Psychosocial impact of early onset dementia among caregivers
Introduction: There is growing recognition of early onset dementia (EOD) as a significant clinical and social problem because of its effects on physical and mental health of people with dementia (PWD) and their caregivers. Objective: To analyze the psychosocial impact of EOD in family caregivers....
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Associação de Psiquiatria do Rio Grande do Sul
2015-12-01
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| Series: | Trends in Psychiatry and Psychotherapy |
| Subjects: | |
| Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2237-60892015003400213&lng=en&tlng=en |
| _version_ | 1811264262621888512 |
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| author | Nathália R. S. Kimura Virgínia L. R. Maffioletti Raquel L. Santos Maria Alice Tourinho Baptista Marcia C. N. Dourado |
| author_facet | Nathália R. S. Kimura Virgínia L. R. Maffioletti Raquel L. Santos Maria Alice Tourinho Baptista Marcia C. N. Dourado |
| author_sort | Nathália R. S. Kimura |
| collection | DOAJ |
| description | Introduction: There is growing recognition of early onset dementia (EOD) as a significant clinical and social problem because of its effects on physical and mental health of people with dementia (PWD) and their caregivers. Objective: To analyze the psychosocial impact of EOD in family caregivers. Methods: The study design was qualitative. Nine EOD caregivers (7 women) were recruited at a service for Alzheimer's disease and assessed using semi-structured interviews. Interpretative phenomenological analysis was used to analyze caregivers' reports. Results: Five themes emerged from the narratives: psychological and emotional impact; physical impact; financial and professional impact; social impact and need for support services. The majority of the caregivers of people with EOD perceived their emotional wellbeing as poor or extremely poor. Carers reported poor physical health, which tends to be longer-lasting than mental health problems. Two caregivers had to retire after the disclosure of the dementia diagnosis, and seven reduced their work loads because they had to look after PWD. Preserving the abilities of PWD is essential to maintain their self-esteem, dignity and sense of utility. For the caregivers, interventions and stimulating activities make PWD feel worthwhile and contribute to improving life. Conclusion: The caregivers of people with EOD assume the role of caregiver prematurely and need to balance this activity with other responsibilities. There is a need for more studies of EOD in order to improve understanding of the impact of this disease and to enable development of adequate services for PWD and their caregivers. |
| first_indexed | 2024-04-12T20:00:57Z |
| format | Article |
| id | doaj.art-4d7d9012a10b486c8a1aab9a73b936d7 |
| institution | Directory Open Access Journal |
| issn | 2238-0019 |
| language | English |
| last_indexed | 2024-04-12T20:00:57Z |
| publishDate | 2015-12-01 |
| publisher | Associação de Psiquiatria do Rio Grande do Sul |
| record_format | Article |
| series | Trends in Psychiatry and Psychotherapy |
| spelling | doaj.art-4d7d9012a10b486c8a1aab9a73b936d72022-12-22T03:18:32ZengAssociação de Psiquiatria do Rio Grande do SulTrends in Psychiatry and Psychotherapy2238-00192015-12-0137421321910.1590/2237-6089-2015-0038S2237-60892015003400213Psychosocial impact of early onset dementia among caregiversNathália R. S. KimuraVirgínia L. R. MaffiolettiRaquel L. SantosMaria Alice Tourinho BaptistaMarcia C. N. DouradoIntroduction: There is growing recognition of early onset dementia (EOD) as a significant clinical and social problem because of its effects on physical and mental health of people with dementia (PWD) and their caregivers. Objective: To analyze the psychosocial impact of EOD in family caregivers. Methods: The study design was qualitative. Nine EOD caregivers (7 women) were recruited at a service for Alzheimer's disease and assessed using semi-structured interviews. Interpretative phenomenological analysis was used to analyze caregivers' reports. Results: Five themes emerged from the narratives: psychological and emotional impact; physical impact; financial and professional impact; social impact and need for support services. The majority of the caregivers of people with EOD perceived their emotional wellbeing as poor or extremely poor. Carers reported poor physical health, which tends to be longer-lasting than mental health problems. Two caregivers had to retire after the disclosure of the dementia diagnosis, and seven reduced their work loads because they had to look after PWD. Preserving the abilities of PWD is essential to maintain their self-esteem, dignity and sense of utility. For the caregivers, interventions and stimulating activities make PWD feel worthwhile and contribute to improving life. Conclusion: The caregivers of people with EOD assume the role of caregiver prematurely and need to balance this activity with other responsibilities. There is a need for more studies of EOD in order to improve understanding of the impact of this disease and to enable development of adequate services for PWD and their caregivers.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2237-60892015003400213&lng=en&tlng=enDescritores: Demência de início precocecuidadorimpacto psicossocialestudos qualitativos |
| spellingShingle | Nathália R. S. Kimura Virgínia L. R. Maffioletti Raquel L. Santos Maria Alice Tourinho Baptista Marcia C. N. Dourado Psychosocial impact of early onset dementia among caregivers Trends in Psychiatry and Psychotherapy Descritores: Demência de início precoce cuidador impacto psicossocial estudos qualitativos |
| title | Psychosocial impact of early onset dementia among caregivers |
| title_full | Psychosocial impact of early onset dementia among caregivers |
| title_fullStr | Psychosocial impact of early onset dementia among caregivers |
| title_full_unstemmed | Psychosocial impact of early onset dementia among caregivers |
| title_short | Psychosocial impact of early onset dementia among caregivers |
| title_sort | psychosocial impact of early onset dementia among caregivers |
| topic | Descritores: Demência de início precoce cuidador impacto psicossocial estudos qualitativos |
| url | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2237-60892015003400213&lng=en&tlng=en |
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