Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family
Background: Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL). Objective: To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998?2016 (n?=?43,405). Methods: Usi...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Mary Ann Liebert
2023-11-01
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| Series: | Palliative Medicine Reports |
| Subjects: | |
| Online Access: | https://www.liebertpub.com/doi/full/10.1089/PMR.2023.0023 |
| _version_ | 1797346080951631872 |
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| author | Caroline E. Stephens Djin Tay Eli Iacob Michael Hollinghaus Rebecca Goodwin Brenna Kelly Ken Smith Lee Ellington Rebecca Utz Katherine Ornstein |
| author_facet | Caroline E. Stephens Djin Tay Eli Iacob Michael Hollinghaus Rebecca Goodwin Brenna Kelly Ken Smith Lee Ellington Rebecca Utz Katherine Ornstein |
| author_sort | Caroline E. Stephens |
| collection | DOAJ |
| description | Background: Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL).
Objective: To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998?2016 (n?=?43,405).
Methods: Using the Utah Population Caregiving Database, we linked NH decedents to their FDF (n?=?124,419; spouses?=?10.8%; children?=?55.3%; siblings?=?32.3%) and compared sociodemographic and death characteristics of those with and without FDF members (n?=?9424).
Results: Compared to NH decedents with FDF (78.3%), those without (21.7%) were more likely to be female (64.7% vs. 57.1%), non-White/Hispanic (11.2% vs. 4.2%), less educated (<9th grade; 41.1% vs. 32.4%), and die in a rural/frontier NH (25.3% vs. 24.0%, all p?<?0.001). Despite similar levels of disease burden (Charlson Comorbidity score 3?+?37.7% vs. 38.0%), those without FDF were more likely to die from cancer (14.2% vs. 12.4%), Chronic Obstructive Pulmonary Disease (COPD) (6.0% vs. 4.0%), and dementia (17.1% vs. 16.6%, all p?<?0.001), and were less likely to have 2+ hospitalizations at EOL (20.5% vs. 22.4%, p?<?0.001).
Conclusions: Among NH decedents, those with and without FDF have different sociodemographic and death characteristics?factors that may impact care at EOL. Understanding the nature of FDF relationship type on NH resident EOL care trajectories and outcomes is an important next step in clarifying the role of families of persons living and dying in NHs. |
| first_indexed | 2024-03-08T11:27:42Z |
| format | Article |
| id | doaj.art-4a31f75d47584c45a6980cbe45a6b418 |
| institution | Directory Open Access Journal |
| issn | 2689-2820 |
| language | English |
| last_indexed | 2024-03-08T11:27:42Z |
| publishDate | 2023-11-01 |
| publisher | Mary Ann Liebert |
| record_format | Article |
| series | Palliative Medicine Reports |
| spelling | doaj.art-4a31f75d47584c45a6980cbe45a6b4182024-01-26T05:07:51ZengMary Ann LiebertPalliative Medicine Reports2689-28202023-11-014130831510.1089/PMR.2023.0023Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without FamilyCaroline E. StephensDjin TayEli IacobMichael HollinghausRebecca GoodwinBrenna KellyKen SmithLee EllingtonRebecca UtzKatherine OrnsteinBackground: Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL). Objective: To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998?2016 (n?=?43,405). Methods: Using the Utah Population Caregiving Database, we linked NH decedents to their FDF (n?=?124,419; spouses?=?10.8%; children?=?55.3%; siblings?=?32.3%) and compared sociodemographic and death characteristics of those with and without FDF members (n?=?9424). Results: Compared to NH decedents with FDF (78.3%), those without (21.7%) were more likely to be female (64.7% vs. 57.1%), non-White/Hispanic (11.2% vs. 4.2%), less educated (<9th grade; 41.1% vs. 32.4%), and die in a rural/frontier NH (25.3% vs. 24.0%, all p?<?0.001). Despite similar levels of disease burden (Charlson Comorbidity score 3?+?37.7% vs. 38.0%), those without FDF were more likely to die from cancer (14.2% vs. 12.4%), Chronic Obstructive Pulmonary Disease (COPD) (6.0% vs. 4.0%), and dementia (17.1% vs. 16.6%, all p?<?0.001), and were less likely to have 2+ hospitalizations at EOL (20.5% vs. 22.4%, p?<?0.001). Conclusions: Among NH decedents, those with and without FDF have different sociodemographic and death characteristics?factors that may impact care at EOL. Understanding the nature of FDF relationship type on NH resident EOL care trajectories and outcomes is an important next step in clarifying the role of families of persons living and dying in NHs.https://www.liebertpub.com/doi/full/10.1089/PMR.2023.0023deathend of lifefamilyhospitalizationnursing homerural |
| spellingShingle | Caroline E. Stephens Djin Tay Eli Iacob Michael Hollinghaus Rebecca Goodwin Brenna Kelly Ken Smith Lee Ellington Rebecca Utz Katherine Ornstein Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family Palliative Medicine Reports death end of life family hospitalization nursing home rural |
| title | Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family |
| title_full | Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family |
| title_fullStr | Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family |
| title_full_unstemmed | Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family |
| title_short | Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family |
| title_sort | family ties at end of life characteristics of nursing home decedents with and without family |
| topic | death end of life family hospitalization nursing home rural |
| url | https://www.liebertpub.com/doi/full/10.1089/PMR.2023.0023 |
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