Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians

Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One...

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Main Authors: Sven Kernebeck, Theresa Sophie Busse, Chantal Jux, Dorothee Meyer, Larissa Alice Dreier, Daniel Zenz, Boris Zernikow, Jan Peter Ehlers
Format: Article
Language:English
Published: MDPI AG 2021-08-01
Series:Children
Subjects:
Online Access:https://www.mdpi.com/2227-9067/8/8/695
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author Sven Kernebeck
Theresa Sophie Busse
Chantal Jux
Dorothee Meyer
Larissa Alice Dreier
Daniel Zenz
Boris Zernikow
Jan Peter Ehlers
author_facet Sven Kernebeck
Theresa Sophie Busse
Chantal Jux
Dorothee Meyer
Larissa Alice Dreier
Daniel Zenz
Boris Zernikow
Jan Peter Ehlers
author_sort Sven Kernebeck
collection DOAJ
description Background: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (<i>n</i> = 10 nurses, <i>n</i> = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.
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spelling doaj.art-46bf4d22706c46eab5881d338a3a55d12023-11-22T07:14:34ZengMDPI AGChildren2227-90672021-08-018869510.3390/children8080695Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and PhysiciansSven Kernebeck0Theresa Sophie Busse1Chantal Jux2Dorothee Meyer3Larissa Alice Dreier4Daniel Zenz5Boris Zernikow6Jan Peter Ehlers7Chair of Didactics and Educational Research in Health Science, Faculty of Health, Witten/Herdecke University, 58448 Witten, GermanyChair of Didactics and Educational Research in Health Science, Faculty of Health, Witten/Herdecke University, 58448 Witten, GermanyChair of Didactics and Educational Research in Health Science, Faculty of Health, Witten/Herdecke University, 58448 Witten, GermanyPedScience Research Institute, 45711 Datteln, GermanyPedScience Research Institute, 45711 Datteln, GermanySmart-Q Softwaresysteme GmbH, Lise-Meitner-Allee 4, 44801 Bochum, GermanyPedScience Research Institute, 45711 Datteln, GermanyChair of Didactics and Educational Research in Health Science, Faculty of Health, Witten/Herdecke University, 58448 Witten, GermanyBackground: Electronic medical records (EMRs) offer a promising approach to mapping and documenting the complex information gathered in paediatric palliative care (PPC). However, if they are not well developed, poorly implemented EMRs have unintended consequences that may cause harm to patients. One approach to preventing such harm is the involvement of users in the participatory design to ensure user acceptance and patient safety. Therefore, the aim of this study is to evaluate the acceptance of a novel patient chart module (PCM) as part of an EMR from the perspective of potential users in PPC and to involve these professionals in the design process. Methods: A qualitative observational study with N = 16 PPC professionals (<i>n</i> = 10 nurses, <i>n</i> = 6 physicians) was conducted, including concurrent think aloud (CTA) and semi-structured interviews. A structured content analysis based on the Unified Theory of Acceptance and Use of Technology was applied. Results: The results can be summarized in terms of general observations, performance expectancy, effort expectancy and facilitating conditions, all of which are likely to have a positive influence on acceptance of the PCM from the user perspective in the context of PPC. Conclusions: The involvement of users in the development of EMRs is important for meeting the requirements in PPC. Further software adaptations are necessary to implement these requirements.https://www.mdpi.com/2227-9067/8/8/695palliative carepaediatricsparticipatory designelectronic health recordselectronic medical recordstechnology acceptance
spellingShingle Sven Kernebeck
Theresa Sophie Busse
Chantal Jux
Dorothee Meyer
Larissa Alice Dreier
Daniel Zenz
Boris Zernikow
Jan Peter Ehlers
Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
Children
palliative care
paediatrics
participatory design
electronic health records
electronic medical records
technology acceptance
title Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
title_full Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
title_fullStr Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
title_full_unstemmed Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
title_short Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
title_sort participatory design of an electronic medical record for paediatric palliative care a think aloud study with nurses and physicians
topic palliative care
paediatrics
participatory design
electronic health records
electronic medical records
technology acceptance
url https://www.mdpi.com/2227-9067/8/8/695
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