People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design.
The use of digital technology amongst people living with a range of long-term health conditions to support self-management has increased dramatically. More recently, digital health technologies to share and exchange personal health data with others have been investigated. Sharing personal health dat...
| Main Authors: | , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2023-05-01
|
| Series: | PLOS Digital Health |
| Online Access: | https://doi.org/10.1371/journal.pdig.0000264 |
| _version_ | 1797698599462633472 |
|---|---|
| author | Amy Rathbone Simone Stumpf Caroline Claisse Elizabeth Sillence Lynne Coventry Richard D Brown Abigail C Durrant |
| author_facet | Amy Rathbone Simone Stumpf Caroline Claisse Elizabeth Sillence Lynne Coventry Richard D Brown Abigail C Durrant |
| author_sort | Amy Rathbone |
| collection | DOAJ |
| description | The use of digital technology amongst people living with a range of long-term health conditions to support self-management has increased dramatically. More recently, digital health technologies to share and exchange personal health data with others have been investigated. Sharing personal health data with others is not without its risks: sharing data creates threats to the privacy and security of personal data and plays a role in trust, adoption and continued use of digital health technology. Our work aims to inform the design of these digital health technologies by investigating the reported intentions of sharing health data with others, the associated user experiences when using these digital health technologies and the trust, identity, privacy and security (TIPS) considerations for designing digital health technologies that support the trusted sharing of personal health data to support the self-management of long-term health conditions. To address these aims, we conducted a scoping review, analysing over 12,000 papers in the area of digital health technologies. We conducted a reflexive thematic analysis of 17 papers that described digital health technologies that support sharing of personal health data, and extracted design implications that could enhance the future development of trusted, private and secure digital health technologies. |
| first_indexed | 2024-03-12T03:56:34Z |
| format | Article |
| id | doaj.art-462f5d9bd0234764987ed4a17232a84d |
| institution | Directory Open Access Journal |
| issn | 2767-3170 |
| language | English |
| last_indexed | 2024-03-12T03:56:34Z |
| publishDate | 2023-05-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLOS Digital Health |
| spelling | doaj.art-462f5d9bd0234764987ed4a17232a84d2023-09-03T11:54:04ZengPublic Library of Science (PLoS)PLOS Digital Health2767-31702023-05-0125e000026410.1371/journal.pdig.0000264People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design.Amy RathboneSimone StumpfCaroline ClaisseElizabeth SillenceLynne CoventryRichard D BrownAbigail C DurrantThe use of digital technology amongst people living with a range of long-term health conditions to support self-management has increased dramatically. More recently, digital health technologies to share and exchange personal health data with others have been investigated. Sharing personal health data with others is not without its risks: sharing data creates threats to the privacy and security of personal data and plays a role in trust, adoption and continued use of digital health technology. Our work aims to inform the design of these digital health technologies by investigating the reported intentions of sharing health data with others, the associated user experiences when using these digital health technologies and the trust, identity, privacy and security (TIPS) considerations for designing digital health technologies that support the trusted sharing of personal health data to support the self-management of long-term health conditions. To address these aims, we conducted a scoping review, analysing over 12,000 papers in the area of digital health technologies. We conducted a reflexive thematic analysis of 17 papers that described digital health technologies that support sharing of personal health data, and extracted design implications that could enhance the future development of trusted, private and secure digital health technologies.https://doi.org/10.1371/journal.pdig.0000264 |
| spellingShingle | Amy Rathbone Simone Stumpf Caroline Claisse Elizabeth Sillence Lynne Coventry Richard D Brown Abigail C Durrant People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. PLOS Digital Health |
| title | People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. |
| title_full | People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. |
| title_fullStr | People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. |
| title_full_unstemmed | People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. |
| title_short | People with long-term conditions sharing personal health data via digital health technologies: A scoping review to inform design. |
| title_sort | people with long term conditions sharing personal health data via digital health technologies a scoping review to inform design |
| url | https://doi.org/10.1371/journal.pdig.0000264 |
| work_keys_str_mv | AT amyrathbone peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT simonestumpf peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT carolineclaisse peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT elizabethsillence peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT lynnecoventry peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT richarddbrown peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign AT abigailcdurrant peoplewithlongtermconditionssharingpersonalhealthdataviadigitalhealthtechnologiesascopingreviewtoinformdesign |