Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma

<p class="p1"><span class="s1">Background: </span>Caring for a loved one with a malignant glioma can be a formidable responsibility. The guarded prognosis, side effects of treatments, and changes in brain function, personality and behaviour pose unique challenge...

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Main Authors: Rosemary Cashman, Lori J. Bernstein, Denise Bilodeau, Geoff Bowett, Barbara Jackson, Masoud Yousefi, Anca Prica, James Perry
Format: Article
Language:English
Published: Pappin Communications 2015-03-01
Series:Canadian Oncology Nursing Journal
Online Access:https://canadianoncologynursingjournal.com/index.php/conj/article/view/274
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author Rosemary Cashman
Lori J. Bernstein
Denise Bilodeau
Geoff Bowett
Barbara Jackson
Masoud Yousefi
Anca Prica
James Perry
author_facet Rosemary Cashman
Lori J. Bernstein
Denise Bilodeau
Geoff Bowett
Barbara Jackson
Masoud Yousefi
Anca Prica
James Perry
author_sort Rosemary Cashman
collection DOAJ
description <p class="p1"><span class="s1">Background: </span>Caring for a loved one with a malignant glioma can be a formidable responsibility. The guarded prognosis, side effects of treatments, and changes in brain function, personality and behaviour pose unique challenges in care provision by family members. It is rare that institutions provide educational programs for caregivers.</p><p class="p1"><span class="s1">Purpose: </span>To evaluate the impact of providing information in an educational program to caregivers of patients diagnosed with a malignant glioma.</p><p class="p1"><span class="s1">Methods: </span>A structured educational program for caregivers of brain tumour patients was developed based upon multidisciplinary expert opinion and caregiver feedback. Twenty-four caregiver participants were enrolled in the program. Knowledge was assessed before, immediately following, and four to six weeks following the program. Open-ended questions were used to explore the caregivers’ experiences, as well as additional benefits derived from the program.</p><p class="p1"><span class="s1">Results: </span>Knowledge scores on testing immediately after the program and four to six weeks following the program were statistically significantly improved from baseline testing, although there was a decline in scores four to six weeks after the program. These findings demonstrate effective knowledge transfer (recall of the information) immediately after the education program and four to six weeks later. Specific qualitative and quantitative data serve as a basis for understanding caregivers’ needs and experiences.</p>
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spelling doaj.art-4e68da1edf6a442690e4db0ad335f6db2024-02-08T16:28:54ZengPappin CommunicationsCanadian Oncology Nursing Journal1181-912X2368-80762015-03-01171610272Evaluation of an educational program for the caregivers of persons diagnosed with a malignant gliomaRosemary CashmanLori J. BernsteinDenise BilodeauGeoff BowettBarbara JacksonMasoud YousefiAnca PricaJames Perry<p class="p1"><span class="s1">Background: </span>Caring for a loved one with a malignant glioma can be a formidable responsibility. The guarded prognosis, side effects of treatments, and changes in brain function, personality and behaviour pose unique challenges in care provision by family members. It is rare that institutions provide educational programs for caregivers.</p><p class="p1"><span class="s1">Purpose: </span>To evaluate the impact of providing information in an educational program to caregivers of patients diagnosed with a malignant glioma.</p><p class="p1"><span class="s1">Methods: </span>A structured educational program for caregivers of brain tumour patients was developed based upon multidisciplinary expert opinion and caregiver feedback. Twenty-four caregiver participants were enrolled in the program. Knowledge was assessed before, immediately following, and four to six weeks following the program. Open-ended questions were used to explore the caregivers’ experiences, as well as additional benefits derived from the program.</p><p class="p1"><span class="s1">Results: </span>Knowledge scores on testing immediately after the program and four to six weeks following the program were statistically significantly improved from baseline testing, although there was a decline in scores four to six weeks after the program. These findings demonstrate effective knowledge transfer (recall of the information) immediately after the education program and four to six weeks later. Specific qualitative and quantitative data serve as a basis for understanding caregivers’ needs and experiences.</p>https://canadianoncologynursingjournal.com/index.php/conj/article/view/274
spellingShingle Rosemary Cashman
Lori J. Bernstein
Denise Bilodeau
Geoff Bowett
Barbara Jackson
Masoud Yousefi
Anca Prica
James Perry
Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
Canadian Oncology Nursing Journal
title Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
title_full Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
title_fullStr Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
title_full_unstemmed Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
title_short Evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
title_sort evaluation of an educational program for the caregivers of persons diagnosed with a malignant glioma
url https://canadianoncologynursingjournal.com/index.php/conj/article/view/274
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