An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment

Abstract Background An increased awareness of patients' and parents' care preferences regarding foot care is desirable from a clinical perspective as such information may be utilised to optimise care delivery. The aim of this study was to examine parents' preferences for, and valuatio...

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Main Authors: Gordon J Hendry, Debbie E Turner, Janet Gardner‐Medwin, Paula K Lorgelly, James Woodburn
Format: Article
Language:English
Published: Wiley 2014-01-01
Series:Journal of Foot and Ankle Research
Subjects:
Online Access:https://doi.org/10.1186/1757-1146-7-10
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author Gordon J Hendry
Debbie E Turner
Janet Gardner‐Medwin
Paula K Lorgelly
James Woodburn
author_facet Gordon J Hendry
Debbie E Turner
Janet Gardner‐Medwin
Paula K Lorgelly
James Woodburn
author_sort Gordon J Hendry
collection DOAJ
description Abstract Background An increased awareness of patients' and parents' care preferences regarding foot care is desirable from a clinical perspective as such information may be utilised to optimise care delivery. The aim of this study was to examine parents' preferences for, and valuations of foot care and foot‐related outcomes in juvenile idiopathic arthritis (JIA). Methods A discrete choice experiment (DCE) incorporating willingness‐to‐pay (WTP) questions was conducted by surveying 42 parents of children with JIA who were enrolled in a randomised‐controlled trial of multidisciplinary foot care at a single UK paediatric rheumatology outpatients department. Attributes explored were: levels of pain; mobility; ability to perform activities of daily living (ADL); waiting time; referral route; and footwear. The DCE was administered at trial baseline. DCE data were analysed using a multinomial‐logit‐regression model to estimate preferences and relative importance of attributes of foot care. A stated‐preference WTP question was presented to estimate parents' monetary valuation of health and service improvements. Results Every attribute in the DCE was statistically significant (p < 0.01) except that of cost (p = 0.118), suggesting that all attributes, except cost, have an impact on parents' preferences for foot care for their child. The magnitudes of the coefficients indicate that the strength of preference for each attribute was (in descending order): improved ability to perform ADL, reductions in foot pain, improved mobility, improved ability to wear desired footwear, multidisciplinary foot care route, and reduced waiting time. Parents' estimated mean annual WTP for a multidisciplinary foot care service was £1,119.05. Conclusions In terms of foot care service provision for children with JIA, parents appear to prefer improvements in health outcomes over non‐health outcomes and service process attributes. Cost was relatively less important than other attributes suggesting that it does not appear to impact on parents' preferences.
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spelling doaj.art-4e4a9d57995443798423880437e2d9fd2024-02-07T15:16:16ZengWileyJournal of Foot and Ankle Research1757-11462014-01-0171n/an/a10.1186/1757-1146-7-10An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experimentGordon J Hendry0Debbie E Turner1Janet Gardner‐Medwin2Paula K Lorgelly3James Woodburn4School of Health & Life SciencesInstitute for Applied Health ResearchGlasgow Caledonian UniversityG4 0BAGlasgowUKSchool of Health & Life SciencesInstitute for Applied Health ResearchGlasgow Caledonian UniversityG4 0BAGlasgowUKDepartment of Child HealthUniversity of GlasgowGlasgowUKCentre for Health EconomicsMonash UniversityClaytonAustraliaSchool of Health & Life SciencesInstitute for Applied Health ResearchGlasgow Caledonian UniversityG4 0BAGlasgowUKAbstract Background An increased awareness of patients' and parents' care preferences regarding foot care is desirable from a clinical perspective as such information may be utilised to optimise care delivery. The aim of this study was to examine parents' preferences for, and valuations of foot care and foot‐related outcomes in juvenile idiopathic arthritis (JIA). Methods A discrete choice experiment (DCE) incorporating willingness‐to‐pay (WTP) questions was conducted by surveying 42 parents of children with JIA who were enrolled in a randomised‐controlled trial of multidisciplinary foot care at a single UK paediatric rheumatology outpatients department. Attributes explored were: levels of pain; mobility; ability to perform activities of daily living (ADL); waiting time; referral route; and footwear. The DCE was administered at trial baseline. DCE data were analysed using a multinomial‐logit‐regression model to estimate preferences and relative importance of attributes of foot care. A stated‐preference WTP question was presented to estimate parents' monetary valuation of health and service improvements. Results Every attribute in the DCE was statistically significant (p < 0.01) except that of cost (p = 0.118), suggesting that all attributes, except cost, have an impact on parents' preferences for foot care for their child. The magnitudes of the coefficients indicate that the strength of preference for each attribute was (in descending order): improved ability to perform ADL, reductions in foot pain, improved mobility, improved ability to wear desired footwear, multidisciplinary foot care route, and reduced waiting time. Parents' estimated mean annual WTP for a multidisciplinary foot care service was £1,119.05. Conclusions In terms of foot care service provision for children with JIA, parents appear to prefer improvements in health outcomes over non‐health outcomes and service process attributes. Cost was relatively less important than other attributes suggesting that it does not appear to impact on parents' preferences.https://doi.org/10.1186/1757-1146-7-10Juvenile idiopathic arthritisFootDiscrete choice experimentHealth economicsPodiatry
spellingShingle Gordon J Hendry
Debbie E Turner
Janet Gardner‐Medwin
Paula K Lorgelly
James Woodburn
An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
Journal of Foot and Ankle Research
Juvenile idiopathic arthritis
Foot
Discrete choice experiment
Health economics
Podiatry
title An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
title_full An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
title_fullStr An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
title_full_unstemmed An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
title_short An exploration of parents' preferences for foot care in juvenile idiopathic arthritis: a possible role for the discrete choice experiment
title_sort exploration of parents preferences for foot care in juvenile idiopathic arthritis a possible role for the discrete choice experiment
topic Juvenile idiopathic arthritis
Foot
Discrete choice experiment
Health economics
Podiatry
url https://doi.org/10.1186/1757-1146-7-10
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