Management of patients with rare adult solid cancers: objectives and evaluation of European reference networks (ERN) EURACAN

Management of patients with rare adult solid cancers: objectives and evaluation of European reference networks (ERN) EURACAN

Summary: About 500,000 patients with rare adult solid cancers (RASC) are diagnosed yearly in Europe. Delays and unequal quality of management impact negatively their survival. Since 2017, European reference networks (ERN) aim to improve the quality of care of patients with rare disease. The steering...

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Bibliographic Details
Main Authors: Jean-Yves Blay, Paolo Casali, Isabelle Ray-Coquard, Michael J. Seckl, Jourik Gietema, Wouter W. de Herder, Martyn Caplin, Heinz-Josef Klümpen, Olivier Glehen, Lucjan Wyrwicz, Robin Peeters, Lisa Licitra, Nicolas Girard, Sophie Piperno-Neumann, Ellen Kapiteijn, Ahmed Idbaih, Enrico Franceschi, Annalisa Trama, Anna-Maria Frezza, Peter Hohenberger, Nadia Hindi, Javier Martin-Broto, Johanna Schell, Muriel Rogasik, Stephane Lejeune, Kathy Oliver, Francesco de Lorenzo, Ariane Weinman
Format: Article
Language:English
Published: Elsevier 2024-04-01
Series:The Lancet Regional Health. Europe
Subjects:
Rare cancers
Rare diseases
Clinical practice guidelines
Surgery
Relapse
Survival
Online Access:http://www.sciencedirect.com/science/article/pii/S2666776224000279

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