Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol
Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individu...
| Main Authors: | , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2021-06-01
|
| Series: | Contemporary Clinical Trials Communications |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2451865421000661 |
| _version_ | 1818668829449912320 |
|---|---|
| author | Terrah Foster Akard Kelly Davis Tracy Hills Miriam Lense Dana Kim Rylie Webber Mary S. Dietrich Mary Jo Gilmer |
| author_facet | Terrah Foster Akard Kelly Davis Tracy Hills Miriam Lense Dana Kim Rylie Webber Mary S. Dietrich Mary Jo Gilmer |
| author_sort | Terrah Foster Akard |
| collection | DOAJ |
| description | Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described. |
| first_indexed | 2024-12-17T06:42:32Z |
| format | Article |
| id | doaj.art-3f669bbbd857473fad3cd84882d48c61 |
| institution | Directory Open Access Journal |
| issn | 2451-8654 |
| language | English |
| last_indexed | 2024-12-17T06:42:32Z |
| publishDate | 2021-06-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Contemporary Clinical Trials Communications |
| spelling | doaj.art-3f669bbbd857473fad3cd84882d48c612022-12-21T21:59:49ZengElsevierContemporary Clinical Trials Communications2451-86542021-06-0122100765Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocolTerrah Foster Akard0Kelly Davis1Tracy Hills2Miriam Lense3Dana Kim4Rylie Webber5Mary S. Dietrich6Mary Jo Gilmer7Vanderbilt University, Nashville, TN, USA; Corresponding author.Vanderbilt University, Nashville, TN, USA; Monroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USAMonroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USAVanderbilt University, Nashville, TN, USA; Vanderbilt University Medical Center, Nashville, TN, USAMonroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USAMonroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USAVanderbilt University, Nashville, TN, USAVanderbilt University, Nashville, TN, USA; Monroe Carrell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USAInvestigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial (N = 25) is described.http://www.sciencedirect.com/science/article/pii/S2451865421000661PediatricsSongwritingMusic therapyPalliative carePalliative medicineHospice and palliative care nursing |
| spellingShingle | Terrah Foster Akard Kelly Davis Tracy Hills Miriam Lense Dana Kim Rylie Webber Mary S. Dietrich Mary Jo Gilmer Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol Contemporary Clinical Trials Communications Pediatrics Songwriting Music therapy Palliative care Palliative medicine Hospice and palliative care nursing |
| title | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
| title_full | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
| title_fullStr | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
| title_full_unstemmed | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
| title_short | Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol |
| title_sort | songwriting intervention for cognitively impaired children with life limiting conditions study protocol |
| topic | Pediatrics Songwriting Music therapy Palliative care Palliative medicine Hospice and palliative care nursing |
| url | http://www.sciencedirect.com/science/article/pii/S2451865421000661 |
| work_keys_str_mv | AT terrahfosterakard songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT kellydavis songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT tracyhills songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT miriamlense songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT danakim songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT ryliewebber songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT marysdietrich songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol AT maryjogilmer songwritinginterventionforcognitivelyimpairedchildrenwithlifelimitingconditionsstudyprotocol |