Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children
Several studies report that parents of children with disabilities complain about professionals ignoring the parents’ view and understanding of the child's needs. The aim of this paper is to explore the parents’ experience of not being listened to from their own perspective. Findings are based o...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
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Stockholm University Press
2008-10-01
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| Series: | Scandinavian Journal of Disability Research |
| Subjects: | |
| Online Access: | https://www.sjdr.se/articles/304 |
| _version_ | 1797708054322479104 |
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| author | Hege Lundeby Jan Tøssebro |
| author_facet | Hege Lundeby Jan Tøssebro |
| author_sort | Hege Lundeby |
| collection | DOAJ |
| description | Several studies report that parents of children with disabilities complain about professionals ignoring the parents’ view and understanding of the child's needs. The aim of this paper is to explore the parents’ experience of not being listened to from their own perspective. Findings are based on a longitudinal study including qualitative interviews with parents of 31 children with different types of impairments in pre-school (1999) and early school years (2002). Incidents where parents reported “not being listened to” were distinguished according to different types of conflicts or disagreements: (1) problem-defining; (2) gate-keeping; and (3) jurisdiction. The underlying problem as viewed by the parents was that their knowledge was not valued. Dilemmas and obstacles towards practising user-participation in parent–professional relationships are discussed. The findings suggest a necessity of negotiating partnership, as well as a more humble approach towards parents. |
| first_indexed | 2024-03-12T06:16:42Z |
| format | Article |
| id | doaj.art-4f9b2b23056943d6bf1689829bd0f70a |
| institution | Directory Open Access Journal |
| issn | 1501-7419 1745-3011 |
| language | English |
| last_indexed | 2024-03-12T06:16:42Z |
| publishDate | 2008-10-01 |
| publisher | Stockholm University Press |
| record_format | Article |
| series | Scandinavian Journal of Disability Research |
| spelling | doaj.art-4f9b2b23056943d6bf1689829bd0f70a2023-09-03T02:32:32ZengStockholm University PressScandinavian Journal of Disability Research1501-74191745-30112008-10-0110425827410.1080/15017410802469700234Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled ChildrenHege Lundeby0Jan Tøssebro1Department of Social Work and Health Science, Norwegian University of Science and Technology, Trondheim, NorwayDepartment of Social Work and Health Science, Norwegian University of Science and Technology, Trondheim, NorwaySeveral studies report that parents of children with disabilities complain about professionals ignoring the parents’ view and understanding of the child's needs. The aim of this paper is to explore the parents’ experience of not being listened to from their own perspective. Findings are based on a longitudinal study including qualitative interviews with parents of 31 children with different types of impairments in pre-school (1999) and early school years (2002). Incidents where parents reported “not being listened to” were distinguished according to different types of conflicts or disagreements: (1) problem-defining; (2) gate-keeping; and (3) jurisdiction. The underlying problem as viewed by the parents was that their knowledge was not valued. Dilemmas and obstacles towards practising user-participation in parent–professional relationships are discussed. The findings suggest a necessity of negotiating partnership, as well as a more humble approach towards parents.https://www.sjdr.se/articles/304Parents, disabled children, empowerment, user-perspective |
| spellingShingle | Hege Lundeby Jan Tøssebro Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children Scandinavian Journal of Disability Research Parents, disabled children, empowerment, user-perspective |
| title | Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children |
| title_full | Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children |
| title_fullStr | Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children |
| title_full_unstemmed | Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children |
| title_short | Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children |
| title_sort | exploring the experiences of not being listened to from the perspective of parents with disabled children |
| topic | Parents, disabled children, empowerment, user-perspective |
| url | https://www.sjdr.se/articles/304 |
| work_keys_str_mv | AT hegelundeby exploringtheexperiencesofnotbeinglistenedtofromtheperspectiveofparentswithdisabledchildren AT jantøssebro exploringtheexperiencesofnotbeinglistenedtofromtheperspectiveofparentswithdisabledchildren |