Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home

Abstract Background Patients with a stroke often cannot care for themselves after hospital discharge. Assessment of their self-care ability is the first step in planning post-discharge home care. This study aimed to design and validate a measure of perceived self-care ability (PSCA) in stroke patien...

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Main Authors: Nasrin Jafari-golestan, Asghar Dalvandi, Mohammadali Hosseini, Masoud Fallahi-Khoshknab, Abbas Ebadi, Mahdi Rahgozar, Sidani Souraya
Format: Article
Language:English
Published: BMC 2024-04-01
Series:BMC Neurology
Subjects:
Online Access:https://doi.org/10.1186/s12883-024-03612-4
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author Nasrin Jafari-golestan
Asghar Dalvandi
Mohammadali Hosseini
Masoud Fallahi-Khoshknab
Abbas Ebadi
Mahdi Rahgozar
Sidani Souraya
author_facet Nasrin Jafari-golestan
Asghar Dalvandi
Mohammadali Hosseini
Masoud Fallahi-Khoshknab
Abbas Ebadi
Mahdi Rahgozar
Sidani Souraya
author_sort Nasrin Jafari-golestan
collection DOAJ
description Abstract Background Patients with a stroke often cannot care for themselves after hospital discharge. Assessment of their self-care ability is the first step in planning post-discharge home care. This study aimed to design and validate a measure of perceived self-care ability (PSCA) in stroke patients. Methods A sequential-exploratory mixed method was conducted in Tehran, Iran, in 2020–2021. The qualitative phase involved in-depth semi-structured interviews with 12 participants. Transcripts were content analyzed. The results guided the development of 81 items. psychometric properties such as face validity (Impact Score > 1.5), content validity ratio (CVR > 0.63), content validity index (Item Content Validity Index: ICVI > 0.78, Scale Content Validity Index/Average: SCVI/Ave > 0.8) and Kappa value (Kappa > 0.7), internal consistency (Cronbach’s alpha > 0.7), relative reliability (ICC: inter class correlation coefficient), absolute reliability (Standard Error of Measurement: SEM and Minimal Detectable Changes: MDC), convergent validity (Correlation Coefficient between 0.4–0.7), interpretability, responsiveness, feasibility, and ceiling and floor effects were assessed. Results Content analysis of the qualitative interviews yielded 5 major categories and 9 subcategories that reflected "Perceptual stability", "Cognitive fluctuations", "Sensory, Motor and Physical health",” The subjective nature" and "The dynamic nature” of PSCA. Results of face and content validity reduced the number of items to 32, capturing three dimensions of PSCA in chronic stroke patients; these dimensions included perceptual ability, threatened health status, and sensory, motor, and cognitive ability. The findings supported the reliability and validity of the measure. Conclusions The PSCA questionnaire was developed and validated within the Iranian culture. It is useful in assessing the self-care of patients with stroke and in informing practice.
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spelling doaj.art-48a365c5228d4d14aa78744571bdafe32024-04-21T11:22:30ZengBMCBMC Neurology1471-23772024-04-0124111410.1186/s12883-024-03612-4Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at homeNasrin Jafari-golestan0Asghar Dalvandi1Mohammadali Hosseini2Masoud Fallahi-Khoshknab3Abbas Ebadi4Mahdi Rahgozar5Sidani Souraya6Faculty of Nursing, Department of Nursing Management, Aja University of Medical SciencesDepartment of Midwifery, Faculty of Nursing and Midwifery, Islamic Azad UniversityDepartment of Nursing Education, University of Social Welfare and Rehabilitation SciencesDepartment of Nursing Education, University of Social Welfare and Rehabilitation SciencesBehavioral Sciences Research Center, Life Style Institute, Baqiyatallah University of Medical SciencesDepartment of Biomedical Statistics, University of Social Welfare and Rehabilitation SciencesSchool of Nursing, Toronto Metropolitan UniversityAbstract Background Patients with a stroke often cannot care for themselves after hospital discharge. Assessment of their self-care ability is the first step in planning post-discharge home care. This study aimed to design and validate a measure of perceived self-care ability (PSCA) in stroke patients. Methods A sequential-exploratory mixed method was conducted in Tehran, Iran, in 2020–2021. The qualitative phase involved in-depth semi-structured interviews with 12 participants. Transcripts were content analyzed. The results guided the development of 81 items. psychometric properties such as face validity (Impact Score > 1.5), content validity ratio (CVR > 0.63), content validity index (Item Content Validity Index: ICVI > 0.78, Scale Content Validity Index/Average: SCVI/Ave > 0.8) and Kappa value (Kappa > 0.7), internal consistency (Cronbach’s alpha > 0.7), relative reliability (ICC: inter class correlation coefficient), absolute reliability (Standard Error of Measurement: SEM and Minimal Detectable Changes: MDC), convergent validity (Correlation Coefficient between 0.4–0.7), interpretability, responsiveness, feasibility, and ceiling and floor effects were assessed. Results Content analysis of the qualitative interviews yielded 5 major categories and 9 subcategories that reflected "Perceptual stability", "Cognitive fluctuations", "Sensory, Motor and Physical health",” The subjective nature" and "The dynamic nature” of PSCA. Results of face and content validity reduced the number of items to 32, capturing three dimensions of PSCA in chronic stroke patients; these dimensions included perceptual ability, threatened health status, and sensory, motor, and cognitive ability. The findings supported the reliability and validity of the measure. Conclusions The PSCA questionnaire was developed and validated within the Iranian culture. It is useful in assessing the self-care of patients with stroke and in informing practice.https://doi.org/10.1186/s12883-024-03612-4Perceived Self-Care Ability QuestionnaireChronicMixed methodPsychometricStroke
spellingShingle Nasrin Jafari-golestan
Asghar Dalvandi
Mohammadali Hosseini
Masoud Fallahi-Khoshknab
Abbas Ebadi
Mahdi Rahgozar
Sidani Souraya
Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
BMC Neurology
Perceived Self-Care Ability Questionnaire
Chronic
Mixed method
Psychometric
Stroke
title Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
title_full Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
title_fullStr Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
title_full_unstemmed Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
title_short Designing and validating of a questionnaire measuring perceived self-care ability (PSCA) in chronic stroke patients at home
title_sort designing and validating of a questionnaire measuring perceived self care ability psca in chronic stroke patients at home
topic Perceived Self-Care Ability Questionnaire
Chronic
Mixed method
Psychometric
Stroke
url https://doi.org/10.1186/s12883-024-03612-4
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