Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study
Abstract Background Stroke is a prevalent neurological disease that can have a profound impact on women’s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare provid...
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| Format: | Article |
| Language: | English |
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BMC
2023-07-01
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| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12904-023-01216-2 |
| _version_ | 1827890170895007744 |
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| author | Marwa Nayef Alhalabi Inaam Abdulla Khalaf Ruqayya Sayed Zeilani Hala Ahmad Bawadi Ahmad S. Musa Abdulqadir J. Nashwan |
| author_facet | Marwa Nayef Alhalabi Inaam Abdulla Khalaf Ruqayya Sayed Zeilani Hala Ahmad Bawadi Ahmad S. Musa Abdulqadir J. Nashwan |
| author_sort | Marwa Nayef Alhalabi |
| collection | DOAJ |
| description | Abstract Background Stroke is a prevalent neurological disease that can have a profound impact on women’s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare providers. Unfortunately, the experience of women with stroke and their specific palliative care needs have been largely overlooked in research conducted in Jordan. Aim The purpose of this study is to examine the specific palliative care needs of women who have experienced a stroke and are currently living in Jordan. By conducting this research, we aim to identify the various physical, emotional, social, and spiritual needs of women with stroke and gain a better understanding of how these needs can be addressed through palliative care interventions. Methods This research utilized a phenomenological descriptive study approach to explore the experiences of twelve women recruited from the outpatient clinic of rehabilitation centers. The data was collected through semi-structured interviews. The analysis was conducted using the method of Colaizzi (1978), which involves identifying significant statements, extracting meanings, and formulating an exhaustive description of the phenomenon under study. Results The study findings uncovered three primary themes that reflect the palliative care needs of women who are currently living with stroke in Jordan, including (1) Spiritual practices, beliefs, and needs; (2) Coping with distressing symptoms; and (3) Managing the delivery of unfavorable news. Discussion This study provides valuable insights into the experiences of Jordanian women living with stroke, highlighting the far-reaching consequences of this condition on various aspects of their lives. The findings reveal that stroke has a significant impact on women’s physical, emotional, social, and spiritual well-being, with many facing unmet palliative care needs. By illuminating these challenges, our study underscores the importance of taking a holistic approach to stroke care that addresses the multifaceted needs of women living with stroke. Healthcare providers must consider these findings and integrate palliative care interventions into treatment plans to improve the quality of life of women living with stroke in Jordan. Conclusion This study provides valuable insights into the palliative care needs of women who have experienced a stroke. Our findings highlight the importance of addressing women’s physical, psychosocial, and spiritual needs as part of a comprehensive approach to stroke care. We recommend integrating palliative care interventions into rehabilitation programs to improve the quality of life of women living with stroke in Jordan. By doing so, we can address the pain and complications that can arise from stroke, while also providing holistic support to address the emotional and spiritual impact of the illness. This approach has the potential to improve outcomes for women living with stroke and enhance their overall well-being. |
| first_indexed | 2024-03-12T21:05:53Z |
| format | Article |
| id | doaj.art-4308a5b282234793b0b8b0a8fa99932c |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-03-12T21:05:53Z |
| publishDate | 2023-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-4308a5b282234793b0b8b0a8fa99932c2023-07-30T11:27:04ZengBMCBMC Palliative Care1472-684X2023-07-0122111310.1186/s12904-023-01216-2Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological studyMarwa Nayef Alhalabi0Inaam Abdulla Khalaf1Ruqayya Sayed Zeilani2Hala Ahmad Bawadi3Ahmad S. Musa4Abdulqadir J. Nashwan5Department of Adult Health Nursing, Faculty of Nursing, The University of JordanDepartment of Maternal and Child Health Nursing, Faculty of Nursing, The University of JordanDepartment of Adult Health Nursing, Faculty of Nursing, The University of JordanDepartment of Maternal and Child Health Nursing, Faculty of Nursing, The University of JordanDepartment of Adult Health Nursing, Faculty of Nursing, Al Al-Bayt University Department of Nursing, Hamad Medical CorporationAbstract Background Stroke is a prevalent neurological disease that can have a profound impact on women’s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare providers. Unfortunately, the experience of women with stroke and their specific palliative care needs have been largely overlooked in research conducted in Jordan. Aim The purpose of this study is to examine the specific palliative care needs of women who have experienced a stroke and are currently living in Jordan. By conducting this research, we aim to identify the various physical, emotional, social, and spiritual needs of women with stroke and gain a better understanding of how these needs can be addressed through palliative care interventions. Methods This research utilized a phenomenological descriptive study approach to explore the experiences of twelve women recruited from the outpatient clinic of rehabilitation centers. The data was collected through semi-structured interviews. The analysis was conducted using the method of Colaizzi (1978), which involves identifying significant statements, extracting meanings, and formulating an exhaustive description of the phenomenon under study. Results The study findings uncovered three primary themes that reflect the palliative care needs of women who are currently living with stroke in Jordan, including (1) Spiritual practices, beliefs, and needs; (2) Coping with distressing symptoms; and (3) Managing the delivery of unfavorable news. Discussion This study provides valuable insights into the experiences of Jordanian women living with stroke, highlighting the far-reaching consequences of this condition on various aspects of their lives. The findings reveal that stroke has a significant impact on women’s physical, emotional, social, and spiritual well-being, with many facing unmet palliative care needs. By illuminating these challenges, our study underscores the importance of taking a holistic approach to stroke care that addresses the multifaceted needs of women living with stroke. Healthcare providers must consider these findings and integrate palliative care interventions into treatment plans to improve the quality of life of women living with stroke in Jordan. Conclusion This study provides valuable insights into the palliative care needs of women who have experienced a stroke. Our findings highlight the importance of addressing women’s physical, psychosocial, and spiritual needs as part of a comprehensive approach to stroke care. We recommend integrating palliative care interventions into rehabilitation programs to improve the quality of life of women living with stroke in Jordan. By doing so, we can address the pain and complications that can arise from stroke, while also providing holistic support to address the emotional and spiritual impact of the illness. This approach has the potential to improve outcomes for women living with stroke and enhance their overall well-being.https://doi.org/10.1186/s12904-023-01216-2StrokeWomen with strokePalliative carePalliative care needsSpiritual practicesBeliefs |
| spellingShingle | Marwa Nayef Alhalabi Inaam Abdulla Khalaf Ruqayya Sayed Zeilani Hala Ahmad Bawadi Ahmad S. Musa Abdulqadir J. Nashwan Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study BMC Palliative Care Stroke Women with stroke Palliative care Palliative care needs Spiritual practices Beliefs |
| title | Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study |
| title_full | Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study |
| title_fullStr | Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study |
| title_full_unstemmed | Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study |
| title_short | Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study |
| title_sort | palliative care needs of jordanian women s experience of living with stroke a descriptive phenomenological study |
| topic | Stroke Women with stroke Palliative care Palliative care needs Spiritual practices Beliefs |
| url | https://doi.org/10.1186/s12904-023-01216-2 |
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