Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives

Abstract Background Advance care planninganning (ACP) is a priority within palliative care service provision. Nurses working in the community occupy an opportune role to engage with families and patients in ACP. Carers and family members of palliative patients often find ACP discussions difficult to...

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Main Authors: Katie Wilkin, Mei Lan Fang, Judith Sixsmith
Format: Article
Language:English
Published: BMC 2024-03-01
Series:BMC Geriatrics
Subjects:
Online Access:https://doi.org/10.1186/s12877-024-04888-4
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author Katie Wilkin
Mei Lan Fang
Judith Sixsmith
author_facet Katie Wilkin
Mei Lan Fang
Judith Sixsmith
author_sort Katie Wilkin
collection DOAJ
description Abstract Background Advance care planninganning (ACP) is a priority within palliative care service provision. Nurses working in the community occupy an opportune role to engage with families and patients in ACP. Carers and family members of palliative patients often find ACP discussions difficult to initiate. However, community nurses caring for palliative patients can encourage these discussions, utilising the rapport and relationships they have already built with patients and families. Despite this potential, implementation barriers and facilitators continue to exist. To date, no research synthesis has captured the challenges community nurses face when implementing ACP, nor the facilitators of community nurse-led ACP. Considering this, the review question of: 'What factors contribute to or hinder ACP discussion for nurses when providing care to palliative patients?’ was explored. Method To capture challenges and facilitators, a global qualitative scoping review was undertaken in June 2023. The Arksey and O’Malley framework for scoping reviews guided the review methodology. Six databases were searched identifying 333 records: CINAHL (16), MEDLINE (45), PUBMED (195), EMBASE (30), BJOCN (15), IJOPN (32). After de-duplication and title and abstract screening, 108 records remained. These were downloaded, hand searched (adding 5 articles) and subject to a full read. 98 were rejected, leaving a selected dataset of 15 articles. Data extracted into a data extraction chart were thematically analysed. Results Three key themes were generated: ‘Barriers to ACP’, ‘Facilitators of ACP’ and ‘Understanding of professional role and duty’. Key barriers were – lack of confidence, competence, role ambiguity and prognostic uncertainty. Key facilitators concerned the pertinence of the patient-practitioner relationship enabling ACP amongst nurses who had both competence and experience in ACP and/or palliative care (e.g., palliative care training). Lastly, nurses understood ACP to be part of their role, however, met challenges understanding the law surrounding this and its application processes. Conclusions This review suggests that community nurses' experience and competence are associated with the effective implementation of ACP with palliative patients. Future research is needed to develop interventions to promote ACP uptake in community settings, enable confidence building for community nurses and support higher standards of palliative care via the implementation of ACP.
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spelling doaj.art-3eb3f85417a4434eb9a5a74ceeb2f19b2024-03-31T11:34:38ZengBMCBMC Geriatrics1471-23182024-03-0124111510.1186/s12877-024-04888-4Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectivesKatie Wilkin0Mei Lan Fang1Judith Sixsmith2NHS FifeSchool of Health Sciences, University of DundeeSchool of Health Sciences, University of DundeeAbstract Background Advance care planninganning (ACP) is a priority within palliative care service provision. Nurses working in the community occupy an opportune role to engage with families and patients in ACP. Carers and family members of palliative patients often find ACP discussions difficult to initiate. However, community nurses caring for palliative patients can encourage these discussions, utilising the rapport and relationships they have already built with patients and families. Despite this potential, implementation barriers and facilitators continue to exist. To date, no research synthesis has captured the challenges community nurses face when implementing ACP, nor the facilitators of community nurse-led ACP. Considering this, the review question of: 'What factors contribute to or hinder ACP discussion for nurses when providing care to palliative patients?’ was explored. Method To capture challenges and facilitators, a global qualitative scoping review was undertaken in June 2023. The Arksey and O’Malley framework for scoping reviews guided the review methodology. Six databases were searched identifying 333 records: CINAHL (16), MEDLINE (45), PUBMED (195), EMBASE (30), BJOCN (15), IJOPN (32). After de-duplication and title and abstract screening, 108 records remained. These were downloaded, hand searched (adding 5 articles) and subject to a full read. 98 were rejected, leaving a selected dataset of 15 articles. Data extracted into a data extraction chart were thematically analysed. Results Three key themes were generated: ‘Barriers to ACP’, ‘Facilitators of ACP’ and ‘Understanding of professional role and duty’. Key barriers were – lack of confidence, competence, role ambiguity and prognostic uncertainty. Key facilitators concerned the pertinence of the patient-practitioner relationship enabling ACP amongst nurses who had both competence and experience in ACP and/or palliative care (e.g., palliative care training). Lastly, nurses understood ACP to be part of their role, however, met challenges understanding the law surrounding this and its application processes. Conclusions This review suggests that community nurses' experience and competence are associated with the effective implementation of ACP with palliative patients. Future research is needed to develop interventions to promote ACP uptake in community settings, enable confidence building for community nurses and support higher standards of palliative care via the implementation of ACP.https://doi.org/10.1186/s12877-024-04888-4Advance care planningPalliative and end of life careNursePrimary careEducationConfidence
spellingShingle Katie Wilkin
Mei Lan Fang
Judith Sixsmith
Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
BMC Geriatrics
Advance care planning
Palliative and end of life care
Nurse
Primary care
Education
Confidence
title Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
title_full Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
title_fullStr Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
title_full_unstemmed Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
title_short Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives
title_sort implementing advance care planning in palliative and end of life care a scoping review of community nursing perspectives
topic Advance care planning
Palliative and end of life care
Nurse
Primary care
Education
Confidence
url https://doi.org/10.1186/s12877-024-04888-4
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