E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol
Abstract Background Providing informal care for individuals with dementia is frequently a challenging and demanding experience that can have detrimental effects on the psychological well-being of caregivers. Regrettably, community-based caregiver services often prove inadequate, highlighting the nec...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2024-02-01
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| Series: | BMC Nursing |
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| Online Access: | https://doi.org/10.1186/s12912-024-01706-5 |
| _version_ | 1797275276584943616 |
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| author | Shanshan Wang Jing Qin Daphne Sze Ki Cheung Stefanos Tyrovolas Sze Him Isaac Leung Angela Yee Man Leung Patricia Mary Davidson |
| author_facet | Shanshan Wang Jing Qin Daphne Sze Ki Cheung Stefanos Tyrovolas Sze Him Isaac Leung Angela Yee Man Leung Patricia Mary Davidson |
| author_sort | Shanshan Wang |
| collection | DOAJ |
| description | Abstract Background Providing informal care for individuals with dementia is frequently a challenging and demanding experience that can have detrimental effects on the psychological well-being of caregivers. Regrettably, community-based caregiver services often prove inadequate, highlighting the necessity for innovative approaches to support caregivers. Aim To test the efficacy of e-bibliotherapy in improving the psychological well-being of informal caregivers of people with dementia. Method The study is divided into two phases. In phase 1, the research team will co-design the e-bibliotherapy app with caregivers. In phase 2, a randomized controlled trial will be conducted among 192 informal caregivers of people with dementia in Hong Kong. Caregivers will be randomly assigned to either the e-bibliotherapy group or the control group using simple randomization. Outcome measures will encompass caregivers’ psychological well-being, caregiving appraisal, mental health, saliva cortisol levels as an indicator of stress, and health-related quality of life for caregivers. Data will be collected at baseline, immediately post intervention, and 3 months and 6 months post intervention. General linear mixed model will be employed to analyze intervention effects. Qualitative interviews will be undertaken to explore caregiver experiences within this study and evaluate intervention acceptability using conventional content analysis methods. Discussion This study represents a pioneering effort in utilizing e-bibliotherapy to enhance the psychological well-being of informal caregivers of individuals with dementia, addressing the existing gap in caregiver services and facilitating knowledge dissemination within the community. Trial registration The trial has been registered on ClinicalTrial.gov (Ref: NCT05927805). |
| first_indexed | 2024-03-07T15:11:56Z |
| format | Article |
| id | doaj.art-4dd6c82d00ae4665b9267c87cf9f01df |
| institution | Directory Open Access Journal |
| issn | 1472-6955 |
| language | English |
| last_indexed | 2024-03-07T15:11:56Z |
| publishDate | 2024-02-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Nursing |
| spelling | doaj.art-4dd6c82d00ae4665b9267c87cf9f01df2024-03-05T18:37:06ZengBMCBMC Nursing1472-69552024-02-012311910.1186/s12912-024-01706-5E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocolShanshan Wang0Jing Qin1Daphne Sze Ki Cheung2Stefanos Tyrovolas3Sze Him Isaac Leung4Angela Yee Man Leung5Patricia Mary Davidson6School of Nursing, The Hong Kong Polytechnic UniversitySchool of Nursing, The Hong Kong Polytechnic UniversitySchool of Nursing, The Hong Kong Polytechnic UniversitySchool of Nursing, The Hong Kong Polytechnic UniversityDepartment of Statistics, The Chinese University of Hong KongSchool of Nursing, The Hong Kong Polytechnic UniversityUniversity of WollongongAbstract Background Providing informal care for individuals with dementia is frequently a challenging and demanding experience that can have detrimental effects on the psychological well-being of caregivers. Regrettably, community-based caregiver services often prove inadequate, highlighting the necessity for innovative approaches to support caregivers. Aim To test the efficacy of e-bibliotherapy in improving the psychological well-being of informal caregivers of people with dementia. Method The study is divided into two phases. In phase 1, the research team will co-design the e-bibliotherapy app with caregivers. In phase 2, a randomized controlled trial will be conducted among 192 informal caregivers of people with dementia in Hong Kong. Caregivers will be randomly assigned to either the e-bibliotherapy group or the control group using simple randomization. Outcome measures will encompass caregivers’ psychological well-being, caregiving appraisal, mental health, saliva cortisol levels as an indicator of stress, and health-related quality of life for caregivers. Data will be collected at baseline, immediately post intervention, and 3 months and 6 months post intervention. General linear mixed model will be employed to analyze intervention effects. Qualitative interviews will be undertaken to explore caregiver experiences within this study and evaluate intervention acceptability using conventional content analysis methods. Discussion This study represents a pioneering effort in utilizing e-bibliotherapy to enhance the psychological well-being of informal caregivers of individuals with dementia, addressing the existing gap in caregiver services and facilitating knowledge dissemination within the community. Trial registration The trial has been registered on ClinicalTrial.gov (Ref: NCT05927805).https://doi.org/10.1186/s12912-024-01706-5BibliotherapyElectronicDementiaCaregiverPsychological well-beingNursing |
| spellingShingle | Shanshan Wang Jing Qin Daphne Sze Ki Cheung Stefanos Tyrovolas Sze Him Isaac Leung Angela Yee Man Leung Patricia Mary Davidson E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol BMC Nursing Bibliotherapy Electronic Dementia Caregiver Psychological well-being Nursing |
| title | E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol |
| title_full | E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol |
| title_fullStr | E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol |
| title_full_unstemmed | E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol |
| title_short | E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol |
| title_sort | e bibliotherapy for improving the psychological well being of informal caregivers of people with dementia a randomized controlled trial protocol |
| topic | Bibliotherapy Electronic Dementia Caregiver Psychological well-being Nursing |
| url | https://doi.org/10.1186/s12912-024-01706-5 |
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