User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease

Objective There has been tremendous growth in wearable technologies for health monitoring but limited efforts to optimize methods for sharing wearables-derived information with older adults and clinical cohorts. This study aimed to co-develop, design and evaluate a personalized approach for informat...

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Main Authors: Karen Van Ooteghem, F Elizabeth Godkin, Vanessa Thai, Kit B Beyer, Benjamin F Cornish, Kyle S Weber, Hannah Bernstein, Soha O Kheiri, Richard H Swartz, Brian Tan, William E McIlroy, Angela C Roberts
Format: Article
Language:English
Published: SAGE Publishing 2023-06-01
Series:Digital Health
Online Access:https://doi.org/10.1177/20552076231179031
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author Karen Van Ooteghem
F Elizabeth Godkin
Vanessa Thai
Kit B Beyer
Benjamin F Cornish
Kyle S Weber
Hannah Bernstein
Soha O Kheiri
Richard H Swartz
Brian Tan
William E McIlroy
Angela C Roberts
author_facet Karen Van Ooteghem
F Elizabeth Godkin
Vanessa Thai
Kit B Beyer
Benjamin F Cornish
Kyle S Weber
Hannah Bernstein
Soha O Kheiri
Richard H Swartz
Brian Tan
William E McIlroy
Angela C Roberts
author_sort Karen Van Ooteghem
collection DOAJ
description Objective There has been tremendous growth in wearable technologies for health monitoring but limited efforts to optimize methods for sharing wearables-derived information with older adults and clinical cohorts. This study aimed to co-develop, design and evaluate a personalized approach for information-sharing regarding daily health-related behaviors captured with wearables. Methods A participatory research approach was adopted with: (a) iterative stakeholder, and evidence-led development of feedback reporting; and (b) evaluation in a sample of older adults (n  =  15) and persons living with neurodegenerative disease (NDD) (n  =  25). Stakeholders included persons with lived experience, healthcare providers, health charity representatives and individuals involved in aging/NDD research. Feedback report information was custom-derived from two limb-mounted inertial measurement units and a mobile electrocardiography device worn by participants for 7–10 days. Mixed methods were used to evaluate reporting 2 weeks following delivery. Data were summarized using descriptive statistics for the group and stratified by cohort and cognitive status. Results Participants (n  =  40) were 60% female (median 72 (60–87) years). A total of 82.5% found the report easy to read or understand, 80% reported the right amount of information was shared, 90% found the information helpful, 92% shared the information with a family member or friend and 57.5% made a behavior change. Differences emerged in sub-group comparisons. A range of participant profiles existed in terms of interest, uptake and utility. Conclusions The reporting approach was generally well-received with perceived value that translated into enhanced self-awareness and self-management of daily health-related behaviors. Future work should examine potential for scale, and the capacity for wearables-derived feedback to influence longer-term behavior change.
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spelling doaj.art-4a079916751d45bfa5e4ad927ce878b82023-06-06T08:33:24ZengSAGE PublishingDigital Health2055-20762023-06-01910.1177/20552076231179031User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative diseaseKaren Van Ooteghem0F Elizabeth Godkin1Vanessa Thai2Kit B Beyer3Benjamin F Cornish4Kyle S Weber5Hannah Bernstein6Soha O Kheiri7Richard H Swartz8Brian Tan9William E McIlroy10Angela C Roberts11 Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Department of Nanotechnology Engineering, , Waterloo, ON, Canada Department of Systems Design Engineering, , Waterloo, ON, Canada Department of Medicine (Neurology), , University of Toronto, Toronto, ON, Canada Rotman Research Institute, , Toronto, ON, Canada Department of Kinesiology and Health Sciences, , Waterloo, ON, Canada Canadian Centre for Activity and Aging, , London, ON, CanadaObjective There has been tremendous growth in wearable technologies for health monitoring but limited efforts to optimize methods for sharing wearables-derived information with older adults and clinical cohorts. This study aimed to co-develop, design and evaluate a personalized approach for information-sharing regarding daily health-related behaviors captured with wearables. Methods A participatory research approach was adopted with: (a) iterative stakeholder, and evidence-led development of feedback reporting; and (b) evaluation in a sample of older adults (n  =  15) and persons living with neurodegenerative disease (NDD) (n  =  25). Stakeholders included persons with lived experience, healthcare providers, health charity representatives and individuals involved in aging/NDD research. Feedback report information was custom-derived from two limb-mounted inertial measurement units and a mobile electrocardiography device worn by participants for 7–10 days. Mixed methods were used to evaluate reporting 2 weeks following delivery. Data were summarized using descriptive statistics for the group and stratified by cohort and cognitive status. Results Participants (n  =  40) were 60% female (median 72 (60–87) years). A total of 82.5% found the report easy to read or understand, 80% reported the right amount of information was shared, 90% found the information helpful, 92% shared the information with a family member or friend and 57.5% made a behavior change. Differences emerged in sub-group comparisons. A range of participant profiles existed in terms of interest, uptake and utility. Conclusions The reporting approach was generally well-received with perceived value that translated into enhanced self-awareness and self-management of daily health-related behaviors. Future work should examine potential for scale, and the capacity for wearables-derived feedback to influence longer-term behavior change.https://doi.org/10.1177/20552076231179031
spellingShingle Karen Van Ooteghem
F Elizabeth Godkin
Vanessa Thai
Kit B Beyer
Benjamin F Cornish
Kyle S Weber
Hannah Bernstein
Soha O Kheiri
Richard H Swartz
Brian Tan
William E McIlroy
Angela C Roberts
User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
Digital Health
title User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
title_full User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
title_fullStr User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
title_full_unstemmed User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
title_short User-centered design of feedback regarding health-related behaviors derived from wearables: An approach targeting older adults and persons living with neurodegenerative disease
title_sort user centered design of feedback regarding health related behaviors derived from wearables an approach targeting older adults and persons living with neurodegenerative disease
url https://doi.org/10.1177/20552076231179031
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