Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints
Objective: The aim of this study was to assess patient experiences when reporting symptoms of twin–twin transfusion syndrome (TTTS) to their health-care providers. Methodology: The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at th...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2018-06-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/2374373517736760 |
| _version_ | 1828857420939526144 |
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| author | Lauren Nicholas PhD Rebecca Fischbein PhD Lynn Falletta PhD Kristin Baughman PhD |
| author_facet | Lauren Nicholas PhD Rebecca Fischbein PhD Lynn Falletta PhD Kristin Baughman PhD |
| author_sort | Lauren Nicholas PhD |
| collection | DOAJ |
| description | Objective: The aim of this study was to assess patient experiences when reporting symptoms of twin–twin transfusion syndrome (TTTS) to their health-care providers. Methodology: The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy. Results: Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45.2%) reported experiencing maternal symptoms prior to TTTS diagnosis. The average number of symptoms experienced was 2.85. The average gestational week of symptom onset was 18.2. A total of 76.2% of respondents experiencing symptoms shared these concerns with their health-care provider; however, slightly more than half (51.2%) believed that the provider dismissed their complaints. Conclusions: Results suggest a disconnect between patients’ reporting TTTS symptoms and health-care providers responding attentively, as perceived by the patient. It would be advantageous for health-care providers to inform women pregnant with a monochorionic–diamniotic pregnancy to immediately report the presence of any symptom described in the present research, which may be associated with any number of twin pregnancy–related complications. |
| first_indexed | 2024-12-13T01:36:31Z |
| format | Article |
| id | doaj.art-3e1fe28934ab406d99e2b03166eef6a9 |
| institution | Directory Open Access Journal |
| issn | 2374-3743 2374-3735 |
| language | English |
| last_indexed | 2024-12-13T01:36:31Z |
| publishDate | 2018-06-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj.art-3e1fe28934ab406d99e2b03166eef6a92022-12-22T00:03:53ZengSAGE PublishingJournal of Patient Experience2374-37432374-37352018-06-01510.1177/2374373517736760Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting ComplaintsLauren Nicholas PhD0Rebecca Fischbein PhD1Lynn Falletta PhD2Kristin Baughman PhD3 Department of Liberal Arts, D’Youville College, Buffalo, NY, USA Department of Family and Community Medicine, Northeast Ohio Medical University, Rootstown, OH, USA College of Public Health, Kent State University, Kent, OH, USA Department of Family and Community Medicine, Northeast Ohio Medical University, Rootstown, OH, USAObjective: The aim of this study was to assess patient experiences when reporting symptoms of twin–twin transfusion syndrome (TTTS) to their health-care providers. Methodology: The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy. Results: Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45.2%) reported experiencing maternal symptoms prior to TTTS diagnosis. The average number of symptoms experienced was 2.85. The average gestational week of symptom onset was 18.2. A total of 76.2% of respondents experiencing symptoms shared these concerns with their health-care provider; however, slightly more than half (51.2%) believed that the provider dismissed their complaints. Conclusions: Results suggest a disconnect between patients’ reporting TTTS symptoms and health-care providers responding attentively, as perceived by the patient. It would be advantageous for health-care providers to inform women pregnant with a monochorionic–diamniotic pregnancy to immediately report the presence of any symptom described in the present research, which may be associated with any number of twin pregnancy–related complications.https://doi.org/10.1177/2374373517736760 |
| spellingShingle | Lauren Nicholas PhD Rebecca Fischbein PhD Lynn Falletta PhD Kristin Baughman PhD Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints Journal of Patient Experience |
| title | Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints |
| title_full | Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints |
| title_fullStr | Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints |
| title_full_unstemmed | Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints |
| title_short | Twin–Twin Transfusion Syndrome and Maternal Symptomatology—An Exploratory Analysis of Patient Experiences When Reporting Complaints |
| title_sort | twin twin transfusion syndrome and maternal symptomatology an exploratory analysis of patient experiences when reporting complaints |
| url | https://doi.org/10.1177/2374373517736760 |
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