Overcoming Workplace Disability in IBD Patients: An Observational Study

Background: Inflammatory Bowel Disease (IBD) can have considerable effects on employment outcomes because of its disabling character. Goals: We aimed to investigate the impact of IBD in the workplace and to better understand the need for accommodations and adaptations. Study: Between November 2017 a...

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Main Authors: Emma Paulides, Charlotte Daker, Chris Frampton, Richard B. Gearry, Tim Eglinton, Nanne K.H. de Boer, Charles N. Bernstein, Andrew M. McCombie
Format: Article
Language:English
Published: Karger Publishers 2020-03-01
Series:Inflammatory Intestinal Diseases
Subjects:
Online Access:https://www.karger.com/Article/FullText/506702
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author Emma Paulides
Charlotte Daker
Chris Frampton
Richard B. Gearry
Tim Eglinton
Nanne K.H. de Boer
Charles N. Bernstein
Andrew M. McCombie
author_facet Emma Paulides
Charlotte Daker
Chris Frampton
Richard B. Gearry
Tim Eglinton
Nanne K.H. de Boer
Charles N. Bernstein
Andrew M. McCombie
author_sort Emma Paulides
collection DOAJ
description Background: Inflammatory Bowel Disease (IBD) can have considerable effects on employment outcomes because of its disabling character. Goals: We aimed to investigate the impact of IBD in the workplace and to better understand the need for accommodations and adaptations. Study: Between November 2017 and March 2018, IBD patients were recruited from outpatient clinics in Christchurch Hospital, New Zealand. The survey assessed employment, the need for workplace accommodations and the difficulty arranging it, insurance, and disability using the item-reduced Inflammatory Bowel Disease Disability Index for self-report (IBD-DI-SR). Data were analyzed using descriptive statistics and multivariate logistic regression modeling. Results: One hundred twenty-three patients were included (response rate 64%), 112 of whom reported that they experienced symptoms while working (60% female, 71% Crohn’s disease, mean age 41.9 years). Ninety-one percent needed at least 1 workplace accommodation when symptoms were most severe. Almost half of the patients who needed an accommodation had difficulty arranging it. The most needed accommodations were time to go to medical appointments (71%) and easy access to a suitable toilet (71%). Being female, having less effective medication, and being distressed were associated with the need for 2 or more accommodations, difficulty in arranging accommodations, and not asking for needed accommodation. Conclusions: Many IBD patients need accommodations at work while symptomatic in order to overcome workplace disability, which can be difficult to arrange. Improved resources are needed to inform employees and employers about the disease, the possibilities for workplace accommodations, and practical strategies to request them.
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spelling doaj.art-502176baeba34ea1b54e96480b9213c42022-12-22T02:28:27ZengKarger PublishersInflammatory Intestinal Diseases2296-94032296-93652020-03-011910.1159/000506702506702Overcoming Workplace Disability in IBD Patients: An Observational StudyEmma PaulidesCharlotte DakerChris FramptonRichard B. GearryTim EglintonNanne K.H. de BoerCharles N. BernsteinAndrew M. McCombieBackground: Inflammatory Bowel Disease (IBD) can have considerable effects on employment outcomes because of its disabling character. Goals: We aimed to investigate the impact of IBD in the workplace and to better understand the need for accommodations and adaptations. Study: Between November 2017 and March 2018, IBD patients were recruited from outpatient clinics in Christchurch Hospital, New Zealand. The survey assessed employment, the need for workplace accommodations and the difficulty arranging it, insurance, and disability using the item-reduced Inflammatory Bowel Disease Disability Index for self-report (IBD-DI-SR). Data were analyzed using descriptive statistics and multivariate logistic regression modeling. Results: One hundred twenty-three patients were included (response rate 64%), 112 of whom reported that they experienced symptoms while working (60% female, 71% Crohn’s disease, mean age 41.9 years). Ninety-one percent needed at least 1 workplace accommodation when symptoms were most severe. Almost half of the patients who needed an accommodation had difficulty arranging it. The most needed accommodations were time to go to medical appointments (71%) and easy access to a suitable toilet (71%). Being female, having less effective medication, and being distressed were associated with the need for 2 or more accommodations, difficulty in arranging accommodations, and not asking for needed accommodation. Conclusions: Many IBD patients need accommodations at work while symptomatic in order to overcome workplace disability, which can be difficult to arrange. Improved resources are needed to inform employees and employers about the disease, the possibilities for workplace accommodations, and practical strategies to request them.https://www.karger.com/Article/FullText/506702inflammatory bowel diseasecrohn’s diseaseulcerative colitisemploymentworkplace disability
spellingShingle Emma Paulides
Charlotte Daker
Chris Frampton
Richard B. Gearry
Tim Eglinton
Nanne K.H. de Boer
Charles N. Bernstein
Andrew M. McCombie
Overcoming Workplace Disability in IBD Patients: An Observational Study
Inflammatory Intestinal Diseases
inflammatory bowel disease
crohn’s disease
ulcerative colitis
employment
workplace disability
title Overcoming Workplace Disability in IBD Patients: An Observational Study
title_full Overcoming Workplace Disability in IBD Patients: An Observational Study
title_fullStr Overcoming Workplace Disability in IBD Patients: An Observational Study
title_full_unstemmed Overcoming Workplace Disability in IBD Patients: An Observational Study
title_short Overcoming Workplace Disability in IBD Patients: An Observational Study
title_sort overcoming workplace disability in ibd patients an observational study
topic inflammatory bowel disease
crohn’s disease
ulcerative colitis
employment
workplace disability
url https://www.karger.com/Article/FullText/506702
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