Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria
Background: Sickle Cell Disease (SCD) has been designated by WHO as a public health problem in sub-Saharan Africa, and the development of newborn screening (NBS) is crucial to the reduction of high SCD morbidity and mortality. Strategies from the field of implementation science can be useful for sup...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2018-11-01
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| Series: | International Journal of Neonatal Screening |
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| Online Access: | https://www.mdpi.com/2409-515X/4/4/33 |
| _version_ | 1818880140251234304 |
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| author | Baba P.D. Inusa Kofi A. Anie Andrea Lamont Livingstone G. Dogara Bola Ojo Ifeoma Ijei Wale Atoyebi Larai Gwani Esther Gani Lewis Hsu |
| author_facet | Baba P.D. Inusa Kofi A. Anie Andrea Lamont Livingstone G. Dogara Bola Ojo Ifeoma Ijei Wale Atoyebi Larai Gwani Esther Gani Lewis Hsu |
| author_sort | Baba P.D. Inusa |
| collection | DOAJ |
| description | Background: Sickle Cell Disease (SCD) has been designated by WHO as a public health problem in sub-Saharan Africa, and the development of newborn screening (NBS) is crucial to the reduction of high SCD morbidity and mortality. Strategies from the field of implementation science can be useful for supporting the translation of NBS evidence from high income countries to the unique cultural context of sub-Saharan Africa. One such strategy is community engagement at all levels of the healthcare system, and a widely-used implementation science framework, “Getting to Outcomes<sup>®</sup>„ (GTO), which incorporates continuous multilevel evaluation by stakeholders about the quality of the implementation. Objectives: (1) to obtain critical information on potential barriers to NBS in the disparate ethnic groups and settings (rural and urban) in the healthcare system of Kaduna State in Nigeria; and, (2) to assist in the readiness assessment of Kaduna in the implementation of a sustainable NBS programme for SCD. Methods: Needs assessment was conducted with stakeholder focus groups for two days in Kaduna state, Nigeria, in November 2017. Results: The two-day focus group workshop had a total of 52 participants. Asking and answering the 10 GTO accountability questions provided a structured format to understand strengths and weaknesses in implementation. For example, we found a major communication gap between policy-makers and user groups. Conclusion: In a two-day community engagement workshop, stakeholders worked successfully together to address SCD issues, to engage with each other, to share knowledge, and to prepare to build NBS for SCD in the existing healthcare system. |
| first_indexed | 2024-12-19T14:41:14Z |
| format | Article |
| id | doaj.art-3e76c2fb5f4645d7a273ba0e5c14a4c6 |
| institution | Directory Open Access Journal |
| issn | 2409-515X |
| language | English |
| last_indexed | 2024-12-19T14:41:14Z |
| publishDate | 2018-11-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | International Journal of Neonatal Screening |
| spelling | doaj.art-3e76c2fb5f4645d7a273ba0e5c14a4c62022-12-21T20:17:05ZengMDPI AGInternational Journal of Neonatal Screening2409-515X2018-11-01443310.3390/ijns4040033ijns4040033Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, NigeriaBaba P.D. Inusa0Kofi A. Anie1Andrea Lamont2Livingstone G. Dogara3Bola Ojo4Ifeoma Ijei5Wale Atoyebi6Larai Gwani7Esther Gani8Lewis Hsu9Department Evelina Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, London SE1 7EH, UKDepartment of Haematology and Sickle Cell Centre, London North West University Healthcare NHS Trust and Imperial College, London NW10 7NS, UKDepartment of Implementation Science, University of South Carolina, Columbia, SC 29208, USADepartment of Haematology, School of Medicine , Kaduna State University, Barau Dikko Teaching Hospital, Kaduna 800212, NigeriaSickle Cell Cohort Research Foundation, WUSE Zone II, Abuja 70032, NigeriaDepartment of Haematology, School of Medicine , Kaduna State University, Barau Dikko Teaching Hospital, Kaduna 800212, NigeriaDepartment of Haematology, Oxford University Hospitals NHS Foundation Trust, Oxford OX3 9DU, UKKaduna State Assembly Office, Kaduna 800212, NigeriaLibrary Department, Kaduna State University, Kaduna 800241, NigeriaDepartment of Pediatric Hematology-Oncology, University of Illinois at Chicago, Chicago, IL 60612, USABackground: Sickle Cell Disease (SCD) has been designated by WHO as a public health problem in sub-Saharan Africa, and the development of newborn screening (NBS) is crucial to the reduction of high SCD morbidity and mortality. Strategies from the field of implementation science can be useful for supporting the translation of NBS evidence from high income countries to the unique cultural context of sub-Saharan Africa. One such strategy is community engagement at all levels of the healthcare system, and a widely-used implementation science framework, “Getting to Outcomes<sup>®</sup>„ (GTO), which incorporates continuous multilevel evaluation by stakeholders about the quality of the implementation. Objectives: (1) to obtain critical information on potential barriers to NBS in the disparate ethnic groups and settings (rural and urban) in the healthcare system of Kaduna State in Nigeria; and, (2) to assist in the readiness assessment of Kaduna in the implementation of a sustainable NBS programme for SCD. Methods: Needs assessment was conducted with stakeholder focus groups for two days in Kaduna state, Nigeria, in November 2017. Results: The two-day focus group workshop had a total of 52 participants. Asking and answering the 10 GTO accountability questions provided a structured format to understand strengths and weaknesses in implementation. For example, we found a major communication gap between policy-makers and user groups. Conclusion: In a two-day community engagement workshop, stakeholders worked successfully together to address SCD issues, to engage with each other, to share knowledge, and to prepare to build NBS for SCD in the existing healthcare system.https://www.mdpi.com/2409-515X/4/4/33Sickle Cell Disease‘Getting to Outcomes’newborn screening)sub-Saharan AfricaNigeriaKaduna Stateimplementation sciencepublic health engagement |
| spellingShingle | Baba P.D. Inusa Kofi A. Anie Andrea Lamont Livingstone G. Dogara Bola Ojo Ifeoma Ijei Wale Atoyebi Larai Gwani Esther Gani Lewis Hsu Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria International Journal of Neonatal Screening Sickle Cell Disease ‘Getting to Outcomes’ newborn screening) sub-Saharan Africa Nigeria Kaduna State implementation science public health engagement |
| title | Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria |
| title_full | Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria |
| title_fullStr | Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria |
| title_full_unstemmed | Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria |
| title_short | Utilising the ‘Getting to Outcomes<sup>®</sup>’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria |
| title_sort | utilising the getting to outcomes sup r sup framework in community engagement for development and implementation of sickle cell disease newborn screening in kaduna state nigeria |
| topic | Sickle Cell Disease ‘Getting to Outcomes’ newborn screening) sub-Saharan Africa Nigeria Kaduna State implementation science public health engagement |
| url | https://www.mdpi.com/2409-515X/4/4/33 |
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