Understanding the Needs of Children With Medical Complexity

Introduction Children with medical complexity (CMC) are characterized by chronic conditions, functional limitations, technology dependence, and high health care utilization. There are limited formal training opportunities in the provision of complex care for pediatric residents. Methods We developed...

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Main Authors: Kathleen Huth, Sara Long-Gagne, Jessica Mader, Anne Marie Sbrocchi
Format: Article
Language:English
Published: Association of American Medical Colleges 2018-04-01
Series:MedEdPORTAL
Subjects:
Online Access:http://www.mededportal.org/doi/10.15766/mep_2374-8265.10709
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author Kathleen Huth
Sara Long-Gagne
Jessica Mader
Anne Marie Sbrocchi
author_facet Kathleen Huth
Sara Long-Gagne
Jessica Mader
Anne Marie Sbrocchi
author_sort Kathleen Huth
collection DOAJ
description Introduction Children with medical complexity (CMC) are characterized by chronic conditions, functional limitations, technology dependence, and high health care utilization. There are limited formal training opportunities in the provision of complex care for pediatric residents. Methods We developed a module to enable target learners to understand unique needs of CMC and the general pediatrician's role in creating a medical home. The module was piloted in a single pediatric residency program. The 60-minute session incorporated small-group activities and didactic instruction. Learners were given formative pre- and posttest questions to check understanding and completed a 1-minute paper to summarize anticipated changes in practice. Qualitative content analysis was used to identify themes in written responses. Results Fifteen pediatrics residents participated in the module at a single children's hospital. Most residents had not had a complex care clinical rotation. Themes in learner knowledge of CMC included recognizing functional limitations and recurrent health care utilization. Themes from anticipated changes in practice included having less fear/anxiety when approaching care for CMC and asking about diverse areas of need, including nonmedical. Discussion This core module was developed as part of a national systematic approach to complex care curriculum development. It has the potential to be adapted to frame a broader complex care curriculum and to be implemented with other learners in the health professions who care for this vulnerable patient population. The pilot study informed implementation in multiple residency programs, with the goal of enabling future pediatricians to provide high-quality care within a medical home for CMC.
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spelling doaj.art-4672d82b09ec46b08963fc6dae1e10ab2022-12-21T18:39:18ZengAssociation of American Medical CollegesMedEdPORTAL2374-82652018-04-011410.15766/mep_2374-8265.10709Understanding the Needs of Children With Medical ComplexityKathleen Huth0Sara Long-Gagne1Jessica Mader2Anne Marie Sbrocchi3Instructor, Pediatrics, Harvard Medical SchoolAssistant Professor, Pediatrics, McGill University Health CentreSecondary School Teacher, Estes Park Middle School, ColoradoAssistant Professor, Pediatrics, McGill University Health CentreIntroduction Children with medical complexity (CMC) are characterized by chronic conditions, functional limitations, technology dependence, and high health care utilization. There are limited formal training opportunities in the provision of complex care for pediatric residents. Methods We developed a module to enable target learners to understand unique needs of CMC and the general pediatrician's role in creating a medical home. The module was piloted in a single pediatric residency program. The 60-minute session incorporated small-group activities and didactic instruction. Learners were given formative pre- and posttest questions to check understanding and completed a 1-minute paper to summarize anticipated changes in practice. Qualitative content analysis was used to identify themes in written responses. Results Fifteen pediatrics residents participated in the module at a single children's hospital. Most residents had not had a complex care clinical rotation. Themes in learner knowledge of CMC included recognizing functional limitations and recurrent health care utilization. Themes from anticipated changes in practice included having less fear/anxiety when approaching care for CMC and asking about diverse areas of need, including nonmedical. Discussion This core module was developed as part of a national systematic approach to complex care curriculum development. It has the potential to be adapted to frame a broader complex care curriculum and to be implemented with other learners in the health professions who care for this vulnerable patient population. The pilot study informed implementation in multiple residency programs, with the goal of enabling future pediatricians to provide high-quality care within a medical home for CMC.http://www.mededportal.org/doi/10.15766/mep_2374-8265.10709Editor's ChoicePediatricsComplex CareMedical Home
spellingShingle Kathleen Huth
Sara Long-Gagne
Jessica Mader
Anne Marie Sbrocchi
Understanding the Needs of Children With Medical Complexity
MedEdPORTAL
Editor's Choice
Pediatrics
Complex Care
Medical Home
title Understanding the Needs of Children With Medical Complexity
title_full Understanding the Needs of Children With Medical Complexity
title_fullStr Understanding the Needs of Children With Medical Complexity
title_full_unstemmed Understanding the Needs of Children With Medical Complexity
title_short Understanding the Needs of Children With Medical Complexity
title_sort understanding the needs of children with medical complexity
topic Editor's Choice
Pediatrics
Complex Care
Medical Home
url http://www.mededportal.org/doi/10.15766/mep_2374-8265.10709
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