Families' concerns about the care of children with technology-dependent special health care needs

Objective.To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns. Methodology. Qualitative descriptive research, developed through February and March 2...

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Main Authors: Joyce de Souza Esteves, Liliane Faria da Silva, Daniele Santos da Conceição, Eny Dórea Paiva
Format: Article
Language:English
Published: Universidad de Antioquia 2015-12-01
Series:Investigación y Educación en Enfermería
Subjects:
Online Access:http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072015000300019&lng=en&tlng=en
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author Joyce de Souza Esteves
Liliane Faria da Silva
Daniele Santos da Conceição
Eny Dórea Paiva
author_facet Joyce de Souza Esteves
Liliane Faria da Silva
Daniele Santos da Conceição
Eny Dórea Paiva
author_sort Joyce de Souza Esteves
collection DOAJ
description Objective.To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns. Methodology. Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members' home. Data were submitted to content analysis. Results. Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge. Conclusion. The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.
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spelling doaj.art-49c2f49ae0b34ffba32d1232daefc3252023-12-02T19:25:22ZengUniversidad de AntioquiaInvestigación y Educación en Enfermería0120-53072015-12-0133354755510.17533/udea.iee.v33n3a19S0120-53072015000300019Families' concerns about the care of children with technology-dependent special health care needsJoyce de Souza Esteves0Liliane Faria da Silva1Daniele Santos da Conceição2Eny Dórea Paiva3Fluminense Federal University - UFFFluminense Federal University - UFFInstitute Fernandes Figueira - IFFUFFObjective.To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns. Methodology. Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members' home. Data were submitted to content analysis. Results. Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge. Conclusion. The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072015000300019&lng=en&tlng=enenfermería pediátricaniños con discapacidadla comunicación en salud
spellingShingle Joyce de Souza Esteves
Liliane Faria da Silva
Daniele Santos da Conceição
Eny Dórea Paiva
Families' concerns about the care of children with technology-dependent special health care needs
Investigación y Educación en Enfermería
enfermería pediátrica
niños con discapacidad
la comunicación en salud
title Families' concerns about the care of children with technology-dependent special health care needs
title_full Families' concerns about the care of children with technology-dependent special health care needs
title_fullStr Families' concerns about the care of children with technology-dependent special health care needs
title_full_unstemmed Families' concerns about the care of children with technology-dependent special health care needs
title_short Families' concerns about the care of children with technology-dependent special health care needs
title_sort families concerns about the care of children with technology dependent special health care needs
topic enfermería pediátrica
niños con discapacidad
la comunicación en salud
url http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072015000300019&lng=en&tlng=en
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