Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is...
| Main Authors: | , , |
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| Format: | Article |
| Language: | fra |
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Association Anthropologie Médicale Appliquée au Développement et à la Santé
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| Series: | Anthropologie & Santé |
| Subjects: | |
| Online Access: | https://journals.openedition.org/anthropologiesante/9819 |
| _version_ | 1797308807515209728 |
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| author | Sylvie Fortin Sabrina Lessard Josiane Le Gall |
| author_facet | Sylvie Fortin Sabrina Lessard Josiane Le Gall |
| author_sort | Sylvie Fortin |
| collection | DOAJ |
| description | In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine. |
| first_indexed | 2024-03-08T01:17:04Z |
| format | Article |
| id | doaj.art-4a3727d2d78749ed89ab8270a572f375 |
| institution | Directory Open Access Journal |
| issn | 2111-5028 |
| language | fra |
| last_indexed | 2024-03-08T01:17:04Z |
| publisher | Association Anthropologie Médicale Appliquée au Développement et à la Santé |
| record_format | Article |
| series | Anthropologie & Santé |
| spelling | doaj.art-4a3727d2d78749ed89ab8270a572f3752024-02-14T14:39:47ZfraAssociation Anthropologie Médicale Appliquée au Développement et à la SantéAnthropologie & Santé2111-50282310.4000/anthropologiesante.9819Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalaisSylvie FortinSabrina LessardJosiane Le GallIn pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine.https://journals.openedition.org/anthropologiesante/9819end of lifedecision-makingcare trajectoriespediatric hematology-oncologyCanada/Québec |
| spellingShingle | Sylvie Fortin Sabrina Lessard Josiane Le Gall Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais Anthropologie & Santé end of life decision-making care trajectories pediatric hematology-oncology Canada/Québec |
| title | Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais |
| title_full | Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais |
| title_fullStr | Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais |
| title_full_unstemmed | Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais |
| title_short | Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais |
| title_sort | envisager l improbable contourner l inconcevable histoires de fin de vie en hemato oncologie pediatrique montrealais |
| topic | end of life decision-making care trajectories pediatric hematology-oncology Canada/Québec |
| url | https://journals.openedition.org/anthropologiesante/9819 |
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