Influence of the environment on participation in social roles for young adults with down syndrome.

The concept of disability is now understood as a result of the interaction between the individual, features related to impairment, and the physical and social environment. It is important to understand these environmental influences and how they affect social participation. The purpose of this study...

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Main Authors: Kitty-Rose Foley, Sonya Girdler, Jenny Bourke, Peter Jacoby, Gwynnyth Llewellyn, Stewart Einfeld, Bruce Tonge, Trevor R Parmenter, Helen Leonard
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2014-01-01
Series:PLoS ONE
Online Access:http://europepmc.org/articles/PMC4178155?pdf=render
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author Kitty-Rose Foley
Sonya Girdler
Jenny Bourke
Peter Jacoby
Gwynnyth Llewellyn
Stewart Einfeld
Bruce Tonge
Trevor R Parmenter
Helen Leonard
author_facet Kitty-Rose Foley
Sonya Girdler
Jenny Bourke
Peter Jacoby
Gwynnyth Llewellyn
Stewart Einfeld
Bruce Tonge
Trevor R Parmenter
Helen Leonard
author_sort Kitty-Rose Foley
collection DOAJ
description The concept of disability is now understood as a result of the interaction between the individual, features related to impairment, and the physical and social environment. It is important to understand these environmental influences and how they affect social participation. The purpose of this study is to describe the social participation of young adults with Down syndrome and examine its relationship with the physical and social environment.Families ascertained from the Down syndrome 'Needs Opinion Wishes' database completed questionnaires during 2011. The questionnaires contained two parts, young person characteristics and family characteristics. Young adults' social participation was measured using the Assessment of Life Habits (LIFE-H) and the influences of environmental factors were measured by the Measure of the Quality of the Environment (MQE). The analysis involved descriptive statistics and linear and logistic regression.Overall, participation in daily activities was higher (mean 6.45) than in social roles (mean 5.17) (range 0 to 9). When the physical and/or social environment was reported as a facilitator, compared to being no influence or a barrier, participation in social roles was greater (coef 0.89, 95%CI 0.28, 1.52, coef 0.83, 95%CI 0.17, 1.49, respectively). The relationships between participation and both the physical (coef 0.60, 95% CI -0.40, 1.24) and social (coef 0.20, 95%CI -0.47, 0.87) environments were reduced when age, gender, behavior and functioning in ADL were taken into account.We found that young adults' participation in social roles was influenced more by the physical environment than by the social environment, providing a potentially modifiable avenue for intervention.
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spelling doaj.art-4c0ba880097344a89bc8b6f22effbf032022-12-22T00:11:22ZengPublic Library of Science (PLoS)PLoS ONE1932-62032014-01-0199e10841310.1371/journal.pone.0108413Influence of the environment on participation in social roles for young adults with down syndrome.Kitty-Rose FoleySonya GirdlerJenny BourkePeter JacobyGwynnyth LlewellynStewart EinfeldBruce TongeTrevor R ParmenterHelen LeonardThe concept of disability is now understood as a result of the interaction between the individual, features related to impairment, and the physical and social environment. It is important to understand these environmental influences and how they affect social participation. The purpose of this study is to describe the social participation of young adults with Down syndrome and examine its relationship with the physical and social environment.Families ascertained from the Down syndrome 'Needs Opinion Wishes' database completed questionnaires during 2011. The questionnaires contained two parts, young person characteristics and family characteristics. Young adults' social participation was measured using the Assessment of Life Habits (LIFE-H) and the influences of environmental factors were measured by the Measure of the Quality of the Environment (MQE). The analysis involved descriptive statistics and linear and logistic regression.Overall, participation in daily activities was higher (mean 6.45) than in social roles (mean 5.17) (range 0 to 9). When the physical and/or social environment was reported as a facilitator, compared to being no influence or a barrier, participation in social roles was greater (coef 0.89, 95%CI 0.28, 1.52, coef 0.83, 95%CI 0.17, 1.49, respectively). The relationships between participation and both the physical (coef 0.60, 95% CI -0.40, 1.24) and social (coef 0.20, 95%CI -0.47, 0.87) environments were reduced when age, gender, behavior and functioning in ADL were taken into account.We found that young adults' participation in social roles was influenced more by the physical environment than by the social environment, providing a potentially modifiable avenue for intervention.http://europepmc.org/articles/PMC4178155?pdf=render
spellingShingle Kitty-Rose Foley
Sonya Girdler
Jenny Bourke
Peter Jacoby
Gwynnyth Llewellyn
Stewart Einfeld
Bruce Tonge
Trevor R Parmenter
Helen Leonard
Influence of the environment on participation in social roles for young adults with down syndrome.
PLoS ONE
title Influence of the environment on participation in social roles for young adults with down syndrome.
title_full Influence of the environment on participation in social roles for young adults with down syndrome.
title_fullStr Influence of the environment on participation in social roles for young adults with down syndrome.
title_full_unstemmed Influence of the environment on participation in social roles for young adults with down syndrome.
title_short Influence of the environment on participation in social roles for young adults with down syndrome.
title_sort influence of the environment on participation in social roles for young adults with down syndrome
url http://europepmc.org/articles/PMC4178155?pdf=render
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