Treatment adherence in hemophilia
Courtney D Thornburg,1 Natalie A Duncan2 1Hemophilia and Thrombosis Treatment Center, Rady Children’s Hospital, San Diego, CA, 2Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, USA Abstract: Prophylactic clotting-factor regimens reduce the occurrence of bleeding episodes and m...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Dove Medical Press
2017-09-01
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| Series: | Patient Preference and Adherence |
| Online Access: | https://www.dovepress.com/treatment-adherence-in-hemophilia-peer-reviewed-article-PPA |
| _version_ | 1811262475497111552 |
|---|---|
| author | Thornburg CD Duncan NA |
| author_facet | Thornburg CD Duncan NA |
| author_sort | Thornburg CD |
| collection | DOAJ |
| description | Courtney D Thornburg,1 Natalie A Duncan2 1Hemophilia and Thrombosis Treatment Center, Rady Children’s Hospital, San Diego, CA, 2Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, USA Abstract: Prophylactic clotting-factor regimens reduce the occurrence of bleeding episodes and maintain joint health in individuals with moderate and severe hemophilia. However, these outcomes are only achieved with adherence to prescribed prophylaxis regimens. There are several types of barriers to adherence related to key patient, condition, treatment, health-care system, and/or socioeconomic variables. Notably, health-care professionals may not prescribe prophylaxis if they perceive that a patient will be nonadherent. Prophylactic treatment strategies should be developed with the patient and family, focused on individualized treatment goals. Personalized strategies are needed to reinforce the importance of and encourage confidence in administering the regular infusions required for prophylactic therapy. These strategies may include verbal and written information delivered by health-care professionals, peers, and interactive media. The advent of extended half-life clotting factors requiring less frequent infusion may improve adherence. Keywords: hemophilia, prophylaxis, adherence, VERITAS-Pro |
| first_indexed | 2024-04-12T19:26:12Z |
| format | Article |
| id | doaj.art-42849cc99db24d919d196fa95be6cfc0 |
| institution | Directory Open Access Journal |
| issn | 1177-889X |
| language | English |
| last_indexed | 2024-04-12T19:26:12Z |
| publishDate | 2017-09-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Patient Preference and Adherence |
| spelling | doaj.art-42849cc99db24d919d196fa95be6cfc02022-12-22T03:19:28ZengDove Medical PressPatient Preference and Adherence1177-889X2017-09-01Volume 111677168634903Treatment adherence in hemophiliaThornburg CDDuncan NACourtney D Thornburg,1 Natalie A Duncan2 1Hemophilia and Thrombosis Treatment Center, Rady Children’s Hospital, San Diego, CA, 2Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, USA Abstract: Prophylactic clotting-factor regimens reduce the occurrence of bleeding episodes and maintain joint health in individuals with moderate and severe hemophilia. However, these outcomes are only achieved with adherence to prescribed prophylaxis regimens. There are several types of barriers to adherence related to key patient, condition, treatment, health-care system, and/or socioeconomic variables. Notably, health-care professionals may not prescribe prophylaxis if they perceive that a patient will be nonadherent. Prophylactic treatment strategies should be developed with the patient and family, focused on individualized treatment goals. Personalized strategies are needed to reinforce the importance of and encourage confidence in administering the regular infusions required for prophylactic therapy. These strategies may include verbal and written information delivered by health-care professionals, peers, and interactive media. The advent of extended half-life clotting factors requiring less frequent infusion may improve adherence. Keywords: hemophilia, prophylaxis, adherence, VERITAS-Prohttps://www.dovepress.com/treatment-adherence-in-hemophilia-peer-reviewed-article-PPA |
| spellingShingle | Thornburg CD Duncan NA Treatment adherence in hemophilia Patient Preference and Adherence |
| title | Treatment adherence in hemophilia |
| title_full | Treatment adherence in hemophilia |
| title_fullStr | Treatment adherence in hemophilia |
| title_full_unstemmed | Treatment adherence in hemophilia |
| title_short | Treatment adherence in hemophilia |
| title_sort | treatment adherence in hemophilia |
| url | https://www.dovepress.com/treatment-adherence-in-hemophilia-peer-reviewed-article-PPA |
| work_keys_str_mv | AT thornburgcd treatmentadherenceinhemophilia AT duncanna treatmentadherenceinhemophilia |