“You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients
Abstract Background There is growing reliance on unpaid caregivers to provide support to people with care needs. Integrated care approaches that aim to coordinate primary care with community care known as community based primary health care (CBPHC) has been a key policy initiative across health syst...
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| Format: | Article |
| Language: | English |
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BMC
2018-11-01
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| Series: | BMC Geriatrics |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12877-018-0962-5 |
| _version_ | 1818294311989542912 |
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| author | Kerry Kuluski Allie Peckham Ashlinder Gill Jasleen Arneja Frances Morton-Chang John Parsons Cecilia Wong-Cornall Ann McKillop Ross E. G. Upshur Nicolette Sheridan |
| author_facet | Kerry Kuluski Allie Peckham Ashlinder Gill Jasleen Arneja Frances Morton-Chang John Parsons Cecilia Wong-Cornall Ann McKillop Ross E. G. Upshur Nicolette Sheridan |
| author_sort | Kerry Kuluski |
| collection | DOAJ |
| description | Abstract Background There is growing reliance on unpaid caregivers to provide support to people with care needs. Integrated care approaches that aim to coordinate primary care with community care known as community based primary health care (CBPHC) has been a key policy initiative across health systems; however most attention has been paid to the needs of patients and not caregivers. The objective of this paper was to explore the unmet needs of caregivers of older adults with complex care needs receiving CBPHC. Methods This qualitative descriptive study entailed one-to-one interviews with 80 caregivers from Canada and New Zealand where roles, experiences and needs were explored. Interview text related to unmet need was reviewed inductively and core themes identified. Results Three themes were identified across CBPHC sites: unrecognized role; lack of personal resources; and no breaks even when services are in place. Conclusions To support caregivers, models of care such as CBPHC need to look beyond the patient to meaningfully engage caregivers, address their needs and recognize the insight they hold. This knowledge needs to be valued as a key source of evidence to inform developments in health and social care. |
| first_indexed | 2024-12-13T03:29:44Z |
| format | Article |
| id | doaj.art-42eaafe12abe4d89945aad364a77601d |
| institution | Directory Open Access Journal |
| issn | 1471-2318 |
| language | English |
| last_indexed | 2024-12-13T03:29:44Z |
| publishDate | 2018-11-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Geriatrics |
| spelling | doaj.art-42eaafe12abe4d89945aad364a77601d2022-12-22T00:01:11ZengBMCBMC Geriatrics1471-23182018-11-0118111110.1186/s12877-018-0962-5“You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patientsKerry Kuluski0Allie Peckham1Ashlinder Gill2Jasleen Arneja3Frances Morton-Chang4John Parsons5Cecilia Wong-Cornall6Ann McKillop7Ross E. G. Upshur8Nicolette Sheridan9Bridgepoint Collaboratory, Lunenfeld-Tanenbaum Research Institute, Sinai Health SystemInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of TorontoInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of TorontoEpidemiology Division, Dalla Lana School of Public Health, University of TorontoInstitute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of TorontoSchool of Nursing, Faculty of Medical and Health Sciences, University of AucklandSchool of Nursing, Faculty of Medical and Health Sciences, University of AucklandSchool of Nursing, Faculty of Medical and Health Sciences, University of AucklandBridgepoint Collaboratory, Lunenfeld-Tanenbaum Research Institute, Sinai Health SystemCentre for Nursing and Health Research, School of Nursing, College of Health Te Kura Hauora Tangata, Massey UniversityAbstract Background There is growing reliance on unpaid caregivers to provide support to people with care needs. Integrated care approaches that aim to coordinate primary care with community care known as community based primary health care (CBPHC) has been a key policy initiative across health systems; however most attention has been paid to the needs of patients and not caregivers. The objective of this paper was to explore the unmet needs of caregivers of older adults with complex care needs receiving CBPHC. Methods This qualitative descriptive study entailed one-to-one interviews with 80 caregivers from Canada and New Zealand where roles, experiences and needs were explored. Interview text related to unmet need was reviewed inductively and core themes identified. Results Three themes were identified across CBPHC sites: unrecognized role; lack of personal resources; and no breaks even when services are in place. Conclusions To support caregivers, models of care such as CBPHC need to look beyond the patient to meaningfully engage caregivers, address their needs and recognize the insight they hold. This knowledge needs to be valued as a key source of evidence to inform developments in health and social care.http://link.springer.com/article/10.1186/s12877-018-0962-5CaregiversPrimary careQualitativeCanadaNew Zealand |
| spellingShingle | Kerry Kuluski Allie Peckham Ashlinder Gill Jasleen Arneja Frances Morton-Chang John Parsons Cecilia Wong-Cornall Ann McKillop Ross E. G. Upshur Nicolette Sheridan “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients BMC Geriatrics Caregivers Primary care Qualitative Canada New Zealand |
| title | “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| title_full | “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| title_fullStr | “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| title_full_unstemmed | “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| title_short | “You’ve got to look after yourself, to be able to look after them” a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| title_sort | you ve got to look after yourself to be able to look after them a qualitative study of the unmet needs of caregivers of community based primary health care patients |
| topic | Caregivers Primary care Qualitative Canada New Zealand |
| url | http://link.springer.com/article/10.1186/s12877-018-0962-5 |
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