Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe
Abstract Background Population-based registries implement the comprehensive collection of all disease events that occur in a well-characterized population within a certain time period and represent the preferred tools for disease monitoring at a population level. Main characteristics of a Population...
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| Format: | Article |
| Language: | English |
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BMC
2018-06-01
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| Series: | Archives of Public Health |
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| Online Access: | http://link.springer.com/article/10.1186/s13690-018-0283-3 |
| _version_ | 1819132694828679168 |
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| author | Luigi Palmieri Giovanni Veronesi Giovanni Corrao Giuseppe Traversa Marco M. Ferrario Giovanni Nicoletti Anna Di Lonardo Chiara Donfrancesco Flavia Carle Simona Giampaoli |
| author_facet | Luigi Palmieri Giovanni Veronesi Giovanni Corrao Giuseppe Traversa Marco M. Ferrario Giovanni Nicoletti Anna Di Lonardo Chiara Donfrancesco Flavia Carle Simona Giampaoli |
| author_sort | Luigi Palmieri |
| collection | DOAJ |
| description | Abstract Background Population-based registries implement the comprehensive collection of all disease events that occur in a well-characterized population within a certain time period and represent the preferred tools for disease monitoring at a population level. Main characteristics of a Population-based registry are to provide answers to defined research questions, also related to clinical and health policy purposes, assuring completeness of event identification, and implementing a process of case adjudication (validation) according to standardised diagnostic criteria. Methods The application of a standard methodology results in the availability of reliable and comparable data and facilitates the transferability of health information for research and evidence-based health policies. Although registries are extremely useful, they require considerable resources to be implemented and maintained, high cost and efforts, to produce stable and reliable indicators. Results Thanks to available health information and information technology, current administrative databases on hospital admissions and discharges, medication use, in-patient care utilization, surgical operations, drug dispensations, ticket exemption and invasive procedures are increasingly available. They represent basic sources of information for implementing Population-based registries. Main strengths and limitations of Population-based registries are described taking into consideration the example of cardiovascular diseases, as well as future challenges and opportunities for implementing Population-based registries at European level. Conclusions The integration of population-based registries and current administrative health databases may help to complete the picture of the disease rebuilding the evolution of the disease as a continuum from the onset to the possible consequent complications. |
| first_indexed | 2024-12-22T09:35:29Z |
| format | Article |
| id | doaj.art-462919a19972424ea5cf460914d15a58 |
| institution | Directory Open Access Journal |
| issn | 2049-3258 |
| language | English |
| last_indexed | 2024-12-22T09:35:29Z |
| publishDate | 2018-06-01 |
| publisher | BMC |
| record_format | Article |
| series | Archives of Public Health |
| spelling | doaj.art-462919a19972424ea5cf460914d15a582022-12-21T18:30:50ZengBMCArchives of Public Health2049-32582018-06-0176111010.1186/s13690-018-0283-3Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in EuropeLuigi Palmieri0Giovanni Veronesi1Giovanni Corrao2Giuseppe Traversa3Marco M. Ferrario4Giovanni Nicoletti5Anna Di Lonardo6Chiara Donfrancesco7Flavia Carle8Simona Giampaoli9Department of Cardiovascular, Dysmetabolic and Aging-associated Diseases, Istituto Superiore di Sanità (ISS)Research Centre in Epidemiology and Preventive Medicine, Università dell’InsubriaDepartment of Statistics and Quantitative Methods, Università di Milano-BicoccaNational Centre for Drug Research and Evaluation, Istituto Superiore di Sanità (ISS)Research Centre in Epidemiology and Preventive Medicine, Università dell’InsubriaMinistry of HealthDepartment of Cardiovascular, Dysmetabolic and Aging-associated Diseases, Istituto Superiore di Sanità (ISS)Department of Cardiovascular, Dysmetabolic and Aging-associated Diseases, Istituto Superiore di Sanità (ISS)Department of Biomedical Sciences and Public Health, Università Politecnica delle MarcheDepartment of Cardiovascular, Dysmetabolic and Aging-associated Diseases, Istituto Superiore di Sanità (ISS)Abstract Background Population-based registries implement the comprehensive collection of all disease events that occur in a well-characterized population within a certain time period and represent the preferred tools for disease monitoring at a population level. Main characteristics of a Population-based registry are to provide answers to defined research questions, also related to clinical and health policy purposes, assuring completeness of event identification, and implementing a process of case adjudication (validation) according to standardised diagnostic criteria. Methods The application of a standard methodology results in the availability of reliable and comparable data and facilitates the transferability of health information for research and evidence-based health policies. Although registries are extremely useful, they require considerable resources to be implemented and maintained, high cost and efforts, to produce stable and reliable indicators. Results Thanks to available health information and information technology, current administrative databases on hospital admissions and discharges, medication use, in-patient care utilization, surgical operations, drug dispensations, ticket exemption and invasive procedures are increasingly available. They represent basic sources of information for implementing Population-based registries. Main strengths and limitations of Population-based registries are described taking into consideration the example of cardiovascular diseases, as well as future challenges and opportunities for implementing Population-based registries at European level. Conclusions The integration of population-based registries and current administrative health databases may help to complete the picture of the disease rebuilding the evolution of the disease as a continuum from the onset to the possible consequent complications.http://link.springer.com/article/10.1186/s13690-018-0283-3Population-based registriesCardiovascular diseasesCurrent administrative health databasesRecord linkageTime trends |
| spellingShingle | Luigi Palmieri Giovanni Veronesi Giovanni Corrao Giuseppe Traversa Marco M. Ferrario Giovanni Nicoletti Anna Di Lonardo Chiara Donfrancesco Flavia Carle Simona Giampaoli Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe Archives of Public Health Population-based registries Cardiovascular diseases Current administrative health databases Record linkage Time trends |
| title | Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe |
| title_full | Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe |
| title_fullStr | Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe |
| title_full_unstemmed | Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe |
| title_short | Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe |
| title_sort | cardiovascular diseases monitoring lessons from population based registries to address future opportunities and challenges in europe |
| topic | Population-based registries Cardiovascular diseases Current administrative health databases Record linkage Time trends |
| url | http://link.springer.com/article/10.1186/s13690-018-0283-3 |
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