Meaningful and effective patient engagement: What matters most to stakeholders
To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive desig...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
The Beryl Institute
2015-04-01
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| Series: | Patient Experience Journal |
| Subjects: | |
| Online Access: | https://pxjournal.org/journal/vol2/iss1/5 |
| _version_ | 1819003360845496320 |
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| author | Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan |
| author_facet | Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan |
| author_sort | Mandy Bellows |
| collection | DOAJ |
| description | To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive design was selected using purposive participant sampling, focusing on ‘who’, ‘what’ and ‘why’ questions pertaining to stakeholder perceptions about patient engagement in their specific context as patients, providers or leaders. Four project groups were selected; each group was responsible for a strategic initiative within Alberta Health Services and represented one of three different levels of the healthcare system (i.e. program, site or governance). Semi-structured question guides were used to collect data. Thematic analysis of the transcribed participant responses revealed eleven major themes: understanding patient engagement; language, communication, information; level and timing of engagement; recruitment and retention; roles, responsibilities and expectations; reason for being; expense; time commitment; governance and structure; knowing who’s who; and evaluation. Patients, providers and leaders agreed to the importance of communication around the reasons for patient engagement including building trust through collaboration and clearly identifying goals, along with their roles and responsibilities. These stakeholder perspectives are needed to inform the development of tools, resources and education materials required to support patient engagement activities tailored to the needs, understandings and perspectives of stakeholders. |
| first_indexed | 2024-12-20T23:19:46Z |
| format | Article |
| id | doaj.art-44c4982677134d5c90b366a2485d9946 |
| institution | Directory Open Access Journal |
| issn | 2372-0247 |
| language | English |
| last_indexed | 2024-12-20T23:19:46Z |
| publishDate | 2015-04-01 |
| publisher | The Beryl Institute |
| record_format | Article |
| series | Patient Experience Journal |
| spelling | doaj.art-44c4982677134d5c90b366a2485d99462022-12-21T19:23:33ZengThe Beryl InstitutePatient Experience Journal2372-02472015-04-01Meaningful and effective patient engagement: What matters most to stakeholdersMandy BellowsKatharina Kovacs BurnsKaren JacksonBrae SurgeonerJennifer GallivanTo determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three stakeholder groups. A qualitative descriptive design was selected using purposive participant sampling, focusing on ‘who’, ‘what’ and ‘why’ questions pertaining to stakeholder perceptions about patient engagement in their specific context as patients, providers or leaders. Four project groups were selected; each group was responsible for a strategic initiative within Alberta Health Services and represented one of three different levels of the healthcare system (i.e. program, site or governance). Semi-structured question guides were used to collect data. Thematic analysis of the transcribed participant responses revealed eleven major themes: understanding patient engagement; language, communication, information; level and timing of engagement; recruitment and retention; roles, responsibilities and expectations; reason for being; expense; time commitment; governance and structure; knowing who’s who; and evaluation. Patients, providers and leaders agreed to the importance of communication around the reasons for patient engagement including building trust through collaboration and clearly identifying goals, along with their roles and responsibilities. These stakeholder perspectives are needed to inform the development of tools, resources and education materials required to support patient engagement activities tailored to the needs, understandings and perspectives of stakeholders.https://pxjournal.org/journal/vol2/iss1/5patient engagementpatient experiencequalitativethematic analysis |
| spellingShingle | Mandy Bellows Katharina Kovacs Burns Karen Jackson Brae Surgeoner Jennifer Gallivan Meaningful and effective patient engagement: What matters most to stakeholders Patient Experience Journal patient engagement patient experience qualitative thematic analysis |
| title | Meaningful and effective patient engagement: What matters most to stakeholders |
| title_full | Meaningful and effective patient engagement: What matters most to stakeholders |
| title_fullStr | Meaningful and effective patient engagement: What matters most to stakeholders |
| title_full_unstemmed | Meaningful and effective patient engagement: What matters most to stakeholders |
| title_short | Meaningful and effective patient engagement: What matters most to stakeholders |
| title_sort | meaningful and effective patient engagement what matters most to stakeholders |
| topic | patient engagement patient experience qualitative thematic analysis |
| url | https://pxjournal.org/journal/vol2/iss1/5 |
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