Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada.
Objectives We will enrich the cancer research ecosystem in Canada through linking cancer registry and administrative health data to the Canadian Partnership for Tomorrow’s Health (CanPath) cohort and biobank. CanPath is Canada’s largest population health study, including 1% of the Canadian populatio...
| Main Authors: | , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Swansea University
2022-08-01
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| Series: | International Journal of Population Data Science |
| Subjects: | |
| Online Access: | https://ijpds.org/article/view/1950 |
| _version_ | 1797423068214198272 |
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| author | Robin Urquhart Philip Awadalla Parveen Bhatti Trevor Dummer Simon Gravel Jennifer Vena Riaz Alvi Philippe Broet Cynthia Kendell Victoria Kirsh Guillaume Lettre Kimberly Skead Grace Shen-Tu Ellen Sweeney Donna Turner |
| author_facet | Robin Urquhart Philip Awadalla Parveen Bhatti Trevor Dummer Simon Gravel Jennifer Vena Riaz Alvi Philippe Broet Cynthia Kendell Victoria Kirsh Guillaume Lettre Kimberly Skead Grace Shen-Tu Ellen Sweeney Donna Turner |
| author_sort | Robin Urquhart |
| collection | DOAJ |
| description | Objectives
We will enrich the cancer research ecosystem in Canada through linking cancer registry and administrative health data to the Canadian Partnership for Tomorrow’s Health (CanPath) cohort and biobank. CanPath is Canada’s largest population health study, including 1% of the Canadian population, which seeks to investigate cancer development.
Approach
We are achieving record-level linkage of the CanPath harmonized dataset to provincial cancer registry data, and hospitalization and ambulatory care data from the Canadian Institutes of Health Information (CIHI). The CanPATH harmonized dataset includes comprehensive genetics, environment, lifestyle, and behaviour data. Our linkage activities will result in interprovincial data sharing, with centrally-held linked data, a first in Canadian history. We will demonstrate the CanPath-cancer registry-CIHI linkage potential by investigating the impact of the COVID-19 pandemic on healthcare utilization and outcomes among those with cancer.
Results
The linkage is ongoing and anticipated to be completed by September 2022. Linked data will be made available through the CanPath Data Safe Haven, a cloud-based solution that meets the legal requirements of the data sharing agreements and provincial privacy policies, and is accessible to researchers through secure access. The CanPath Data Safe Haven will be a federated data platform for Canadian researchers to access, analyze, and contribute research in a collaborative environment. By linking these datasets, this project will: address concerns related to accessibility of cancer data in Canada; bring more value to existing data; support an enhanced understanding of the impacts of cancer on marginalized populations; and create a more integrated approach to cancer data access and management.
Conclusion
CanPath will be the first program in Canadian history to combine the wealth of cohort resources with cancer registry and administrative health data in a central location at a national scale. We will provide a single point of access for researchers to conduct novel investigations into cancer development and outcomes.
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| first_indexed | 2024-03-09T07:42:06Z |
| format | Article |
| id | doaj.art-4d047db44ccb429c895d3450fa6519ab |
| institution | Directory Open Access Journal |
| issn | 2399-4908 |
| language | English |
| last_indexed | 2024-03-09T07:42:06Z |
| publishDate | 2022-08-01 |
| publisher | Swansea University |
| record_format | Article |
| series | International Journal of Population Data Science |
| spelling | doaj.art-4d047db44ccb429c895d3450fa6519ab2023-12-03T04:22:43ZengSwansea UniversityInternational Journal of Population Data Science2399-49082022-08-017310.23889/ijpds.v7i3.1950Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada.Robin Urquhart0Philip Awadalla1Parveen Bhatti2Trevor Dummer3Simon Gravel4Jennifer Vena5Riaz Alvi6Philippe Broet7Cynthia Kendell8Victoria Kirsh9Guillaume Lettre10Kimberly Skead11Grace Shen-Tu12Ellen Sweeney13Donna Turner14Dalhousie UniversityOntario Institute for Cancer ResearchBC CancerUniversity of British ColumbiaMcGill UniversityAlberta Heatlh ServicesSaskatchewan Cancer AgencyUniversité de MontrealNova Scotia HealthOntario Institute for Cancer ResearchUniversité de MontrealOntario Institute for Cancer ResearchAlberta Health ServicesDalhousie University; CancerCare ManitobaCancerCare ManitobaObjectives We will enrich the cancer research ecosystem in Canada through linking cancer registry and administrative health data to the Canadian Partnership for Tomorrow’s Health (CanPath) cohort and biobank. CanPath is Canada’s largest population health study, including 1% of the Canadian population, which seeks to investigate cancer development. Approach We are achieving record-level linkage of the CanPath harmonized dataset to provincial cancer registry data, and hospitalization and ambulatory care data from the Canadian Institutes of Health Information (CIHI). The CanPATH harmonized dataset includes comprehensive genetics, environment, lifestyle, and behaviour data. Our linkage activities will result in interprovincial data sharing, with centrally-held linked data, a first in Canadian history. We will demonstrate the CanPath-cancer registry-CIHI linkage potential by investigating the impact of the COVID-19 pandemic on healthcare utilization and outcomes among those with cancer. Results The linkage is ongoing and anticipated to be completed by September 2022. Linked data will be made available through the CanPath Data Safe Haven, a cloud-based solution that meets the legal requirements of the data sharing agreements and provincial privacy policies, and is accessible to researchers through secure access. The CanPath Data Safe Haven will be a federated data platform for Canadian researchers to access, analyze, and contribute research in a collaborative environment. By linking these datasets, this project will: address concerns related to accessibility of cancer data in Canada; bring more value to existing data; support an enhanced understanding of the impacts of cancer on marginalized populations; and create a more integrated approach to cancer data access and management. Conclusion CanPath will be the first program in Canadian history to combine the wealth of cohort resources with cancer registry and administrative health data in a central location at a national scale. We will provide a single point of access for researchers to conduct novel investigations into cancer development and outcomes. https://ijpds.org/article/view/1950cancerdata linkagecohortadministrative health datacancer registry |
| spellingShingle | Robin Urquhart Philip Awadalla Parveen Bhatti Trevor Dummer Simon Gravel Jennifer Vena Riaz Alvi Philippe Broet Cynthia Kendell Victoria Kirsh Guillaume Lettre Kimberly Skead Grace Shen-Tu Ellen Sweeney Donna Turner Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. International Journal of Population Data Science cancer data linkage cohort administrative health data cancer registry |
| title | Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. |
| title_full | Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. |
| title_fullStr | Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. |
| title_full_unstemmed | Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. |
| title_short | Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada. |
| title_sort | harnessing the power of data linkage to enrich the cancer research ecosystem in canada |
| topic | cancer data linkage cohort administrative health data cancer registry |
| url | https://ijpds.org/article/view/1950 |
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