Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma
A range of literature has explored the experience of living with a long-term condition (LTC), and frequently treats such experiences and conditions as problematic. In contrast, other research has demonstrated that it may be possible to adapt and achieve well-being, even when living with such a condi...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2016-08-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
| Subjects: | |
| Online Access: | http://www.ijqhw.net/index.php/qhw/article/view/31530/48254 |
| _version_ | 1811322664638218240 |
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| author | Jennifer K. Roddis Immy Holloway Carol Bond Kathleen T. Galvin |
| author_facet | Jennifer K. Roddis Immy Holloway Carol Bond Kathleen T. Galvin |
| author_sort | Jennifer K. Roddis |
| collection | DOAJ |
| description | A range of literature has explored the experience of living with a long-term condition (LTC), and frequently treats such experiences and conditions as problematic. In contrast, other research has demonstrated that it may be possible to adapt and achieve well-being, even when living with such a condition. This tends to focus on meaning and the qualitative experience of living with an LTC, and offers alternative perspectives, often of the same or similar conditions. As a result of these conflicting views, this study chose to consider two conditions which, though they may lead to life-threatening illness on occasion, do not appear to impact significantly the lives of all those affected on a daily basis. The aim of this research was to explore and explain how people make sense of two long-term, potentially life-threatening health conditions, namely, thrombophilia and asthma. In doing so, it specifically considered the contribution made by information about the condition. A constructivist grounded theory approach was adopted; this enabled the generation of a theory regarding how people make sense of their LTC, whilst acknowledging the social circumstances in which this was situated. Semi-structured interviews were conducted with 16 participants who had given consent to take part in the research. The findings demonstrate that participants undergo a two-stage process—gaining knowledge and living with a long-term condition. The theory based on these findings indicates that those who are knowledgeable about their condition, making informed decisions in relation to it, and accept their condition are able to live with it, whilst those who do not accept their condition do not fully adapt to it or integrate it into their lives. |
| first_indexed | 2024-04-13T13:39:57Z |
| format | Article |
| id | doaj.art-4af5dc3ed3af4b158d71bf8fe77e4f56 |
| institution | Directory Open Access Journal |
| issn | 1748-2631 |
| language | English |
| last_indexed | 2024-04-13T13:39:57Z |
| publishDate | 2016-08-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj.art-4af5dc3ed3af4b158d71bf8fe77e4f562022-12-22T02:44:40ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26312016-08-0111011010.3402/qhw.v11.3153031530Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthmaJennifer K. Roddis0Immy Holloway1Carol Bond2Kathleen T. Galvin3 Faculty of Health and Social Sciences at Bournemouth University, Bournemouth, UK Faculty of Health and Social Sciences at Bournemouth University, Bournemouth, UK Faculty of Health and Social Sciences at Bournemouth University, Bournemouth, UK College of Life, Health and Physical Sciences, University of Brighton, UKA range of literature has explored the experience of living with a long-term condition (LTC), and frequently treats such experiences and conditions as problematic. In contrast, other research has demonstrated that it may be possible to adapt and achieve well-being, even when living with such a condition. This tends to focus on meaning and the qualitative experience of living with an LTC, and offers alternative perspectives, often of the same or similar conditions. As a result of these conflicting views, this study chose to consider two conditions which, though they may lead to life-threatening illness on occasion, do not appear to impact significantly the lives of all those affected on a daily basis. The aim of this research was to explore and explain how people make sense of two long-term, potentially life-threatening health conditions, namely, thrombophilia and asthma. In doing so, it specifically considered the contribution made by information about the condition. A constructivist grounded theory approach was adopted; this enabled the generation of a theory regarding how people make sense of their LTC, whilst acknowledging the social circumstances in which this was situated. Semi-structured interviews were conducted with 16 participants who had given consent to take part in the research. The findings demonstrate that participants undergo a two-stage process—gaining knowledge and living with a long-term condition. The theory based on these findings indicates that those who are knowledgeable about their condition, making informed decisions in relation to it, and accept their condition are able to live with it, whilst those who do not accept their condition do not fully adapt to it or integrate it into their lives.http://www.ijqhw.net/index.php/qhw/article/view/31530/48254Long-term conditionasthmathrombophilialiving withgaining knowledgepatient perspectivequalitativeconstructivist grounded theory |
| spellingShingle | Jennifer K. Roddis Immy Holloway Carol Bond Kathleen T. Galvin Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma International Journal of Qualitative Studies on Health & Well-Being Long-term condition asthma thrombophilia living with gaining knowledge patient perspective qualitative constructivist grounded theory |
| title | Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma |
| title_full | Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma |
| title_fullStr | Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma |
| title_full_unstemmed | Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma |
| title_short | Living with a long-term condition: Understanding well-being for individuals with thrombophilia or asthma |
| title_sort | living with a long term condition understanding well being for individuals with thrombophilia or asthma |
| topic | Long-term condition asthma thrombophilia living with gaining knowledge patient perspective qualitative constructivist grounded theory |
| url | http://www.ijqhw.net/index.php/qhw/article/view/31530/48254 |
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