Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss
Introduction There is a growing population of women with limb loss, yet limited research is available to provide evidentiary support for clinical decision-making in this demographic. As such, there is a critical gap in knowledge of evidence-based healthcare practices aimed to maximise the physical a...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2023-09-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/9/e071662.full |
| _version_ | 1797669365766684672 |
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| author | Roxanne Disla Alison L Pruziner Alexis N Sidiropoulos Kathryn M Ellis Tamara Bushnik Michael J Hyre Leif M Nelson Heidi Klingbeil Jason T Maikos |
| author_facet | Roxanne Disla Alison L Pruziner Alexis N Sidiropoulos Kathryn M Ellis Tamara Bushnik Michael J Hyre Leif M Nelson Heidi Klingbeil Jason T Maikos |
| author_sort | Roxanne Disla |
| collection | DOAJ |
| description | Introduction There is a growing population of women with limb loss, yet limited research is available to provide evidentiary support for clinical decision-making in this demographic. As such, there is a critical gap in knowledge of evidence-based healthcare practices aimed to maximise the physical and psychosocial needs of women with limb loss. The objective of this study is to develop a comprehensive, survey-based needs assessment to determine the unique impact of limb loss on women, including physical and psychosocial needs.Methods and analysis A bank of existing limb loss-specific and non-limb loss-specific surveys were arranged around domains of general health, quality of life, prosthetic use and needs, psychosocial health and behaviours and body image. These surveys were supplemented with written items to ensure coverage of relevant domains. Written items were iteratively refined with a multidisciplinary expert panel. The interpretability of items and relevance to limb loss were then internally tested on a small group of rehabilitation, engineering and research professionals. A diverse sample of 12 individuals with various levels of limb loss piloted the instrument and participated in cognitive interviews. Items from existing surveys were evaluated for relevance and inclusion in the survey, but not solicited for content feedback. Pilot testing resulted in the removal of 13 items from an existing survey due to redundancy. Additionally, 13 written items were deleted, 42 written items were revised and 17 written items were added. The survey-based needs assessment has been crafted to comprehensively assess the wide spectrum of issues facing women with limb loss. The final version of the survey-based needs assessment included 15 subsections.Ethics and dissemination This study was approved by the Veterans Affairs Central Institutional Review Board. The results will be disseminated through national and international conferences, as well as through manuscripts in leading peer-reviewed journals.Trial registration number No healthcare intervention on human participants was conducted. |
| first_indexed | 2024-03-11T20:43:15Z |
| format | Article |
| id | doaj.art-44d2f819d0234b83968200b3ac3299d4 |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-03-11T20:43:15Z |
| publishDate | 2023-09-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-44d2f819d0234b83968200b3ac3299d42023-10-01T23:30:07ZengBMJ Publishing GroupBMJ Open2044-60552023-09-0113910.1136/bmjopen-2023-071662Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb lossRoxanne Disla0Alison L Pruziner1Alexis N Sidiropoulos2Kathryn M Ellis3Tamara Bushnik4Michael J Hyre5Leif M Nelson6Heidi Klingbeil7Jason T Maikos8Physical Medicine and Rehabilitation, James J Peters Veterans Affairs Medical Center, New York, New York, USANational Veterans Sports Programs and Special Events, Department of Veterans Affairs, Washington, District of Columbia, USAProsthetics and Sensory Aids Service, Veterans Affairs New York Harbor Healthcare System, New York, New York, USAPhysical Medicine and Rehabilitation, Walter Reed National Military Medical Center, Bethesda, Maryland, USARusk Rehabilitation, New York University Langone Health, New York, New York, USANarrows Institute for Biomedical Research and Education, Inc, New York, New York, USANational Veterans Sports Programs and Special Events, Department of Veterans Affairs, Washington, District of Columbia, USAPhysical Medicine and Rehabilitation, James J Peters Veterans Affairs Medical Center, New York, New York, USAProsthetics and Sensory Aids Service, Veterans Affairs New York Harbor Healthcare System, New York, New York, USAIntroduction There is a growing population of women with limb loss, yet limited research is available to provide evidentiary support for clinical decision-making in this demographic. As such, there is a critical gap in knowledge of evidence-based healthcare practices aimed to maximise the physical and psychosocial needs of women with limb loss. The objective of this study is to develop a comprehensive, survey-based needs assessment to determine the unique impact of limb loss on women, including physical and psychosocial needs.Methods and analysis A bank of existing limb loss-specific and non-limb loss-specific surveys were arranged around domains of general health, quality of life, prosthetic use and needs, psychosocial health and behaviours and body image. These surveys were supplemented with written items to ensure coverage of relevant domains. Written items were iteratively refined with a multidisciplinary expert panel. The interpretability of items and relevance to limb loss were then internally tested on a small group of rehabilitation, engineering and research professionals. A diverse sample of 12 individuals with various levels of limb loss piloted the instrument and participated in cognitive interviews. Items from existing surveys were evaluated for relevance and inclusion in the survey, but not solicited for content feedback. Pilot testing resulted in the removal of 13 items from an existing survey due to redundancy. Additionally, 13 written items were deleted, 42 written items were revised and 17 written items were added. The survey-based needs assessment has been crafted to comprehensively assess the wide spectrum of issues facing women with limb loss. The final version of the survey-based needs assessment included 15 subsections.Ethics and dissemination This study was approved by the Veterans Affairs Central Institutional Review Board. The results will be disseminated through national and international conferences, as well as through manuscripts in leading peer-reviewed journals.Trial registration number No healthcare intervention on human participants was conducted.https://bmjopen.bmj.com/content/13/9/e071662.full |
| spellingShingle | Roxanne Disla Alison L Pruziner Alexis N Sidiropoulos Kathryn M Ellis Tamara Bushnik Michael J Hyre Leif M Nelson Heidi Klingbeil Jason T Maikos Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss BMJ Open |
| title | Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| title_full | Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| title_fullStr | Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| title_full_unstemmed | Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| title_short | Women with limb loss: rationale, design and protocol for a national, exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| title_sort | women with limb loss rationale design and protocol for a national exploratory needs assessment to evaluate the unique physical and psychosocial needs of women with limb loss |
| url | https://bmjopen.bmj.com/content/13/9/e071662.full |
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