Going From Zero to 100 in Remote Dementia Research: A Practical Guide
Remote approaches for dementia research are required in the era of COVID-19, but moving a research program from in person to remote involves additional considerations. We recommend using outcome measures that have psychometric properties for remote delivery, and we recommend against adapting in-pers...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2021-01-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | http://www.jmir.org/2021/1/e24098/ |
| _version_ | 1818946827689394176 |
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| author | O'Connell, Megan E Vellani, Shirin Robertson, Sheryl O'Rourke, Hannah M McGilton, Kathy S |
| author_facet | O'Connell, Megan E Vellani, Shirin Robertson, Sheryl O'Rourke, Hannah M McGilton, Kathy S |
| author_sort | O'Connell, Megan E |
| collection | DOAJ |
| description | Remote approaches for dementia research are required in the era of COVID-19, but moving a research program from in person to remote involves additional considerations. We recommend using outcome measures that have psychometric properties for remote delivery, and we recommend against adapting in-person scales for remote delivery without evidence for psychometric equivalency. We suggest remote research designs that maximize benefit for participants, which could have implications for control groups. Researchers should plan for flexibility in their methods for remote research and must not assume all participants will be able to videoconference; telephone-only research is possible. We recommend performing an assessment of information communication technology infrastructure and prior exposure to this technology with each participant before making a final choice on remote methods for research. In general, researchers should adapt their methods for remote research to each participant rather than requesting participants to adapt to the researchers. Screening for sensory loss should be conducted, and the impact of this on the use of technology for remote research should be considered. In this viewpoint, we detail how individualized training is required prior to engaging in remote research, how training plans interact with cognitive impairments and, finally, the steps involved in facilitating technology-based remote data collection. |
| first_indexed | 2024-12-20T08:21:12Z |
| format | Article |
| id | doaj.art-4449ae24228045bb98d54ffef6307cfb |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-12-20T08:21:12Z |
| publishDate | 2021-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-4449ae24228045bb98d54ffef6307cfb2022-12-21T19:46:59ZengJMIR PublicationsJournal of Medical Internet Research1438-88712021-01-01231e2409810.2196/24098Going From Zero to 100 in Remote Dementia Research: A Practical GuideO'Connell, Megan EVellani, ShirinRobertson, SherylO'Rourke, Hannah MMcGilton, Kathy SRemote approaches for dementia research are required in the era of COVID-19, but moving a research program from in person to remote involves additional considerations. We recommend using outcome measures that have psychometric properties for remote delivery, and we recommend against adapting in-person scales for remote delivery without evidence for psychometric equivalency. We suggest remote research designs that maximize benefit for participants, which could have implications for control groups. Researchers should plan for flexibility in their methods for remote research and must not assume all participants will be able to videoconference; telephone-only research is possible. We recommend performing an assessment of information communication technology infrastructure and prior exposure to this technology with each participant before making a final choice on remote methods for research. In general, researchers should adapt their methods for remote research to each participant rather than requesting participants to adapt to the researchers. Screening for sensory loss should be conducted, and the impact of this on the use of technology for remote research should be considered. In this viewpoint, we detail how individualized training is required prior to engaging in remote research, how training plans interact with cognitive impairments and, finally, the steps involved in facilitating technology-based remote data collection.http://www.jmir.org/2021/1/e24098/ |
| spellingShingle | O'Connell, Megan E Vellani, Shirin Robertson, Sheryl O'Rourke, Hannah M McGilton, Kathy S Going From Zero to 100 in Remote Dementia Research: A Practical Guide Journal of Medical Internet Research |
| title | Going From Zero to 100 in Remote Dementia Research: A Practical Guide |
| title_full | Going From Zero to 100 in Remote Dementia Research: A Practical Guide |
| title_fullStr | Going From Zero to 100 in Remote Dementia Research: A Practical Guide |
| title_full_unstemmed | Going From Zero to 100 in Remote Dementia Research: A Practical Guide |
| title_short | Going From Zero to 100 in Remote Dementia Research: A Practical Guide |
| title_sort | going from zero to 100 in remote dementia research a practical guide |
| url | http://www.jmir.org/2021/1/e24098/ |
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