Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development

Abstract Background Patient-centered care is an essential component of health care quality. To achieve patient-centered care, health care authorities should have a clear definition and an applicable tool to measure the extent of its application. The real concept of patient centeredness should be dev...

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Main Authors: Hana Hasan Webair, Tengku Alina Tengku Ismail, Shaiful Bahari Ismail, Azza Jameel Khaffaji, Nik Hazlina Nik Hussain, Azidah Abdul Kadir, Rosediani Muhamad, Fatin Aina Abu Bakar, Nur Raihan Ismail, Nagwa Badri
Format: Article
Language:English
Published: BMC 2021-09-01
Series:BMC Medical Research Methodology
Subjects:
Online Access:https://doi.org/10.1186/s12874-021-01376-w
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author Hana Hasan Webair
Tengku Alina Tengku Ismail
Shaiful Bahari Ismail
Azza Jameel Khaffaji
Nik Hazlina Nik Hussain
Azidah Abdul Kadir
Rosediani Muhamad
Fatin Aina Abu Bakar
Nur Raihan Ismail
Nagwa Badri
author_facet Hana Hasan Webair
Tengku Alina Tengku Ismail
Shaiful Bahari Ismail
Azza Jameel Khaffaji
Nik Hazlina Nik Hussain
Azidah Abdul Kadir
Rosediani Muhamad
Fatin Aina Abu Bakar
Nur Raihan Ismail
Nagwa Badri
author_sort Hana Hasan Webair
collection DOAJ
description Abstract Background Patient-centered care is an essential component of health care quality. To achieve patient-centered care, health care authorities should have a clear definition and an applicable tool to measure the extent of its application. The real concept of patient centeredness should be developed by the patients themselves. We aimed to demonstrate a way to develop a draft Arabic patient-centered infertility care (PCIC) questionnaire for females clients following practical steps that address women with infertility. Methods An iterative process of questionnaire development was undertaken by combining two approaches: the steps proposed by Robert F. DeVellis for scale development and the recommended practices for questionnaire development and testing in the European statistical system. We attempted to develop the draft questionnaire that involved conceptualization and operationalization, generation of an item pool, development of the questionnaire format, review of the initial item pool by experts, and consideration of validation items for inclusion. Results We generated an item pool from in-depth interviews with 14 women who sought infertility care within 6 months before the interview time. We then added more items from a literature review. The item pool contained 123 items distributed through 10 domains. Ten women with infertility were included for face validation. Then, experts with backgrounds in Obstetrics and Gynecology, Family Medicine, and Public Health reviewed the item pool using content validation (n = 10 professors and/or specialists). The item pool was finally reduced to 57 items. We developed the draft Arabic patient-centered infertility care questionnaire for female clients (PCIQ-F) with three sections, including 66 items: background variables, PCIC experience variables, and a general question about the quality of infertility care in the health facility. The draft questionnaire was further reviewed and edited last by experts in preparation for part 2, which will test the questionnaire and prepare the final version. Conclusion The PCIQ-F questionnaire development is a multi-step iterative process started and ended by the target users as experts. Experts’ participation in infertility care and in questionnaire format development had a great impact on questionnaire development and conflict resolution. We recommend this transparent and replicable approach for new instrument developers; it is likely to generate a questionnaire that is valid and acceptable to target users. The draft PCIQ-F questionnaire is ready for testing of its psychometric properties before the final version to measure the PCIC level in health facilities.
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spelling doaj.art-4d81523d7f7a4bd3b43aba57ef98882a2022-12-21T22:48:05ZengBMCBMC Medical Research Methodology1471-22882021-09-0121111010.1186/s12874-021-01376-wPatient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire developmentHana Hasan Webair0Tengku Alina Tengku Ismail1Shaiful Bahari Ismail2Azza Jameel Khaffaji3Nik Hazlina Nik Hussain4Azidah Abdul Kadir5Rosediani Muhamad6Fatin Aina Abu Bakar7Nur Raihan Ismail8Nagwa Badri9Department of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusDepartment of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusDepartment of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusObstetrics and Gynaecology Department, Ministry of Health, King Abdulaziz HospitalWomen’s Health Development Unit, School of Medical Sciences, Universiti Sains Malaysia, Health CampusDepartment of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusDepartment of Family Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusJohor Bahru District Health OfficeDepartment of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health CampusInternational Medical CenterAbstract Background Patient-centered care is an essential component of health care quality. To achieve patient-centered care, health care authorities should have a clear definition and an applicable tool to measure the extent of its application. The real concept of patient centeredness should be developed by the patients themselves. We aimed to demonstrate a way to develop a draft Arabic patient-centered infertility care (PCIC) questionnaire for females clients following practical steps that address women with infertility. Methods An iterative process of questionnaire development was undertaken by combining two approaches: the steps proposed by Robert F. DeVellis for scale development and the recommended practices for questionnaire development and testing in the European statistical system. We attempted to develop the draft questionnaire that involved conceptualization and operationalization, generation of an item pool, development of the questionnaire format, review of the initial item pool by experts, and consideration of validation items for inclusion. Results We generated an item pool from in-depth interviews with 14 women who sought infertility care within 6 months before the interview time. We then added more items from a literature review. The item pool contained 123 items distributed through 10 domains. Ten women with infertility were included for face validation. Then, experts with backgrounds in Obstetrics and Gynecology, Family Medicine, and Public Health reviewed the item pool using content validation (n = 10 professors and/or specialists). The item pool was finally reduced to 57 items. We developed the draft Arabic patient-centered infertility care questionnaire for female clients (PCIQ-F) with three sections, including 66 items: background variables, PCIC experience variables, and a general question about the quality of infertility care in the health facility. The draft questionnaire was further reviewed and edited last by experts in preparation for part 2, which will test the questionnaire and prepare the final version. Conclusion The PCIQ-F questionnaire development is a multi-step iterative process started and ended by the target users as experts. Experts’ participation in infertility care and in questionnaire format development had a great impact on questionnaire development and conflict resolution. We recommend this transparent and replicable approach for new instrument developers; it is likely to generate a questionnaire that is valid and acceptable to target users. The draft PCIQ-F questionnaire is ready for testing of its psychometric properties before the final version to measure the PCIC level in health facilities.https://doi.org/10.1186/s12874-021-01376-wInfertilityPatient-centeredQuestionnaire
spellingShingle Hana Hasan Webair
Tengku Alina Tengku Ismail
Shaiful Bahari Ismail
Azza Jameel Khaffaji
Nik Hazlina Nik Hussain
Azidah Abdul Kadir
Rosediani Muhamad
Fatin Aina Abu Bakar
Nur Raihan Ismail
Nagwa Badri
Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
BMC Medical Research Methodology
Infertility
Patient-centered
Questionnaire
title Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
title_full Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
title_fullStr Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
title_full_unstemmed Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
title_short Patient-centered infertility questionnaire for female clients (PCIQ-F): part I: questionnaire development
title_sort patient centered infertility questionnaire for female clients pciq f part i questionnaire development
topic Infertility
Patient-centered
Questionnaire
url https://doi.org/10.1186/s12874-021-01376-w
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