Published: Ubiquity Press 2022-05-01
Series:Annals of Global Health
Online Access:https://annalsofglobalhealth.org/articles/3669
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author Caitlin Hebron
Kajal Mehta
Barclay Stewart
Patricia Price
Tom Potokar
author_facet Caitlin Hebron
Kajal Mehta
Barclay Stewart
Patricia Price
Tom Potokar
author_sort Caitlin Hebron
collection DOAJ
description Burn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (GBR)—a minimum dataset aligned with a centralized registry—was officially launched in 2018 to facilitate hospital-level collection of key prevention, care, and outcome data from burn-injured patients around the world in a standardized manner. However, uptake and use of GBR has been low and inconsistent. Therefore, we aimed to identify and understand the barriers and facilitators to the implementation of the GBR to inform the development of a web-based GBR implementation guide through the 'Centre for Global Burn Injury Policy and Research' and 'Interburns'. We designed and conducted web-based surveys with “GBR users” and “GBR non-users” using purposive sampling. Themes of identified barriers and facilitators focused on awareness of the GBR, stakeholder buy-in, resource constraints, process management, and utility of the registry. The lessons learned could support current and future GBR users to promote and maximize the use of the GBR. To achieve the GBR’s full potential in global burn injury prevention and care, engagement with the GBR should be enhanced through education and promotion, development of a community of practice, tools for data utilization and quality improvement, and periodic re-evaluation.
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spelling doaj.art-3da84031478440509f5adbe678f20e752022-12-22T02:28:30ZengUbiquity PressAnnals of Global Health2214-99962022-05-0188110.5334/aogh.36692744Implementation of the World Health Organization Global Burn Registry: Lessons LearnedCaitlin Hebron0Kajal Mehta1Barclay Stewart2Patricia Price3Tom Potokar4Centre for Global Burn Injury Policy and Research, Swansea University, Wales; Interburns, SwanseaDepartment of Surgery, University of Washington, Seattle, WADivision of Trauma, Burn, and Critical Care Surgery, Department of Surgery, University of Washington; UW Medicine Regional Burn Center, Seattle, WA; Harborview Injury Prevention & Research Center, Seattle, WACentre for Global Burn Injury Policy and Research, Swansea University, Wales; Interburns, CardiffCentre for Global Burn Injury Policy and Research, Swansea University, Wales; Interburns, CardiffBurn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (GBR)—a minimum dataset aligned with a centralized registry—was officially launched in 2018 to facilitate hospital-level collection of key prevention, care, and outcome data from burn-injured patients around the world in a standardized manner. However, uptake and use of GBR has been low and inconsistent. Therefore, we aimed to identify and understand the barriers and facilitators to the implementation of the GBR to inform the development of a web-based GBR implementation guide through the 'Centre for Global Burn Injury Policy and Research' and 'Interburns'. We designed and conducted web-based surveys with “GBR users” and “GBR non-users” using purposive sampling. Themes of identified barriers and facilitators focused on awareness of the GBR, stakeholder buy-in, resource constraints, process management, and utility of the registry. The lessons learned could support current and future GBR users to promote and maximize the use of the GBR. To achieve the GBR’s full potential in global burn injury prevention and care, engagement with the GBR should be enhanced through education and promotion, development of a community of practice, tools for data utilization and quality improvement, and periodic re-evaluation.https://annalsofglobalhealth.org/articles/3669
spellingShingle Caitlin Hebron
Kajal Mehta
Barclay Stewart
Patricia Price
Tom Potokar
Implementation of the World Health Organization Global Burn Registry: Lessons Learned
Annals of Global Health
title Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_full Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_fullStr Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_full_unstemmed Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_short Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_sort implementation of the world health organization global burn registry lessons learned
url https://annalsofglobalhealth.org/articles/3669
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